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No shortage

Apparently I'll have plenty talk about at my upcoming appointment with the neurologist. I've had one MRI that was consistent with CP but also indicated MS. It wasn't the news I wanted or even expected, but the puzzle pieces fit. I've been trying to be conscious of symptoms that also fit the diagnosis without spiraling into anxiety and hypochondria.
So I consulted google-- such a double edged sword. I read about the different types of MS and symptoms. I read about the MS hug which I haven't experienced exactly. I think I have a version of it in my neck. It gets strangely tight and I feel like I need to roll my neck and shoulders, but nothing really relieves it.
Then I realized my vision had been weird for the last year at least. Eye doctor said it could be the Pulfrich phenomenon--- MS.
Now for the last few days I've been feeling a sensation of an electrical shock going through my body. It's not especially painful-- it feels similar to touching a low voltage hot wire fence. I consulted the old frenemy google and the third result labeled it Dysesthesia. Ta-dah another MS symptom.
It's been hard for me because of my CP I just ignore almost everything unless it cannot be ignored. It's just been normal to have a quirky body. So to be more conscious of what is going on is pretty new for me. I don't want to show up with nothing to say at my appointment beside "idk something about an MRI and my doctor sent me to you."
I'm no doctor, but I am a researcher I even have a degree stored behind my dresser to prove it. I'm not using google in lieu of medical expertise, but I have questions and I don't have a doctor on speed dial. #MultipleSclerosis #CerebralPalsy #DoctorsAppointments #Google #Undiagnosed

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I have Android Version 7.0, but I cannot find Mighty app in the Google Play Store. Is it called something else? #App #android #Google play store

I thought I read that the app is available for any Android phone version 5.0 or higher? (Although it did specify "Lollipop," not even sure if that makes a difference.. Thanks!

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B.woman,E.R &Racism #theguru _LupusWarrior

I have been in so much pain for about a month. I'm so irritated, my dr.s kept telling me if your chest hurts go see a doctor. If under your arms hurts see you have a blood clot. I'm sure I do, I even told the Dr. Did he pay attention to me? Nope. As I was going to the hospital in the ambulance, I begun breaking out in hives , choking, turning all kinds of red. The ambulance drivers, told me to take medicine before I leave. They always tell you not to. So I refused. They strapped my feet down and didn't say a word to me but sign this.Didnt even ask me if I was ok I was saying help me, so I reached in my purse and shot my leg with eppi pen. I had to beg for Benedryl and antinausea medicine. They gave me papers to sign and wrote on the paper sorry for being black. #blackwomenarepeopletoo . Meanwhile lady next to me who just happened to have less melatonin gets i.v pain meds, and whatever else she wants. Then it cost me $20 to go home. #Lupus #opiodwar against patients with chronic illnesses who are black! This never happened to me before this Orange man stepped in office. I used to be treated for my pain regardless of what I took at home. I'm tired of going through this. Why doesn't anyone want to help me? Is it because I have been sick for 40 years with lupus? I hate being black in this era of hate and racism! No cure, No help just take the same crap that is doing nothing for me.
#listen #for #free on #Google music,#Apple devices on #itunes radio- I am #theguru _LupusWarrior. There was a report done on the different treatment of black women and doctors and how they believe the worst of us. They drug test me each time I go into the e.r. I fell last week Broke my ribs and stayed home. I knew my ribs were broken but, I wasn't in the mood to be treated like a criminal because I was in pain. I asked the doctor should I just go home and overdose on my meds for you to draw a single tube of blood. Upon reading my test results there were bad things wrong and he just told me to show it to my doctor. It takes me a month to get an appointment, by the time I go, the problem will either be gone or worse. I quit smoking last month, I told the doctor and he didn't believe me because my coat still smells like ciggarettes. I'm not the only person in my house, my boyfriend smokes. I hate this💧😭♿ .
#selfcaresunday

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