Complex Regional Pain Syndrome

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Feeling Defeated by #ComplexRegionalPainSyndrome Diagnosis

I've been laughed at, labeled untreated, been refused treatment, told I'm crazy....before CRPS. Now I'm twice the untreatable patient. Two of the most deadly diagnosis', both by suicide. Scared doesn't begin to say how I feel.

I am so tired of hearing how hard it is for everyone else to be in my life. It's easier to label me as the problem EVERY time, instead of taking this wicked comorbid diagnosis jacket I wear as more than just words on a piece of paper. Stop judging and start helping. Stop being part of the problem and be part of the solution.

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My whole life is evidence of this and trust me, I have not had any easiness in life.

My mom asked me 10yrs ago if I felt peace ever since I had had constant pain for 7 years and severe pain my whole life.

I was able to answer with a resounding YES!

Thanks to gospel daily studies, they were the Only thing that helped me control my pain and the anger that comes from being in pain.
When all meds and doctors failed, a but if scripture or hours long study sessions both made my pain into something I could ignore on a big level.

My whole life has benefited so so much all thanks to time set aside for me and our merciful father in heaven to catch up with each other.

I am so indebted to my parents raising me as a Latter-day Saint. ❤️❤️❤️✨️✨️✨️

Such a priceless gift.

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #CheerMeOn #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Grief #Hypersomnia #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #PosturalOrthostaticTachycardiaSyndrome #PTSD #plantarfasciitis #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #RareDisease #RheumatoidArthritis #IfYouFeelHopeless #Upallnight #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Eczema #HighBloodPressure #Headache

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💪🏼💪🏼Too true!

I use to resent having to keep going and yes while life can be extremely hard especially being bedbound, I have been able to use my knowledge and experience to help many others. Finding optimism in every seemingly bad thing can be a challenge but we don't get better with no practice 😉

Things may seem like the darkest depths. But no amount of darkness can put out a small candle.

A small flicker of hope can sustain. I am living proof of that.

29 years of pain, 17 of constant pain so severe death would seem a blessing if I hadn't experience first hand the dearth and sadness suicide leaves behind.

Death may seem a blessing but we only get this one life and time doesn't have to be wasted as we wait for answers to our health or treatments or a cure. Or, in my case, a good knowledgeable doctor who wants the best for their patients.
It took me hundreds of doctors to find these three meant for me at last and I know a time will come when they will retire and I must find another good one.

Life has more sunshine to warm you than you can ever know until you live it. I have found more joy in the last year than I have thought possible. A long time coming but all the sweeter. Life is a GIFT.

No matter what, we go on!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #Headache #Insomnia #Lymphedema #JuvenileRheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #MentalHealth #MightyPets #MightyTogether #MemoryLoss #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #Psychosis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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