I have had severe lichen planus, cutaneous sarcoid, papular dermatitis and pioderma gangrenosum for years now and ramptant osteoarthritis - all which I have learned to live with - no other choice but for the last year or so I had no idea why I was always so tired, waking up in pain and exhausted, struggling just to do the most menial things - just having a shower and getting dressed to go to work made me want to go back to bed, dragging myself around and then I started even nodding off at my desk at work - not good - had problems with medication side effects - things getting worse and in February this year had a week off due to side effects from new meds and just totally lost it - my doctor and my best friend (a nursing sister) said enough- you need to stop work for your own health so I did - hardest thing I ever had to do after working full time for 50 years. But the symptoms continued but thanks to a brilliant doctor who said I was too "sensitive to touch" and referred me to a Rheumatologist, I justfound out last week I have Fibromyalgia. At least I know now what it is - I have a name for the constant pain, exhaustion, brain fog, tremors etc. Now I am waiting for be considered for disability - so now we wait.
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