Uveitis

General health appointments: 5

Specialist appointments: 12 (rhuemotology, ophthalmology, podiatry, endocrinology)

Allergy: 20 appointments, 76 allergy shots

Infusion: 13 appointments, 32.5 hours sitting in the infusion center

Imaging/testing (not labs): 2 MRIs, 2 1-week long heart monitors, 1 stress test, 1 tilt table test, 1 heart ultrasound

Mobility aids: 2 mobility aids added to my daily routine

- - - - -

Pre syncope episodes: 3

Vertigo episodes: 5

Anxiety Attacks: 2

I’m proud of myself for speaking up to my doctors about a symptom I’ve experienced my whole life but no one has ever looked into. I’m proud of all the ground techniques I’ve learned this year. I’m happy I found 2 apps that help me with mental health and health record keeping. I’m also very proud of my mom who started her chronic health journey with Parkinson’s this year. She is going to speech classes and sharing information with us (family). Her new diagnosis is frustrating and exhausting but she’s learning and still doing things she loves. 2026, please be gentle to us.

#Uveitis #Glaucoma #ParkinsonsDisease #MentalHealth #Anxiety #ChronicPain #Presyncope #NeurocardiogenicSyncope #AutoimmuneDiseases

Hi, my name is Warrioress1109. I'm here because I'd like to know anyone can offer advice on how to get an appointment with a physician specializing in MS. I've not been diagnosed with MS, nor has it ever been suggested to. I've been suffering with a multitude of increasingly debilitating illnesses and symptoms for over 30 years now. Seen by a long list of specialists. Tests, procedures, medications...targeted to a specific complaint. None of the neurology, rheumatology or ortho specialists have/are taking my comprehensive medical history into account. Which I believe is why existing and new symptoms have gotten worse over the years. In doing research on my own, I found that all of my symptoms & ilnesses have been seen in persons diagnosed with MS - in all or in part. I'd like to find out or rule out MS as a cause.

#MightyTogether #Anxiety #Depression #Fibromyalgia #EatingDisorder #Osteoporosis #Uveitis #dry eye #RaynaudsPhenomenon #BackPain #CarpalTunnelSyndrome #Vertigo #MixedConnectiveTissueDiseaseMCTD

I was told I suck, I’m lazy, and oh yea the gluten free food I can eat is terrible. You might be asking, “Why would someone say this?”. Because I had to cancel dinner plans due to a flareup. I guess I need to date a few frogs before I meet Prince Charming but man, can the next frog be a little nicer?

I tend to open up about my health early because I’m always nervous I will have a flareup, I’ll need to cancel, and they won’t understand. Welp even if you tell someone, they still might not listen/understand and resort to calling you names.

Anyone have similar experiences? I feel like I need to write a book at this point, “Dating stories: Chronic Illness Edition”.
#Arthritis #ChronicPain #Uveitis #Glaucoma #HypothyroidismUnderactiveThyroidDisease

Hi!. I'm here because

#MightyTogether #Arthritis #Uveitis #OCD #ADHD

Hi! I'm new to the group, but not new to auto immune disease. I'm 62 and have been battling since I was 46 years old. I deal with psoriatic arthritis and lupus and all the symptoms that come with both, some old ones, some new. Today, I am dealing with uveitis and bronchitis. Would love to talk with folks who deal with both psoriatic arthritis and lupus.

Hey, nice to see an ankspond community- we're a special bag of bugs alright, lol.
I've had AS since childhood but was diagnosed with hysteria. eventually I put them straight. have had diagnosis since.my 2 girls have early onset AS.
I have complications with iritis, uveitis, vitreitis, is there anyone else dealing with losing their sight? I am struggling. the health system here is biased, broken&beyond a joke. all eye pressure drops have preservative. I'm supposed to take 17 topical applications a day of various atm. waiting for surgery for pressure.I'm allergic to all the pressure med preservatives. I have developed glaucoma in rt eye, which is also a mess from wrong lense in 2009 surgery. my eyes struggle from regular flares & meds.sore, dry, irritated. looking for natural relief tips? and anyone who also has eye AS as complication?would love to have a mutual b*tching sesh lol!

Hi, my name is Chala1105. I’m new to The Mighty and look forward to sharing my story.

I'm 34, married and mama to 2 daughters. I was diagnosed with Rheumatoid Arthritis 2 years ago and am on my 3rd and 4th medications for it. I have since been diagnosed with fibromyalgia, microscopic colitis, and chronic uveitis. I have had anxiety/depression most of my life and having these conditions exacerbates my mental health issues. I look forward to making connections within this community.

#MightyTogether

#Anxiety

#Depression

#Migraine

#Fibromyalgia

#RheumatoidArthritis

I have all sorts of neuropathy, some from back/disc stuff and some that is something else ..? Rheumatology tested for auto immune stuff when uveitis was discovered and nothing definitive. Need to see neuro. T is just so hard to have a lack of diagnosis/help for any of it. And they have been saying it sounds like Fibro no matter what, but primary care doctor wants to keep watch for lupus or MS due to variant symptoms. Ugh just so frustrated and scared all the time because there is constant pain and sporadic neuropathy, but this new facial tingling has me extra freaked. Thanks for letting me get that all out. #FibromyalgiaDiagnosis #Fibromyaliga #Neuropathy

#CrohnsDisease

I have had iritis for the last three years, now developing cataracts and an area of retinal thinning that has to be watched. I have had to live in near total darkness, with the wrap around dark sunglasses on day and night, avoid going outside and avoid using electronic devices. I have been trying to find a way to use a computer without being limited to 15 minutes of reading---image type things bother me less. I have dimmed my screen as much as I can, and I have removed the blue light. Thank you....