Lost my diagnosis #RareDisease #irony #PrimaryImmunodeficiency
It is very frustrating and ironic. On the 28th of February (international Rare Disease Day) I lost my diagnosis of a rare disease. If this isn’t the universe mocking me, I do not know what it is… Sadly this means I will not be able to receive tratement and am on field one again. But luckily other diagnoses have been in discussion…. We‘ll see but for the moment I‘m pretty frustrated. Because I am no longer diagnosed with SAD (Selective Antibody Defficiency) I will try to give this group to someone else.