Complex Regional Pain Syndrome

Stimming can be funny sometimes. I do a lot of verbal stimming. So a few times a day I'll sing the corn song from tiktok "It's corn! A big lump with knobs. It has the juice! (It has the juice) I can't imagine a more beautiful thing. It's corn! I can tell you all about it! I mean, look at this thing! When I tried it with butter, everything changed!" My spouse always laughs and now often joins me for this one. I'll also randomly say "woohoo!" (I play a lot of Mario Kart) And I hum one of the Pokémon route songs from the older games (can't remember which) What is one way you notice yourself stimming or what are some funny stims you have?
#neurodivergent #neurodiverse #Neurodiversity #NeurodevelopmentalDisorders #IntellectualDisability #IntellectualDisabilities #LearningDisability #LearningDisabilities #Disability #ADHD #audhd #Autism #AutismSpectrumDisorder #AspergersSyndrome #Aspergers #SensoryProcessingDisorder #Anxiety #Depression #ObsessiveCompulsiveDisorder #MentalHealth #Spoonie #MightyTogether #CheckInWithMe #DistractMe #Dyslexia #Dyscalculia #Dysgraphia #Dyspraxia #TouretteSyndrome #Hyperlexia #RejectionSensitiveDysphoria #RSD

Stimming can be funny sometimes. I do a lot of verbal stimming. So a few times a day I'll sing the corn song from tiktok "It's corn! A big lump with knobs. It has the juice! (It has the juice) I can't imagine a more beautiful thing. It's corn! I can tell you all about it! I mean, look at this thing! When I tried it with butter, everything changed!" My spouse always laughs and now often joins me for this one. I'll also randomly say "woohoo!" (I play a lot of Mario Kart) And I hum one of the Pokémon route songs from the older games (can't remember which) What is one way you notice yourself stimming or what are some funny stims you have?
#neurodivergent #neurodiverse #Neurodiversity #NeurodevelopmentalDisorders #IntellectualDisability #IntellectualDisabilities #LearningDisability #LearningDisabilities #Disability #ADHD #audhd #Autism #AutismSpectrumDisorder #AspergersSyndrome #Aspergers #SensoryProcessingDisorder #Anxiety #Depression #ObsessiveCompulsiveDisorder #MentalHealth #Spoonie #MightyTogether #CheckInWithMe #DistractMe #Dyslexia #Dyscalculia #Dysgraphia #Dyspraxia #TouretteSyndrome #Hyperlexia #RejectionSensitiveDysphoria #RSD

I have so much shit on my plate right now, I'm so overwhelmed!!! Between needing to pack, try and get money for storage, figure out how to safely make it down 4 flights of steps and back up to do laundry while barely able to stand up, get the trash out, all my appointments from home health to Drs ... I'm so exhausted! I can't do it all myself. Didn't mention I have 21 days to find a place and move out...

I have no help. The home health people don't help with anything, just vitals, nagging, notes, and exercise... I just think, "Okay b*tch my blood work is normal I'm not dehydrated, take the water crap and shove it. " Hell, between them and my family they just smile and nod when I say "i haven't been eating much cause I don't feel safe cooking, can't sit or stand long enough."

My family, "Be grateful you have family to help..." then when I need help, "Can you offer maintenance a few bucks to do it for you?" wtf?

I want out. I don't want to be in pain anymore.

( no religious replies, please.)

#overwhelmed #Stroke #POTS #CRPS

I have so much shit on my plate right now, I'm so overwhelmed!!! Between needing to pack, try and get money for storage, figure out how to safely make it down 4 flights of steps and back up to do laundry while barely able to stand up, get the trash out, all my appointments from home health to Drs ... I'm so exhausted! I can't do it all myself. Didn't mention I have 21 days to find a place and move out...

I have no help. The home health people don't help with anything, just vitals, nagging, notes, and exercise... I just think, "Okay b*tch my blood work is normal I'm not dehydrated, take the water crap and shove it. " Hell, between them and my family they just smile and nod when I say "i haven't been eating much cause I don't feel safe cooking, can't sit or stand long enough."

My family, "Be grateful you have family to help..." then when I need help, "Can you offer maintenance a few bucks to do it for you?" wtf?

I want out. I don't want to be in pain anymore.

( no religious replies, please.)

#overwhelmed #Stroke #POTS #CRPS

It's sad that we have to worry about being gaslighted by our doctors and the people who are supposed to care.

I was worried after my tilt table test because how the nurse described it, basically it's the cardiologist personal interpretation when reading it. Not that I wanted a POTS diagnosis but any diagnosis is validation of what I have been experiencing.

Today I was validated, all the falls and light-headedness, dizziness make sense now. They suspected it and tossed the diagnosis around. - I have POTS.

It's a weight off my shoulders in I know what's going on but in another way it's a darkness I'm walking in to. I have so many questions.What does my future life look like with POTS and CRPS?

Will I lose my independence for good? No more long walks alone because I could pass out? Am I wheelchair bound because I could fall and seriously injure myself?

#POTS #CRPS #Stroke

It's sad that we have to worry about being gaslighted by our doctors and the people who are supposed to care.

I was worried after my tilt table test because how the nurse described it, basically it's the cardiologist personal interpretation when reading it. Not that I wanted a POTS diagnosis but any diagnosis is validation of what I have been experiencing.

Today I was validated, all the falls and light-headedness, dizziness make sense now. They suspected it and tossed the diagnosis around. - I have POTS.

It's a weight off my shoulders in I know what's going on but in another way it's a darkness I'm walking in to. I have so many questions.What does my future life look like with POTS and CRPS?

Will I lose my independence for good? No more long walks alone because I could pass out? Am I wheelchair bound because I could fall and seriously injure myself?

#POTS #CRPS #Stroke

What do you do when you're tired of being poked and examined? I just want to cancel all appointments and say enough. The amount of appointments and tests coming up is overwhelming.

I'm worried they'll gaslight me with this, "well tests are normal...are you seeing a therapist?"

Okay dude my tests may be normal but my depression isn't causing my blood pressure to drop or the gastro bleeding...

I need a break from life.

The little happiness I've had in my 38 years is not even a half percent worth the physical, emotional pain and heartache I've experienced and it just keeps piling up. This isn't a gift, it's hell.

( please no religious replies. Thanks.)

#CRPS #POTS #Stroke #MDD #Gaslightling #exhaustion #givingup

What do you do when you're tired of being poked and examined? I just want to cancel all appointments and say enough. The amount of appointments and tests coming up is overwhelming.

I'm worried they'll gaslight me with this, "well tests are normal...are you seeing a therapist?"

Okay dude my tests may be normal but my depression isn't causing my blood pressure to drop or the gastro bleeding...

I need a break from life.

The little happiness I've had in my 38 years is not even a half percent worth the physical, emotional pain and heartache I've experienced and it just keeps piling up. This isn't a gift, it's hell.

( please no religious replies. Thanks.)

#CRPS #POTS #Stroke #MDD #Gaslightling #exhaustion #givingup