If your disabled they do not want to prescribe the medicine to treat your condition, and they just treat you like garbage. 7 failed surgeries, neuropathy, cerviogenic headache, and cannot even get a Lyrica prescription filled on time. Now I have to try finding a new doctor on short notice, miss work and potentially lose my job.
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Thanks to my therapist for introducing me to the Mighty. Another platform to ventilate my useless biographies and needs I suppose..
It's 12:41 am. This is where I struggle the most, trying to fall asleep.
I lashed out at my husband earlier. I was very anxious and upset. I was trying to cash my check at amscott 2 hours ago but they bounced it because the company didn't pay out the place I cashed it at last time; furiously I went to my managers at night at they merely said call payroll.
Does anything matter anymore ??
Everything gives me a headache.
Anxiety. Stress. Worry and Pain.
Sigh; holding back my frustrations in the car ride home I begin to wonder to myself what is the cycle of life other than working, skipping and avoiding all social events and suffering.
I feel bad I got mad at him, but with my mental health as it is I realize he is so strong.
How can he just fall asleep at peace so fast.
My husband just looks at me one more time..rolls over and is snoring now.
Me ? It takes 5 hours to fall asleep from chronic insomnia and constant worry.
Daily adulting activities that are so simple and painless to normal folks but take so much energy out of me because I am anxiously anxious, or bipolar whichever ya know.
My PCOS feels tame tonight __ yet the ever so painful experience of not being able to bear children lingers over me like a black fog.
Demonically reminding me every night that I am barren and cannot carry.
Tonight ? Just plain sucks. Maybe there's always tommorow â¤ď¸
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Cute Lil Rosie Fluff on a lazy Saturday â¨ď¸â¨ď¸
I do love my puppy snuggles đ
Thinking of each and everyone of you, my Mighty's, as we do all we can to improve our lifes, however that looks.
Life is brighter knowing we are Not in this alone, knowing that there is hope, and that we can Lways find beauty on our darkest of days.
We were created this way because our life needed to specifically be ours. We always have the opportunity to improve ourselves and heal past hurts.
One day, tomorrow a new dawn. Deep breaths, bring it on!!!
Or rest up for tomorrow đ you know yourself best! â¤ď¸â¤ď¸â¤ď¸
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #CheerMeOn #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #IfYouFeelHopeless #Upallnight #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #chronicheadache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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FOMO vs. JOMO (Fear of Missing Out vs. Joy of Missing Out)
How much better would life be for us if we could stop being afraid of missing out!?
It may not be easy, but I think it would be worth it! #PTSD #MentalHealth #Addiction #Anxiety #ChronicFatigue #BorderlinePersonalityDisorder #BipolarDisorder #Headache
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Her hair is so fluffy from the humidity. She is considered a toy dog but our neighbors dog-and Rosie's boyfriend is a big great dane.
She was scared of him but once I loved on him she knew he was safe. They love playing up and down the gate between them.
Who knew Rosie was a romance at heart?! đ
đ
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #AnkylosingSpondylitis #ComplexRegionalPainSyndrome #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #MightyPets #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #SuicidalThoughts #RheumatoidArthritis #sciatica #ShinSplints
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Been really struggling lately, itâs been 4/5 months since Radio suddenly died and the job search has been nothing but a constant headache.
Dark thoughts have been crawling into my head and taking up space. I just feel SO disconnected from everything and as if Iâm drifting, untethered.
I just really feel as if Iâm a burden, wast of space and honestly that my numbers up. Whatâs the point of staying in this constant stress and struggle?
Iâve also been dealing with the fall out from two very narcissistic former friends. I honestly thought they cared and that we were friends, but itâs been made very clear that they were abusing me and my talents for their own gain.
The sadness is so deep I donât honestly see an outâŚ
Iâve been keeping busy though occupying my mind and hands with a personal project to keep busy.
#Depression #MentalHealth #MajorDepressiveDisorder #SuicidalThoughts #Suicide
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5 comments
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #AnkylosingSpondylitis #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #Lymphedema #JuvenileRheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Upallnight #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #SuicidalThoughts
34 reactions â˘
6 comments
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #MentalHealth #MightyTogether #MemoryLoss #Migraine #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #SuicidalThoughts #Sleepwalking #Scoliosis #sciatica #ShinSplints
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If I told you I see the beauty in you, Would you begin to see it too?
Please feel free to comment!
Proof the hurricane was very very bad but not so bad that we gave up.
It was absolutely scary but soooooo blessed to have a house, candles, water, food, and that our power was turned on 2 days before we had estimated. Hallelujah for that my friends!!!
And I kept Rosie close so we would both stay safe if not melted from the insane heat in our area and with extra humidity. Yuck!
Just suck in some air but try not to choke as humidity tries to drown you đ
I prayed and pray still that all of you can quickly get any help you need.
The best thing EVER was being able to cancel appointments from this week- whoop whooop!!! đĽłđ¤
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #CheerMeOn #Eczema #Upallnight #gallstones #MightyPets #WakingNightmares #Sleepwalking #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
43 reactions â˘
12 comments
Is it or isnât itâŚ
Leading up to August, for around 6 months.. I have been having right sided numbness in my face, blurred vision, burning headaches as well as sharp headache and neck ache. All of those symptoms being present all together. After GP checks Opticians they sent me for an MRI. The day of the MRI they called be back in after, saying there were some abnormalities and pressure build up. They thought it was IIH. I then spent the next week back and forth having various tests, and then eventually a lumbar punch. After the lumbar punch they said the fluid that they took pressure was 17.5 and needed to be higher to be considered IIH. I felt ropey for a few days afterwards but after a couple of days the sysmtoms I had previously had gone!!!!!
They still referred me to Neurology and Iâm awaiting an appointment, they also prescribed me sumatriptan (for migraines) to take if symptoms come on suddenly. However in the meantime, specifically this week, all my symptoms are back. I have tried the sumatriptan and it only seem to make things worse.
I rang the GP and she literally said in her very words âI donât know what to suggest, other than A&Eâ she also said sheâd write to the neurologist and ask for any interim advice?
My speculation is that the release of the pressure from the lumbar punch, albeit not enough pressure to contitute IIH, surely is suggestive that it is that.
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