Lichen Planus

Create a new post for topic
Join the Conversation on
Lichen Planus
150 people
0 stories
7 posts
About Lichen Planus Show topic details
Explore Our Newsletters
What's New in Lichen Planus
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Insomnia strikes again!

Up at midnight and couldn’t fall back to sleep. Figured I might as well be productive, one thing I’ve managed to adapt to my pain isssues is my beauty routine/hobbies. So I dyed my hair, soaked my achy back in a hot shower, did my makeup, and made a cup of tea with extra extra raw honey to soothe my oral lichen planus outbreak. No, I don’t have anywhere to be today, I just do this for me. From the neck down, I look like a slob lol 😝 #FakeItTilYouMakeIt #orallichenplanus #LichenPlanus #Fibromyalgia #ChronicPain #ChronicMigraines #Insomnia

17 comments
Post

Newly Diagnosed #Fibromyalgia

I have had severe lichen planus, cutaneous sarcoid, papular dermatitis and pioderma gangrenosum for years now and ramptant osteoarthritis - all which I have learned to live with - no other choice but for the last year or so I had no idea why I was always so tired, waking up in pain and exhausted, struggling just to do the most menial things - just having a shower and getting dressed to go to work made me want to go back to bed, dragging myself around and then I started even nodding off at my desk at work - not good - had problems with medication side effects - things getting worse and in February this year had a week off due to side effects from new meds and just totally lost it - my doctor and my best friend (a nursing sister) said enough- you need to stop work for your own health so I did - hardest thing I ever had to do after working full time for 50 years. But the symptoms continued but thanks to a brilliant doctor who said I was too "sensitive to touch" and referred me to a Rheumatologist, I justfound out last week I have Fibromyalgia.  At least I know now what it is - I have a name for the constant pain, exhaustion, brain fog, tremors etc.  Now I am waiting for be considered for disability - so now we wait.

14 comments