Chronic Fatigue

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Leaning on knowing my Resilience -Personal Example

Yesterday to this morning for me is another example of why I am so thankful every day that I took the University of Pennsylvania’s online course on learning and applying resilience skills, so grateful that I typed up every single word that was taught, and that I recently started this group to share this critical knowledge from the actual people that researched this.

U. of Penn’s definition of Resilience is not only the ability to bounce back from adversity, but also the ability to grow from challenges.

In this course, Dr. Karen Reivich focuses on the psychosocial aspects of resilience. The aspects of resilience that are determined by your psychology, and by your social relationships and interactions.

So, yesterday was one of the rare days within recent years that 1) my fatigue completely took hold of me, and 2) my brain’s sleepiness was to the point that most of my brain would not wake up - all day- and I could see myself not able to function practically at all.

It’s not like this was the first time this ever occurred, and it’s always a possibility, but it is still very hard to watch myself go through this and it is also very hard to wake up from the next morning—the kind of “slap in the face” reminder that oh yeah, I live with a chronic illness that can at times, and I will never know when, will have me almost completely disabled.

So, this morning I woke up with this “setback.” And I look at it like I was brought to a “fork in the road.” And now while yesterday’s adversity was not in my control, this morning, which I always work to look at as a fresh, new day full of good possibilities, it was actually now in my control as to which way I let myself go in my mind at this “fork in the road.”

Of course upon waking up, my mind started on autopilot and took me the wrong direction. Then, the moments that I made myself ready for, the clarity, the practice of never staying in autopilot and moving forward on purpose, with intention, with as much control as I can have and before it gets too hard to get the control back.

I turned my brain’s thinking around, I put my focus on the truths that were on my side- including but not limited to the fact that I Have Bounced Back From Much Worse Than This…;and I turned my mind away from dangerous cognitive distortions and right then and there pretty fast I would not let the negativity bring me downward.

Yesterday, I still had the mindful awareness to apply radical acceptance, non-judging, patience, trust, and just letting be with what is — for this one day -these are part of the 9 Attitudes of Mindfulness that I have begun to write posts about here for you. These all link together with the skills of resilience.

What you will learn too here, amongst other important things is that -it is when we start paying attention to our inner experience, that we rapidly discover that there are certain thoughts and feelings and situations that our mind seems to want to hold on to.

And amongst other what are called “resilience interventions” that I applied were these skills that I committed to in living with intention- what are called “protective factors” that I nurture every single day so they will be there for me when I need them most, when I have to dig deeper from a wider range of resources —

I learned the Critical Skill of Optimism —which gives us the attitude to continue to persist —and I learned how Optimism is the most important factor in resilience and in all of life - well-being and strong relationships;
I commit myself to living for clarified purposes that are bigger than myself, this is not limited to relationships, it is even better for our wellbeing to have an attachment to something larger than yourself which might also be to a mission, to a purpose, to an idea, something that you believe is critically important and worth fighting for (by the way, my personal mission is that all of you are worth fighting for);
I learned what my Personality/Character Strengths are and I learned how to leverage them;
I Developed Mental Agility;
I learned how to create a “buffer of positivity”, and what is called the “Broaden And Build” theory of positive emotions;
I learned how to take control of “thinking traps” by applying “cognitive strategies”…

All of these are what is so effective about the newest branch of psychology that I approach my life by to overcome all that I do overcome— where in addition to everything else, we build strengths supports.

Positivity Psychology, a somewhat newer term, describes a dual approach to mental health- where we build strengths supports, and healthy lifestyles, as well as treating illness and distress.

AlI of this is all what I will keep breaking down into chunks in most of my posts here to this group.
This takes some work first on my part - to keep breaking down the many variables- so bear with me.

#MentalHealth #MajorDepressiveDisorder #ChronicFatigue #ChronicIllness #Disability #ChronicFatigueSyndrome #Depression #Anxiety #MoodDisorders #MotorDisorders #BipolarDepression #BorderlinePersonalityDisorder #AutismSpectrumDisorder #AnorexiaNervosa #EatingDisorders #BipolarDisorder #Selfcare #ADHD #Relationships #FamilyAndFriends #Fibromyalgia #ChronicPain #Cancers #Addiction #Selfharm #SuicidalIdeation #SuicidalThoughts #SuicideAttemptSurvivors #Suicide #ComplexPosttraumaticStressDisorder #PTSD #MyalgicEncephalomyelitis #PostTraumaticStressDisorder #Trauma #RheumatoidArthritis #SocialAnxiety #LearningDisabilities #CrohnsDisease #GeneralizedAnxietyDisorder #PersistentDepressiveDisorder #RecurringMDD #TreatmentresistantDepression #Mindfulness #MDD #TRDSupport #EhlersDanlosSyndrome #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #MultipleSclerosis #LymeDisease #MajorDepression #ClinicalDepression #MotivationMonday #resilience #Grief

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Finally an affirmation I really like!!!!! So many people just think I don’t try but really I do. And I know this. I know how much I have progressed. ❤️ #MentalHealth #Anxiety #ChronicFatigue #Depression #PolycysticOvarySyndrome #Sarcoidosis #ADHD #Migraine

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Building a Future Amidst Life’s Challenges

Hi Mighty Community,

First, I want to start by apologizing for my absence lately. Life has been a whirlwind, and I haven’t been as active as I’d like to be here. But I’ve been working on something close to my heart, and I can’t wait to share it with you all soon.

Over the past few months, I’ve been pouring my energy into designing a website—a project that means the world to me. It’s not just a website; it’s a step toward building a stable future for myself and my two children. This journey hasn’t been easy, but it’s one that I’m determined to take, for their sake and mine.

This community has been a source of strength and inspiration for me. If it weren’t for the stories I’ve read here, the encouragement I’ve received, and the connection I’ve felt with all of you, I don’t know if I would have found the courage to take this leap. Being part of The Mighty has shown me that I’m not alone, and that even in the darkest moments, there’s hope and support to lean on.

Thank you for being here for me, for lifting me up, and for reminding me that even when life feels overwhelming, I can rise above it. I can’t wait to share my project with you soon and hear your thoughts

#ChronicFatigue #KidneyDisease #lupusfighter

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Song Lyrics- Papa Roach -“Leave a Light On - Talk Away The Dark” plus a guide on how to have a real convo about mental health to share with others

Dry bones rattle in a lonely soul
Slipped and fell into a deep black hole
I can tell you're lost, I'm here for you
Wildfires burning you down to stone
Blind eyes, turning from a world so cold
A million miles apart, within my reach
It's not like me to worry
But when I see you fading in the dark
I'll leave a light on for you
Through the long nights, I will be right
There for you if you drift too far
I'll leave a light on for you, you, you
The rain comes following an endless drought
To wash away the remnants of all your doubt
I hope that you'll see me looking out…….”

Please 🙏 go to this link below for a Guide to having a Real Conversation about mental health and pass this on, share it with everyone and anyone that you need to be there for you, and they just don’t know how they can help you.

I have found out myself within the past year with an old friend of mine that she just needed my guidance on how she could be a better and supportive friend through my dark which is only a part, but still a part of who I genuinely am. And she realizes now that to be my friend is to know about all of me. And, she has actually become really great at giving me the support I need without me asking for it too. And, our friendship has grown stronger from the honesty and true empathy.

On their website in their real convo guide they start by saying this that people do not know and they get wrong — “you don’t need special training to have an open, authentic conversation about mental health – and often, just talking about it can be the first important step in understanding where someone is with their mental health.”

How to Start and Continue a Convo About Mental Health | AFSP

At the beginning of the song’s video there is silence with a black screen and these words in white:
“Suicide is a topic that hides in the shadows.
It’s Time we talk away the dark.
We can all play a role in keeping ourselves, and the people in our lives (and community) safe.
Let’s leave a light on for each other by learning how to Talk Away the dark.

The song’s royalties will directly benefit the AFSP (American Foundation for Suicide Prevention) for the rest of it’s existence. Suicide has impacted almost everyone and it’s so important to “Talk Away The Dark” and teach all how to have a conversation that could safe a life.

The lyrics also exist as a shoulder to lean on for those who feel alone in times of mental turmoil.

Frontman Jacoby Shaddix emphasized that mental health is not an individual struggle, but rather a serious issue that "affects all of us."

Finally, the critical message is starting to get out there that We All have a role in preventing suicide and supporting each other’s mental health.

#MightyMusic #Music #musictherapy #Songs #Lyrics #MentalHealth #Depression #Grief #Loneliness #Anxiety #Caregiving #PTSD #ComplexPosttraumaticStressDisorder #Trauma #BipolarDisorder #MajorDepressiveDisorder #ObsessiveCompulsiveDisorder #ADHD #Addiction #AddictionRecovery #ChronicIllness #ChronicPain #BorderlinePersonalityDisorder #BipolarDepression #Disability #CerebralPalsy #RareDisease #Selfharm #SuicidalIdeation #SuicidalThoughts #MoodDisorders #MotorDisorders #ChronicFatigue #ChronicFatigueSyndrome #DepressiveDisorders #PersistentDepressiveDisorder #IfYouFeelHopeless #MightyTogether #AnorexiaNervosa #EatingDisorders #Fibromyalgia #ParkinsonsDisease #Migraine #Cancers #POTS #CheckInWithMe #FamilyAndFriends #Epilepsy #Autism #PanicAttacks #PanicDisorder

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Learning to rest productively

I’m still working through this…but I’m starting to learn how to rest productively…Growing up, I saw rest as an either/or thing…but why shouldn’t it be an “and” thing. #rest #ChronicFatigue #LearningFromMyBody

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Hey hey Wednesday!

These tips are *very* helpful if you're having a panic attack, severe anxiety, or mood issues, severe emotions, etc. The temperature trick has been very helpful for us. Which ones work for you & which would you like to try?
#MentalHealth #BorderlinePersonalityDisorder #Addiction #Anxiety #ChronicFatigue #Schizophrenia #BipolarDisorder #Depression

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#fibroflair #Fibromyalgia #Fibromyalgia #Fibro #Pain #ChronicPain #Fatigue #ChronicFatigue #endlesstorturetreatment

Sorry I've been away a couple weeks, & not kept up with my notifications. I will work on attending to each soon as can. Fibro pain has had me in bed (on couch where I sleep (& where I live) throughout. It's been extreme, and I had my first #suicidal thought a few days ago. First in a couple months or so. See, I forgot that the Tegratol had been prescribed for the broken leg (& ran out of same time that pain got back to overwhelmingly torturous & insurmountable) was helping the fibro pain at the same time. I thought I'd achieved/reached a new place, but found id just ran in a great big circle. Yuk. It really sucks & I not sure how long I can bear it. One day at a time; one harsh moment at a time ! #fibrosucks #toomuchtobear #OnedayAtaTime #onemomentatatime

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Weekend Tip- Romanticize Your Life!

These are things you can to do romanticize your life-(make something seem more appealing or better than it is!, not Hollywood romance). This mental health hack has really helped my depression go away!

There are lots of ideas here that you can do alone, with a pet or a friend to have a better, happier weekend!
#MentalHealth #Anxiety #ChronicFatigue #ADHD #Addiction #BipolarDisorder #BorderlinePersonalityDisorder #Depression

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It's been a while ... #ChronicIllness #ChronicPain #Grief

It's been a while since I've been on.my health has been such a struggle mentally and physically & my mum just passed away unexpectedly 😢 💔while also now trying to help my step dad and little brother who is only 13 and autistic so is struggling alot 💔😢

#ChronicIllness #ChronicPain #ChronicFatigue #MentalHealth #Selfcare #CheckInWithMe #Fibromyalgia #catheterlife #Anxiety #Grief #AutismSpectrumDisorder #Autism

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So thankful to have This chosen family. I want each of you to know that I am Thankful for You. We all have a special connection that is very real.

If You don’t think you are special, then why would I make You this collage and on a holiday🤗

Extra appreciation for everyone that has been joining this group of mine, Yay🙌🙌🙌🙌 We’re growing!

“We may not have it all together, but together we have it all.”

“It’s the friends we meet along the way who help us appreciate the journey.”

Ok, so you all need some of my tools like right now 😊

These 3 powerful words Will
Always help you to come back to only the present moment:
“Be Here Now”

I can’t emphasize enough that The most powerful tool that you Always have for self-regulation of all of your emotions and for pulling some energy out of nowhere when you are fatigued and depleted is Conscious (Deliberate) Breathing.
And it is also about taking control of what's going on in our bodies. Being aware of our breath or our heart rate.

Let’s do some deliberate breathing together:

Think these simple & fun mindful words with me:
As you inhale “Breathe in the good”
As you exhale “Breathe out the bad”
Make it a deep and strong inhale and an even longer exhale

“Just Take Care Of Now.”
This is a short but very calming go-to sentence when you are overwhelmed and or running on empty, so out of gas.

This is my quick & empowering go-to statement as well to remind myself fast that I am not a mind reader and thoughts are not always facts…
“I choose to judge nothing that occurs.”
This in technical terms helps with -
—Nonjudgment of inner experience and
—-Nonreactivity to inner experience (Creating That Space/spaciousness of mind)

We will be talking about this and so much more in here in my group “Resilience and Mindfulness” so if you haven’t joined us yet - click that Join button and keep this group on your radar.

May this help your Thanksgiving day and everyday bring you Ease, Calm, Peace, and Balance.

#MentalHealth #WarmWishes #Mindfulness #MajorDepressiveDisorder #Depression #Anxiety #GeneralizedAnxietyDisorder #ChronicFatigue #ChronicPain #Selfcare #Selfharm #Grief #SuicidalIdeation #SuicidalThoughts #SuicideAttemptSurvivors #Suicide #BorderlinePersonalityDisorder #BipolarDepression #MoodDisorders #BipolarDisorder #ComplexPosttraumaticStressDisorder #PTSD #Trauma #Agoraphobia #Cancers #ObsessiveCompulsiveDisorder #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #Headache #Migraine #ADHD #Addiction #AnorexiaNervosa #EatingDisorders #Autism #RheumatoidArthritis #Disability #ChronicIllness #RareDisease #IfYouFeelHopeless #Cancer #EhlersDanlosSyndrome #dissociativedisorders #MightyTogether #DistractMe #CheckInWithMe #SocialAnxiety #Relationships

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