Ankylosing Spondylitis

Hi, my name is Cheryl and I'm here, because I would like to learn about my disorders, illnesses. 🤓Also I'm interested to see/hear/read how others live with them and maybe pick-up advice, recommandations, tips and tricks. 🙂

#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD #EatingDisorder #OCD #Grief #AnkylosingSpondylitis #IrritableBowelSyndromeIBS #Arthritis #SpinalStenosis #Scoliosis #PanicAttack #PanicDisorder

Hi, my name is cole1383. I've been diagnosed with Ankylosing Spondylitis.

#MightyTogether #AnkylosingSpondylitis

Has anyone here using a pain pump and if so how is it working? I am on several pain medicines and my doctor wants to look at a pump. I am all for anything that keeps me somewhat active. Since I have pain all over I am afraid it will not work well. Can I get some advice, please? #AnkylosingSpondylitis #RheumatoidArthritis

“The Weight That Has No Name”

It lives beneath the surface skin,
A silent storm, a whispering din.
Not loud enough to scream or cry,
But deep enough to question why.

A thousand needles, slow and keen,
Invisible, yet always seen.
The world moves fast, the clocks obey,
While I endure the longest day.

Each morning starts with hope’s refrain,
Each step—a truce with ghosts of pain.
Muscles ache like broken strings,
Joints forget their once-winged wings.

No bandage wraps this kind of fight,
No cast for what keeps me up at night.
It’s patience taught by gritted teeth,
By holding on when strength’s beneath.

But still I rise, I breathe, I bend,
Though pain may never truly end.
There’s beauty in the quiet grace
Of those who walk, but not in haste.

So judge me not by speed or gain,
But by the miles I walk with pain.
For I am more than what you see—
There’s fire yet that burns in me.