Chronic Fatigue

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I’m new here!

Hi, my name is isamae13. I have been dealing with chronic illness since I got mono in 2014. I have had three active mono infections over the last three years. Several surgeries and deal with chronic pain and chronic fatigue. I have been making improvements in the last 3 years since COVID helped me to slow down but also as I entered the professional world and got married I am realizing that my bad days are harder when I do have them. I’m needing extra support of people who get it.

#MightyTogether #ADHD #Fibromyalgia #chronicfatigue #pots #Migraine

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Is it fibro or perimenopause?

It’s so hard living like this. Any one also dealing with the guilt? I have been on LTD since 2022 when I was diagnosed and while I have a bit more capacity to function now than I did back then, I can tell you it’s not been one bit easy.

When you talk to others, they say they are dealing with a variation of what you’re going through and all you can do to prevent the conversation from becoming a pissing contest on who has it the worse, is to zip it.

There are so many similarities between PRM and Fibro. Anyone found/know any distinguishing symptoms yet?

Stay strong everyone. I can’t say everything will be alright but I can say enjoy the times of relief and remember God’s love for you.

#ChronicFatigue #

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General Update + New Diagnosis

So we got a diagnosis for Fibromyalgia from the Rheumatologist. And just recently I did get an official diagnosis for POTS. We have upcoming appointments with a dietician and a geneticist to discuss suspected type 3 EDS(I have the criteria and we were told this from a professional). Fibromyalgia is genetic and turns out my aunt had it. It lies dormant in your system until something traumatic happens and it triggers it. Hers was a car accident and we suspect mine might have been the HPV vaccine, we aren’t sure. Funny enough all this is rare to happen someone of my age, I’m not even an adult yet and here we are.

I don’t think of this as good or bad news but we are making progress and I view that in a positive light.

I am on a strict elimination diet because meds are our last resort especially with my track record of all of the rare side effects. I had to cut my hair because it was falling out because of Metoprolol, but on the positive side my hair is healthier shorter (it’s curly and was in need of a trim).

I have been eating rice, chicken, broccoli, cauliflower, gee(butter alternative), olive oil, 2 teaspoons of salt daily, and just water (80-100 oz daily). We also slowly reintroduced avocado and turkey which my body was fine with.

It is a slow and very annoying process because all I want right now is chocolate, bread, and ice cream (my kryptonite). The diet is working and I have done nothing but improve as of late. Although we tried a bunch of new things in one day and we regretted it shortly after because I wasn’t able to walk because of how dizzy I was, and I had a on and off migraine for 3 days. I had 1 chunk of pineapple, 2 strawberries, Liquid IV drink mix, and some supplements and my body did not like that. So we are taking it even slower now.

We know I can’t have gluten right now, and maybe sugar but I’m in denial about that right now. I have always been sensitive to sugar and caffeine, but I had a strawberry and I was okay so maybe there’s a limit on how much I can have? Although my blood work did say I have low blood sugar so we don’t know.

My metabolism has skyrocketed though! I eat that meal above 4-5 times a day now (and I’m still hungry), and I’m still losing weight (which isn’t necessarily good at 5’4 and 113 lbs). I have actually lost over 10 lbs of muscle since October so we are working on getting me active again.

Overall this is definitely a process and also an unintentional David’s fast lol. Life is looking up a bit finally!🩵

#Fibromyalgia #MightyTogether #ChronicFatigue #POTS #ChronicFatigueSyndrome #ChronicDailyHeadache #ChronicPain #Migraine #EhlersDanlosSyndrome #MentalHealth #Depression

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I'm new here!

Hi, my name is Bbuzzb. I'm here because I have had fibromyalgia for 30 years, depression most of my life and Long Covid for 4 years. Since suffering from long covid I have also experienced a form of grief for my previous life. About four and a half years ago I decided to go vegan and the effect it had on me was amazing. I realised that I really had been suffering with fibromyalgia for all those years (I had doubted myself sometimes). I had so much energy. Then I got long Covid and am back to chronic fatigue etc again.

#MightyTogether #Fibromyalgia #Depression #PTSD

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Dear Chronic illness warrior, it’s okay if…

•You can’t get out of bed today.
•Your needs change.
•You take longer than others.
•You cancel or change plans.
•You can’t hide your pain today.
•You use a mobility aid.
#ChronicIllness #ChronicPain #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #Arthritis #Fibromyalgia #Sarcoidosis

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Daily Affirmations for Chronically ill people

Affirm: I accept that I’m enough as I am.
My illness doesn’t define me. I’m a warrior.
My mind is stronger than my pain.
I treat myself with little gifts. 🎁
I treat my body with respect and compassion.
Every day brings new opportunities for healing. ❤️‍🩹
I allow myself to rest when I need it.
#ChronicIllness #ChronicPain #ChronicFatigue #dailyaffirmation

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Hang in there

A lot of times we don’t see all the things we do everyday. We do things for others so much more than we do for ourselves. And sometimes those things that we do for our families are in turn helping us. Maybe we help out our parents so that we’re not worrying or stressing over the fact that they won’t or can’t do those things for themselves. A lot of times we have to choose between this or that so we can get through our day. And sometimes we just want to disappear from the world so that we can cope with our own troubles. I get it. Not everyone will understand what we are going through but we hang in there. Somehow we hang in there and get through our day. And even on the days we can’t seem to get out of bed. We breath…sometimes breathing is our accomplishment. So to everyone that read this far in my vent…hand in there! Breath! And one last thing….try to love yourself…with all your problems…all your pains and illnesses…all your craziness! #ChronicFatigue #ChronicIllness #Migraine #Fibromyalgia #SpinalStenosis #MentalHealth #IrritableBowelSyndromeIBS #Arthritis #Caregiving #ohsomuchmore

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My soul Tucha 🐈‍⬛💉🩸💊🧬🩺🩻

Hello dear Mighties! I haven't posted for a while..many things have happened, but now I'm suffering, my love, my soul, my companion, my cat, my Tuchenka has suddenly stopped eating, and now she's been in hospital for 5 days .. it's most likely she's got cancer, lymphoma🥺...but it's not all, they found a small bullet😖It's was a shock.. It's very old, she must had got it before I took her to my place(more than 10 years ago) ,it doesn't hurt now etc..but the fact itself is awful ((( my poor cat(( my poor Tuchka💔
Now we are waiting for the results of the biopsy...she's in pain (not indurable due to analgetics) and she's been fed through stoma...I don't know what to do😣 I don't want to prolong her suffering and at the same time there's a chance to help her and she's still lively(if I could say so), doctors say she's curious and sometimes tries to get out of the box(or cage , the place ,where she is held at hospital, I don't know how to call it properly ) ❤️‍🩹#Depression #MightyPets #ChronicFatigue #ChronicIllness #MultipleSclerosis

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