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    I have been very anxious these past few weeks. A few weeks ago i recieved a letter from the hospital saying i had to go for a CT Scan of my Throax. Imgoing to the Cancer Unit on Saturday afternoon at 4pm. I have myself all hyped up as i had my right kidney removed two and ahalf years ago because of cancer. Im am so afraid that the cancer may be back. Has anyone any idea so i can try and calm myself down. Thanks Magz x
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    How do you pace your energy levels throughout the day?

    Symptom management when you live with a chronic health condition can be challenging, especially when you only have so much energy to work with on any given day. It can sometimes feel like a guessing game of how much you can get done, right?

    What is the most effective way you’ve found to measure how much energy you have to complete your daily tasks? How do you delineate your responsibilities if needed or slow down the pace?

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

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    Celebrate Indigenous Life Month

    Check out my friend Kimber Harris! (She has propped me up and promoted things I've been involved with and I finally have the chance to return the favor!)

    Kimber has been selected to be a #campaignadvocate with American Indian Cancer Foundation for the month of June for #celebrateindigenouslifemonth ! She is also leading a #CommunityConversation on June 7th. She has been selected to share her experience facing HER2+ breast cancer as a young adult.

    Register and attend her Community Conversation.

    americanindiancancer.org/celebrate-indigenous-life

    Follow #aicf on social media, like/comment/share the posts to help raise awareness of #indigenoushealth , #BreastCancer , #ayacancer AND #cancersurvivorship .

    June is also #cancersurvivorshipmonth !

    You can also show support by wearing #lavendar on June 4th and 23rd. The 4th is #NationalCancerSurvivorsDay and the 23rd is #CelebrateIndigenousLife Day!

    #ayacsm #ncsd2023 #ncsd

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    Be you

    I'm very familiar with being acceptance-driven and trying to change aspects of myself so that others will like me. But for what? It didn't really get me anywhere in the long run. We spend so much time doing this; all it does is pressure ourselves to be someone else, ultimately making it impossible to love ourselves genuinely. Today, I'm still very involved in changing myself, but it's more like I'm developing myself. If you put just a little bit of effort into improving yourself, the right people will automatically appear in your life and help you blossom. Is anyone familiar with this in romantic, platonic, or professional relationships? How did you get out of this trap and what sorts of things do you do to change/improve yourself for the better?

    Also, I have news! Many of you don't know this but I have a PhD in cognitive neuroscience and have been working for several neuro-tech companies in Denmark over the years. This week I announced that I am launching my own Danish neuro-tech mental health company called Neurora, where my team and I help other companies in Copenhagen with stress-related burnout. I'd really love it if those of you who are on LinkedIn could follow me and/or my company's profile for support. There I will post about how to have a healthy work-life balance and tools anyone can use to de-stress.

    Here are the links below:

    www.linkedin.com/in/thomas-ousterhout

    www.linkedin.com/company/neuroranordics

    ~ Thanks to all. Thanks for all. ~

    Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

    #MentalHealth #Depression #Suicide #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #OCD #ADHD #Fibromyalgia #EhlersDanlosSyndrome #POTS #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #MentalHealth

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    I lost my son to cancer about a week ago. He was a strong kid and fought a good fight, but God knows best. I bought him a Play Station 5, but unfortunately he never got a chance to see it. I’m willing to give out the PS5 for free because seeing it hurts my soul. Send me a DM at 904-686-9573 if you want the gaming system.

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    I lost my son to cancer about a week ago. He was a strong kid and fought a good fight, but God knows best. I bought him a Play Station 5, but unfortunately he never got a chance to see it. I’m willing to give out the PS5 for free because seeing it hurts my soul. Send me a DM at 904-686-9573 if you want the gaming system.

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    Feelings

    What do you guys think about this one? I know for me, I'm grateful for the lows and the challenges I've faced because it gives depth and meaning to the joys and progress that I make. Being sensitive is a great ability to have, especially when we can accept ourselves as we are and give permission for ourselves to feel the full range of the human experience. Do you think your feelings are both a blessing and a curse or maybe only one of them?

    ~ Thanks to all. Thanks for all. ~

    Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

    #MentalHealth #Depression #Suicide #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #OCD #ADHD #Fibromyalgia #EhlersDanlosSyndrome #POTS #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #MentalHealth

    351 reactions 83 comments
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    Major update

    #Doctors #Diagnosis #MRI #ctscans

    (Part 1) Hi guys & gals. Some very interesting developments have surfaced over the last few weeks & admittedly some worrying things. firstly, the neurologist appointment went fine but there quite a few new diagnosis that where made. Firstly I have conjugate gaze palsy, an Astasia Abasia due to what he thinks is FND, however at the end of his report he stated an unspecified ataxia. Your guess is as good as mine on that one. Lastly, he diagnosed me with a dilation of my ventricle that causes accelerated aging i.e dementia. He wanted to send me to physical therapy & they where nice so that's good. I saw the spinal specialist & this one. . .this one sent a chill down my spine literally. The examination went fine & he recommended botox injection from his clinic if the current rehab facility doesn't succeed. My poor mom said "we will exhaust all other options." That's what scared her, what scared me was when we talked about how this grade 2 cerebral palsy came out of nowhere. How did this cp flare up like this? He has no clue, well, I MIGHT & I DON"T THINK IT'S CP! I decided to join labcorp & was looking at previous blood results when I stumbled across one taken 10 months ago that showed my A/G ratio, sodium, carbon dioxide, hematocrit, & blood urine nitrogen where all off. It could have something to do with my adrenals & kidneys. Spinal wise they found cervical disk denegation, stenosis, bone spurs all along that region. Then the ENT told me to get more imaging & I had to wait another week because insurance... We found there was a laryngocele & diverticulum. There was no cancer which was our initial concern, instead the Ent said it was rare & congenital.

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