Headache

All the psych appointments, pain management, headache specialist appointments, neurologists, PCP appointments, GI appointments, opthalmologist bullshit cuz I mean let's be honest here, they fucked me over and I need a second opinion. I'm exhausted.
But it's all gotta have a purpose and payout, right? If I don't get a more rewarding life, more friends, more adventures, more events like I used to attend/host right before I got to where I live now then what is the purpose of fighting for better health???
I used to host hotel parties, BDSM classes, leather parties and educational discussions, and dinner parties every month. I took it quite seriously cuz unlike most of the kinky flux I know who only do this part time, I'm living the lifestyle 24/7. I'm really missing it all so much.
I keep thinking that my life is empty. I've got a few really awesome doctors and I've got Pauley and her mom who adores me and, because she loves me like her son, she treats Pauley so much better. Even Pauley seems to be making an effort to get along with her mom.
I was actually chatting with Pauley's mom this afternoon. She wanted to check in cuz the temperature is in the 90s and I don't do well during the summer. I'm thinking if temps are decent by Saturday, I'd like to go to Dairy Queen for a cookie dough and peanut butter sauce Blizzard. It's ridiculously delicious.
I'm really craving maple candy. I had a shaker of maple sugar and I intended to use it in my tea,. Except I ate it all on its own cuz OMG it was epic.
I found a channel on Spotify that has really yummy music. It's Sara Beth and some similar singers. Sara Beth is so cute.
"Poster child" by Ellee Duke is a great song.

Hi Mighties 💙
My name is Hamna. I’m 20, a Radiology Technician, and a childhood stroke survivor from Pakistan.
Here is my story,

Reflections on Accessibility: A Radiology Tech’s Story
As a Radiology Technician and stroke survivor, I’ve learned that medicine teaches us technical skills… but rarely how to include people with disabilities.
When I was 6, in Class 1, my life changed overnight. A severe headache, then I couldn’t wake up. The next morning I couldn’t walk, talk, or stand. My father carried me everywhere.
After days of CTs and MRIs, the diagnosis: stroke. I was paralyzed for over a month. On day 5, by the grace of Allah, I spoke again. After a month of physiotherapy, I walked again.
But the hardest part came later. School. Bullying. “She can’t.” “She’s fragile.” I hid my right hand under my scarf. I cried when people asked about my story. Society taught me that symmetry equals worth.
In college, books saved me. Kafka and Dostoevsky gave language to my loneliness. Photography and design gave me a place where I was judged by my work, not my body.
Entering radiology, I heard it again: “Change fields. You can’t do injections or BP with one hand.” I chose to prove them wrong. I learned to run an X-ray machine single-handed. I’ve cared for 200+ patients.
Because I’ve been the patient on that table, terrified, I bring empathy no textbook can teach.
I’m not sharing this for sympathy. I’m sharing it as a call: Train teachers to support, not discourage. Define clinical skill by outcome and empathy, not by “how” it looks.
I am a survivor. I am still healing. And I am building a career to make healthcare accessible for all.
#Strokesurvivor #Depression #Hope #MentalHealth

Hi, my name is JuniperGal. I'm here because I need help. Mentally Physically Spiritually. Been in pain since I was 12. I've been through 22 surgeries, body casting at age 2 for 2 1/2 years the first time. 2nd time age 24 for a year & again at 26 for a year. Then metal brace for a year. First operation was a triple osteotomy of left pelvic area. After a year they realized it was nonunion. Revision of osteotomy. Then 9 dislocations of a hip and 2 of the shoulder. Years of chronic systemic metal ion poisoning. Then came the spine- Compression fracture of vertibre by just putting jeans on. Fell and broke my right shoulder. Fell again, 4 more vertibre compression fractures. Then a failed spinal fusion. Haven't walked since. At age 24 the pain Dr at Rush diagnosed me with Reflex Sympathetic Distrophy of left leg (now called complex regional pain syndrome). My most recent ER visit for falling flat on my back & hitting my head pretty hard. Was a joke. I also lost ability to move left foot (foot drop). They said my muscles were weak and I wasn't an emergency. My constant migraine was just a headache. No x-rays, CT scan, MRI, nothing I was told to call someone to drive me home. Second and third ER visit (my PCP told me to keep going back) accused of being in opioid withdrawal, searching for pain meds. My doctor said to try going to a different hospital ER. 8 hours later, dismissed as usual. FINAL visit; a doc recognized that I had a massive concussion and admitted me for more testing! A couple days later the doctor came in kinda laughing states "Well you're right, there's something wrong and boy your husband is going to be pissed.) " You had a stroke. Would I mind being discharged to a rehab facility. They also said I had sepsis, a hole in my heart, pneumonia, that the constant migraine, and hallucinations should get better soon. At discharge the lovely nurse decides I don't really need to go to rehab. What an idiot. So that brings us to the present 4 months of laying in bed (can't have any pressure on my pelvis)loss of all muscle 💪. Some tendons & ligaments have turned to bone like material.
Stay tuned in for Part 2. *. Fighting for my meds!

#MightyTogether #Depression #PTSD #EatingDisorder

Hi, my name is SurferPixies. I'm curious about this:
I have generalized anxiety disorder, and it seems to have gotten worse lately. Everything really seems to trigger anxiety in various forms — like yesterday I had family over, and I’ve noticed a few times now that after social gatherings I feel sick, physically nauseous with a headache, even though I’m happy to see them, but it’s like it drains all my energy, not knowing if I’m saying (or not saying) the right things, etc. I can’t take this overwhelming anxiety anymore 😕I’m I alone in this scenario? do you have some tricks for me that can help me out a bit ? thanks a lot for your time !
#MightyTogether