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    Accepting an electric wheelchair

    I recently purchased a Golden Technologies Literider Envy green power chair. Since I use various mobility aids (been using the walker pretty often), so it has been getting very hard to get around large places with just a walker. I attended an air show that involved a ton of walking, so my dad had me take my power chair. At first, I was embarrassed because I viewed wheelchairs are for those who are paralyzed, but when I saw ambulatory users my embarrassment was gone and I received compliments on my new chair. It helps me get around with less pain, less fatigue and my symptoms were not as bad. I can say that I accept my new mobility aid because it is a tool to help me get around. And I can enjoy events without paying the price later.

    #Disability #Wheelchair #polyarthralgia #Fibromyalgia #AmbulatoryWheelchairUser #HypermobilitySyndrome #dynamicallydisabled #MobilityAids #Acceptance

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    You can’t always get what you want, but if you try sometimes…you get what you need

    I asked the universe for a motorcycle this year, and they gave me a wheelchair instead 🦽

    Grateful I can get to the bathroom on my own now with the help of new wheels

    #MightyTogether #Wheelchair #bedbound #Undiagnosed #AutoimmuneThyroidDisease #PolycysticOvarySyndrome #Dysautonomia

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    What small things could restaurants do to better accommodate your disability?

    I live with bilateral vestibular loss and oscillopsia which means my disability manifests in unstable walking/mobility as well as near-constant bouncing vision.

    To be honest, eating in most restaurants is really taxing for me. Whether it’s because of the flooring patterns (a nightmare with bouncing vision) or due to how tightly spaced the tables are together. (Have I fallen in a restaurant and even on top of another eatery patron before because the tables were too close together? YOU BETCHA.)

    So I’m curious, what small things could restaurants do to make dining out a better, more accessible experience for people with disabilities?

    #Disability #Wheelchair #Spoonie #EhlersDanlosSyndrome #Migraine #MobilityAids #Accessibility #ChronicPain

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    Sometimes we think we shouldn't feel the #pain the way we do. ... but then 👇#ChronicPain #Polio #PostPolioSyndrome #Wheelchair

    #ChronicPain #PostPolioSyndrome #Polio #Wheelchair


    Finally a wheelchair!

    My first wheelchair arrived today and I'm so thrilled. I want to scream it into the world, because it will make my life so much easier and means less pain. I just wanted to share this #happymoment 🤩
    #Wheelchair #AmbulatoryWheelchairUser #WheelchairUser #happy #Disabled #Disability #ChronicIllness #chronicallyill #ChronicPain #teenager #disabledteenager

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    Grieving my old self 😢

    Today I got yet another IV infusion - one of many. I have had to use a wheelchair 🦽 and walker to get around, and it’s been so hard!!! I’m only 22. I’ve just been feeling really depressed and grieving my older self (before I got sick) 😷 I used to be a very active person. I used to have a job, went to school, and ran cross country and track 🏃‍♀️. Did I still struggle - yes, but I recently had to quit my job, and my parents told me today that I have to move out of my apartment and come back home :( I’m just in so much pain and don’t know what to do that I’m feeling suicidal again 😭 I need some hope and a light at the end of the tunnel! I just want to be better more than anything! #LymeDisease #Wheelchair #Disability #Depression #SuicidalThoughts #PsychogenicNonepilepticSeizures #PsychogenicMovementDisorder #IfYouFeelHopeless



    I am 19 years old, and I use a wheelchair because of fibromyalgia.
    I use the wheelchair every time I am outside.
    My back feels like cuttet up and the nerves feels cuttet over with a burning knife, sometimes it is like bone to bone.
    It is so painful. #Fibromyalgia #BackPain #ChronicPain #Wheelchair

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    Functional Neurological Disorder (FND)

    Mobility Issues: I was just reminded about the unpredictability of the disability called functional neurological disorder, which is anything but functional. I thought 💭 I was doing better, but today at my doctors appointment I started experiencing symptoms again and had to be helped to the bathroom. There’s nothing more embarrassing than needing someone to help you on the toilet :( It’s like I know I can walk, but my brain won’t allow me to. There is a disconnect between my brain and body. It’ll feel like bricks are weighing down my legs making it impossible to move. I am really worried and hope this flare won’t last long. I really don’t want to have to call my parents cause I can’t drive myself home. I don’t know what to do. Do any of y’all struggle with mobility or neurological challenges and what do you do to cope? Could really use some compassion right now. Also, any tips/advice would be greatly appreciated! Grateful for this community!

    #Mobilityissues #Wheelchair #NeurologicDisorder #BrainDisorder #FunctionalNeurologicalDisorder #Neurologiclymedisease


    Food for thought

    So I've finally gotten a good gp, they listen and they believe CMT could be a real possibility. I also have EDS and my mobility is really effected. I use a wheelchair outside and a stick inside, now going to a crutch. I just want to know if it's CMT. I have so many symptoms and they are getting worse while many scratch their heads. I've been told by a neurologist is not MS but your reflexes are bad, drop foot, weakness, feeling like water is trickling down my legs and hands, pain and cramps and tremors. I love art but my hands are getting worse. I just needed to vent really. I hope they work it out but I know at 26 my life mobility wise isn't getting better and won't, whether it's CMT & EDS or just EDS... #EDS #CharcotMarieToothDisease #CMT #MOBILITYISSUE #Wheelchair #WheelchairUser #tired