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Dear Doctors #deardoctors #deardoctor #Gaslighting #Ableism #Disabilities #RareDisease #AutoimmuneDisease #ChronicPain #ChronicIllnesses

Reposted by: @chronically_sick_
•••
I understand that doctors don’t know every answer. I don’t expect them to.

What I DO expect, is to be believed. To be validated, and supported.

This shouldn’t be too much to ask. All I am asking is for you to do your JOB.

This is what you signed up for. You are failing your patients if you are dismissing, or gaslighting them.

If the tests come back normal, do more. Refer them to someone else. If you don’t have the answer, keep referring them to other specialists.

If and when the results come back normal, do not blame it on anxiety. Do not say it is “all in their head.”

Why would we be asking for your help if we didn’t really need it?

Medical trauma is real. You have more of an impact on someone’s future than you can ever imagine.

I wish someone had taken the time to tell me that they believed me. That they were sorry I was going through this.

I wish that I didn’t have to defend myself every single time I see a doctor. I wish that I didn’t have panic attacks before every doctors appointment.

This all could have been avoided if you had just done your job.

Love,

A traumatized patient. #continuityofcare #patientbillofrights

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#deardoctor film sparks movement in Down syndrome community

We often hear of the heartbreaking ways in which many families receive their child's Down syndrome diagnosis. Earlier this year, Nothing Down co-founders, Shannon Daughtry and Julie Willson, invited ten families to share their stories for a documentary on the overwhelmingly negative way in which medical professionals tend to deliver a #DownSyndrome diagnosis. This video has sparked a huge movement in the Down syndrome community! Thousands of parents are sharing their own personal #DearDoctor stories along with sharing this video. It’s gone viral in less than 24 hours which is so exciting for our community! And it’s even more exciting for the difference this could make for future parents receiving their child’s diagnosis.  It is our goal to change the narrative and to work with the medical community to ensure that EVERY parent is delivered their child's diagnosis with compassion, up-to-date education, proper resources, and #hope. We believe that this film has the strong potential to ignite a much needed change for future parents.
We want you to #JoinTheMovement! Please take part by posting this video along with your own #DearDoctor moment, sharing with the medical community how your diagnosis was received and offering suggestion on how to make it better.
Thank you to the families involved for sharing your stories with the world. We are so grateful to each and every one of you. #BeTheChange #jointhemovement #ThisIsDownSyndrome #NothingDown #unexpecteddiagnosis https://www.facebook.com/437232779819469/posts/939132216296187/

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