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Ranting a little # chronic illness #BrainTumor #Microadenoma #rant

I'm struggling a lot with my neuro health right now. I was diagnosed in January with a 5mm pituitary microadenoma. For those struggling to imagine this, take a kidney bean, and place the top of a pencil eraser on it. That's the size of my tiny, noncancerous tumor. What nobody seems to understand is that, no matter how un-cancerous it is, the dang thing is still there. I have a mass in my brain. It doesn't help me to hear "Oh it could be worse, at least its not [insert cancer type name here.]" I want people in my life besides my boyfriend to acknowledge that I do in fact have a tumor, and that its okay to be scared of it. I just wish I could tell them without them interrupting me. Oh well.
Thanks for reading.

2 reactions
Post

Ranting a little # chronic illness #BrainTumor #Microadenoma #rant

I'm struggling a lot with my neuro health right now. I was diagnosed in January with a 5mm pituitary microadenoma. For those struggling to imagine this, take a kidney bean, and place the top of a pencil eraser on it. That's the size of my tiny, noncancerous tumor. What nobody seems to understand is that, no matter how un-cancerous it is, the dang thing is still there. I have a mass in my brain. It doesn't help me to hear "Oh it could be worse, at least its not [insert cancer type name here.]" I want people in my life besides my boyfriend to acknowledge that I do in fact have a tumor, and that its okay to be scared of it. I just wish I could tell them without them interrupting me. Oh well.
Thanks for reading.

2 reactions
Post

I'm new here!

Hi, my name is FlowerGirl19. I'm here because
I’m a single parent with 20-something children with disabilities. Looking for others who are on this journey of helping their adult children lead meaningful and productive lives. Are you here, too?
#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #PTSD #BrainTumor #CognitiveDisorders

3 reactions 1 comment
Post

I'm new here!

Hi, my name is FlowerGirl19. I'm here because
I’m a single parent with 20-something children with disabilities. Looking for others who are on this journey of helping their adult children lead meaningful and productive lives. Are you here, too?
#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #PTSD #BrainTumor #CognitiveDisorders

3 reactions 1 comment
Post

Scared to death!

I just found out yesterday that I have a brain tumor.. I am scared. Waiting now for MRI and more CT scans. Has anybody had any experience with this? I am trying to NOT panic..but it's hard.

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‘Just’

Well, I finally gave in and had a brain MRI. Took a lot because I’m claustrophobic and I knew the stress of having it done would throw me into another flare. Numbness, issues speaking, dizziness, weakness, etc. made my dr think MS or something neurological. Results came back today and the drs response matched my husbands.
‘It’s JUST Lupus
What an impact that statement had on me. Actually made me breakdown and cry. I’m thankful it wasn’t MS, a brain tumor, Parkinson’s, or anything like that but at the same time I’m feeling like those around me have become so used to the Lupus diagnosis that they’ve forgotten how much it impacts life.
Maybe I’ve forgotten too.
It’s not JUST Lupus.

13 reactions 4 comments
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Throat tightness?

Has anyone on here with MS struggled with sporadic throat tightness and spasms? After getting my covid vaccine, I woke up in the middle of the night feeling as though I couldn’t breathe/swallow correctly. In a panic I rushed to the ER, however was treated like I was crazy and just doped up. It’s true that I suffer from anxiety, however NEVER like this. Months later, I still randomly get these attacks, and am scheduled to see my dr soon. I try to use relaxation methods to help, as well as take Klonopin. This has never happened until that instance. I get random muscle spasms in my legs. Is it possible this is a new MS symptom?

I have relapsing remmiting MS, but started my journey with Tumafactive MS which presented as a brain tumor and left me with lasting disability 3 years later.

Thoughts on the throat tightness???

6 reactions 2 comments
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What are we celebrating?! (MARCH)

national developmental disabilities month
Women’s history
National MS Education and Awareness Month
March 1-31: Alport Awareness Month March 1-31: Brain Injury Awareness Month
March 1-31: Brain Tumor Awareness Month (UK only)
March 1-31: Deep-Vein Thrombosis Awareness Month
March 1-31: Malignant Hyperthermia Awareness Month
March 1-31: Multiple Sclerosis Awareness Month
March 1-31: Myeloma Action Month
March 1-31: National Bleeding Disorders Awareness Month
March 1-31: National Cheerleading Safety Month
March 1-31: National Colorectal Cancers Awareness Month
March 1-31: National Endometriosis Awareness Month
March 1-31: National Kidney Month
March 1-31: National Nutrition Month
March 1-31: Problem Gambling Awareness Month
March 1-31: Save Your Vision Month
March 1-31: Trisomy Awareness Month
March 1-31: Workplace Eye Wellness Month
March 1-6: National Aplastic Anemia & MDS Awareness Week
March 2: World Teen Mental Wellness Day
March 3: World Birth Defects Day
March 3: World Hearing Day
March 4: HPV Awareness Day
March 4: World Obesity Day
March 5: Dissociative Identity Disorder Awareness Day
March 7: National Hospitalist Day
March 10: National Women and Girls HIV/AIDS Awareness Day
March 10-16: Patient Safety Awareness Week
March 10-16: Pulmonary Rehabilitation Week
March 10-16: Sleep Awareness Week
March 11-17: Brain Awareness Week
March 14: World Kidney Day
March 15: World Sleep Day
March 17-23: National Poison Prevention Week
March 18-24: National Drug and Alcohol Facts Week
March 20: National Native American HIV/AIDS Awareness Day
March 20: World Oral Health Day
March 21: World Down Syndrome Day
March 24: World Tuberculosis Day
March 26: Epilepsy Awareness – Purple Day
March 26: American Diabetes Alert Day
March 30: National Doctors’ Day
March 30: World Bipolar Day
March 17: Saint Patrick’s Day
March: autoimmune diseases awareness month

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12 reactions 4 comments
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My Lonely Brain Lipoma

Hi, I'm looking for others who have this rare type of benign brain tumour. What are some of your symptoms and what has been your journey in getting help? I have a lipoma in the middle of my brain and have headaches, limb weakness and some other issues but can't find anyone to relate to and it's lonely being part of the 0.1% thank you 🤕 #BrainTumor #braintumors #SeizureDisorder #neurology

(edited)
Post

My Lonely Brain Lipoma

Hi, I'm looking for others who have this rare type of benign brain tumour. What are some of your symptoms and what has been your journey in getting help? I have a lipoma in the middle of my brain and have headaches, limb weakness and some other issues but can't find anyone to relate to and it's lonely being part of the 0.1% thank you 🤕 #BrainTumor #braintumors #SeizureDisorder #neurology

(edited)