Chronic Fatigue

Has anyone else done occupational therapy for hEDS, chronic fatigue, or migraines? How did it go? What kinds of things did you do? I got a referral from my sports medicine doc and I'm feeling hopeful about it. After a scary episode while out and about the other day (which I think might have been migraine prodrome symptoms), I really need that hope.

#EhlersDanlosSyndrome #Migraine #ChronicFatigue

I had a total crap Sunday. Slept from 6 pm until 7 am this morning. Only woke up bc the wife made breakfast before she went to work. I hate that she does everything and I get one day a week where I feel like I have contributed something around the house/yard. I am extremely tired and frustrated. I hope I can work my 3 days this week. #RelapsingPolychondritis #ChronicFatigue #PsoriaticArthritis #Psoriasis #PeripheralNeuropathy

Due to my chronic illness and disability i had to drop out of university and i moved back to my parents. All the people i used to know moved away or i lost touch with them. I don’t have any friends anymore but it’s also quite difficult to meet new ones. I have really bad fatigue and can’t leave the house much. Any ideas and suggestions? How did you meet people ? #ChronicFatigue #FND

I feel hopeless. Sometimes i feel so alone, i get desperate. I feel like i'm always feeling bad and I think that the people around me are tired of me or they pretend that everything is fine. But i'm collapsing inside. I've made so many changes in my life lately, and if I think about that I'm happy and satisfied, but then there are moments when I still sink into a black hole and i feel so sad. Then I think that people of my age shouldn't have these thoughts, they should enjoy life, but I can't and i'm wasting these years without being able to enjoy the good things. I am surrounded by beautiful things, and I will graduate next month, and I have dedicated my whole life to this goal. But now it's like I don't care that much anymore. This thing scares me. I know I have to be less hard on myself, but I feel like a disappointment #EhlersDanlosSyndrome #EDS #Loneliness #MentalHealth #ChronicIllness #ChronicFatigue #ChronicPain #Trauma #DistractMe #CheckInWithMe #Depression #Anxiety #Grief #SocialAnxiety #MightyTogether

You may appear well to wandering eyes,Yet fibromyalgia wears its mask in silent disguise. Not all pain is visible. Be kind — always.

#Fibromyalgia #ChronicFatigue #ChronicPain #InvisibleIllness #bekindalways

To most people—those outside this community, those who don’t understand—my three tasks today sound ridiculous. Simple. Easy. But to they were mountains.Brain fog choked me. My body wouldn’t settle—restless, aching, screaming no. I couldn’t think straight, couldn’t move without fighting myself. Then work stopped. A storm rolled in—loud, messy, real rain, not some gentle drizzle. When it passed, the fog lifted just enough. I grabbed that moment, tackled my tasks, and got them done before the haze crashed back.Three things. Small to some, massive to me. I did them. And for that, I’m #thankful #gratitude.If you get this fight, I see you. We keep pushing. 🙏

I want to crawl out of my body and find another. One that likes me. I want to feel like I am me. I want a mind that isn't a stone with cracks barley large enough for a thought to squeeze through. I want to be free.

Had to work anyway. It is what it is folks. Push through and kick @$$ anyway! #RelapsingPolychondritis #ChronicFatigue #ChronicPain