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#Fibromyalgia #ChronicFatigue #ChronicIllnesses #Anxiety #Depression #TMS -METHOD

Hi guys! So last friday I had no fever, but yesterday the fever came back.
😔 Today it's 37,0°C, for us with fibro it can equal 37,5. I AM SO BORED, TIRED AND HAVE HAD ENOUGH OF THIS FLU! 😤😤😤 Don't worry I am taking good care of myself, drinking plenty of water and tea, eating some food though the appitet is

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Am I 'rushing' for an answer?

I've been searching answers a lot lately because I'm tired of those brutal mood swings and those thoughts that push me to self harm daily. And I came across many stories here and on other socials about BPD and those feelings or thoughts described seems so familiar that I'm starting to think it could be a possibilty but of course I'm asking myself if it's an actual possible answer for all those emotions and questions or am I just imagining it because it matches so much and I'm desperate for an explanation?

#BPD #Depression #ChronicIllnesses #Selfharm

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You Are Not Alone #ChronicIllnesses #Burnout

I have just read a post from May this year and ironically have just won the war with my doctor over their lack of treatment and duty of care. The same thing had happened to this lady, albeit across the pond in the USA. I also have been gaslit, ignored, told me it was meds making sleep for up to 36 hoots every week for the past five years. I’ve gone from working with children in a school setting and had done so for twenty years. To now living in my bedroom as more comfortable for me with my chronic back pain.

I have come to the stage of writing pre legal action against the practice and complained to the Quality Care team as this should not be happening to anyone who is suffering in this way. To read this great post about the sane treatment in America fills me with dread, how long shall we sing this song. Help please doctors, that’s what you became a doctor for, or is because my disability is unseen you do not see or hear me anymore. I have at last been referred to a ME:Chronic Fatigue Syndrik clinic, be my doctor but the waiting list is horrendous. Mind you isn’t that proof there are so many people begging for help out there. It’s very scary and should not be happening. I’m just glad I opened up this post and realised I am not alone.

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#Depression #Sadness #Fibromyalgia #HypermobilitySyndrome #EhlersDanlosSyndrome #ChronicIllnesses #Fatigue

Overwhelming sadness today and I don’t know why… no one listens or cares, because they’ve got their own situations going on. Pain is up, mood is low and it’s hasn’t even snowed yet. Anxiety way up. Arghhhh if you say anything and arghhh if you don’t.


Tiring but Great Day

#MentalHealth #Bipolar #ChronicPain #ChronicIllnesses #Fibro #dailyreflections #MightyMinute
Ate salmon sauteed in butter n garlic, drank lots of fluids, had several fruits too!
My caregiver and I got lots done n mine was with heavy heart cuz think I am losing my other caregiver Thursday.
I have lots of appts in the month of August n I don't drive!UGH!

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Sunday Chores n Relax

#MightyMinute #dailyreflections #MH #Bipolar #Fibro #ChronicPain #ChronicIllnesses #
Caught up on my calendars in phone and on kitchen wall, ,cleaned out my fridge,ate n drank as I wanted, listened to sports,
Very productive day ☺️


Awesome Day 💗

#positive energy#CheckInWithMe #ChronicPain #ChronicIllnesses #bipolarbytes #Fibromyalgia #osteo and psoriatic arthritis#Asthma
After an appt this morning I got to go to a state park with my caregiver today. We walked some but many areas were gravel n my walker doesn't do well. Then when we got back to my apt scheduled a medical test n checked my garden.
Then my 2:45 person showed up bearing a box. We went to local coffee shop for cheap summer drink and went to a park.
There I shared with her my decision to STOP CPAP machine. She understood n gave me a high five.
Then I had my 4p phone appt and I shared with her all my days activities..
She was excited for me.
Post pandemic life: WOW!

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Social distancing

People with chronic illnesses cannot afford to get sick. Period. Wear a mask, wash your hands, clean doorknobs and stay the heck away from us.


Check out my article on the CF Foundation's website!

Hi everyone! I recently wrote an article about my life experiences with Cystic Fibrosis. It was really hard to do since I was always so discreet about my CF. I just want to say that if you have CF or any type of disease, people will be very judgmental about it. I have a friend who's cousin died from CF and he died when he was a teenager thinking that nobody ever understood him. The saddest thing is - when you're young, you are going to experience this feeling a lot. People need to try to understand what a disease is before making judgements about it. At one point though, I just couldn't take the way I was being treated by my friends because I am constantly being judged for having a health problem that has such a big impact on my life. This is why I decided that writing an article about it to raise awareness became really important to me. Here's the link:

#CysticFibrosis #RareDiseases #ChronicIllnesses