EDS-HT

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    Little Bit of Progress.

    I just thought I would share the first strawberry I picked that I grew on my allotment this year.
    Sometimes progress we make or the things we get achieved in a day can feel as small as this strawberry.
    But even something as small as a strawberry can bring happiness 😊
    Keep at it people, and rest when you need.
    💪🏽🍓 #EDS #ChronicIllnessEDS #EhlersDanlosSyndrome #EDSHT #EDSAwareness #HypermobileTypeEDS #Spoonie #SpoonieProblems #ChronicIllness #progress #happy

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    Sprained angle, top grade

    Hello, everyone. Hope you are all well. This is the first question I will be posting, as I just joined. I am excited to be here and speak with others who suffer with EDS.

    I sprained my ankle about three months ago, had some hairline fractures on foot, tore ligament, tendon, other damage that wasn’t noticed, I’m sure. I had to use a chair for two months. This past month it seems I can walk some days but I’m very stiff in the mornings. Then if I do actually walk as frequently as one would in a day around the house, next day I have to stay in bed. I read it could take up to six months to heal but my ankle keeps dislocating because for a short while I whore the heavy boot urgent care prescribed. Only made things worse. #ChronicIllnessEDS #sprained ankle #Elhers #EDSHT #HypermobileTypeEDS

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    My Companion

    Pain. Most of us have it. I imagine everyone in their lives have some form of pain. I have many physical health issues and a few mental ones to add to them.
    When pain is bad enough that I have to scrabble around to find some form of relief. Usual painkillers, done. Top up paracetamol, done. Top up codeine, done. And still, my leg is spasming enough that it feels like it's valiantly attempting to squeeze the pain out, thus making it worse.
    What do I do?
    What can I tell myself?
    Sometimes the 'painkillers' don't kill the pain they just sit there ignoring the agony and being a bit useless.
    All I can do is rest. Sleep won't happen and relaxation has decided to leave for the evening. Tomorrow may be better, or it may be worse. I don't know.
    I will rest. Let myself just be with all my aches and pains and hope that tomorrow is better.
    Just remember that tomorrow might always see an improvement even if it's the tiniest thing in the world.
    I am celebrating my sisters birthday tomorrow, fish and chips and a good, trashy film just to annoy her OH. I will smile and be my chatty and rather odd self and all the while that pain will be my companion. The companion that sometimes gives me sleep or allows the medication to work and sometimes keeps me up writing this into the Mighty message system.
    I am going to try and sleep. You all should too. Rest is good for the companion even if it grumbles about it.
    Goodnight folks. #EDSHT #Pain #PainManagement #PainKillers #MyalgicEncephalomyelitis #Fibromyalgia

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    My opinion doesn't seem to matter #ChronicIlless #EDSHT #homeallday

    Hi, today I found out the hard way that to my sister in law I'm available every day all day and have no fixed appointments. They had planned to come over to celebrate Christmas together, but the day she suggested, I'm in pain clinic. To bad. Then they have to celebrate without me. And I have to arrange someone to bring me back home after therapy because I'm not allowed to drive. The other option was today, but than I'd have to cancel physical therapy (which I definitely need today after conducting Saturday) but to her that's no problem. Well...she doesn't have to feel my body. So I phoned that it was on a too short notice (1 hour ago) and that I can't skip according to their constantly changing wishes. I kind of pitty my mother and twin brother. Typical for her: that's the way I've planned it so that's the way it's going to be no matter it is inconvenient to someone else. Everybody has to be d according to her wishes. When I've studied long enough, I'll give her a psychological diagnosis 😈. Sorry for complaining. I just had to spill my guts.

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    Model of EDS

    When you discolate one of your joints, but you have to still pose. It’s fine.

    #EDSHT #hypermobileehlers-DanlosSyndrome(hEDS)

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    Introducing myself ..🐅🦋🦓💛

    Hello everyone. As the daughter of a mystery illness patient and as a (in the works) mystery illness patient myself, I've come to learn quite a few things. hEDS is so much more than just being "extra flexible", not to mention that it describes only one of the several subsets of the ehlers-danlos syndromes; If that doesn't already include enough variation, I'm sure that most of you know EDS can be a very individually specific disease process. I have quite a bit of experience (including what I'm still going through)- an undying passion for the unknown (especially when it comes to the body)- a depth unique only to myself- and- (especially with covid)- quite a lot of free time. Anybody struggling that wants to talk or needs advice please message me! I'm happy to be an energy to hear you, validate you, relate with you, and/or figure out what's really going on when you don't think your diagnosis(es) accurately or fully explain the suffering you have been and/or are still experiencing💛 #BorderlinePersonalityDisorder #BipolarDisorder #EDSHT #EDSAwareness #EDS #ChronicIllnessEDS #LivingWithPOTS #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #HypothyroidismUnderactiveThyroidDisease #Anxiety #DepressiveDisorders #MyalgicEncephalomyelitis #ChronicFatigueSyndromeampME #MastCellActivationDisorder #MCAS

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    A poem called Pain Ridden Rainbow by Mica Warsop

    I created this poem based on my chronic pain. It's easy to lose hope when you deal with something that can't be cured or something you live with trying to manage everyday. One thing I have to hold on to is hope it gets better in tiny small doses. I have never experienced a day without pain.. even as a child I always felt my body. So for myself I have to hold on to the hope that my pain may not go all together but changes levels, like the spectrum of a rainbow. It always ranges from 5-10 the 5-7 levels are my best days that come few and far between, but they still come. That's my hope for tomorrow. I hope this poem brings you hope too. #ChronicPain #EDSAwareness #Hypermobility #elhersdanlossyndrome #EDSHT #ChronicIllness #InvisibleIllness #LifeLongCondition #lifelongillness #Fibromyaliga #hypermobileehlers-DanlosSyndrome(hEDS)

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    Marked for the rest of my life

    As EDS and its symptoms is gonna be a part of mine forever, I lastly thought it to be a crazy thing, another piece shall accompany me along the way. So I got my first tattoo, with 41 years. It won‘t be the last either..... #StayStrong #EDSHT #EDSAwareness

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    FINALLY A DIAGNOSIS!!!

    After waiting for all my life (31 years) I finally have a diagnosis of EDS-HT!!! Words cannot express how excited and thankful I am!!!!

    #EDSHT #ahhhh #ChronicPain #ChronicFatigue #itallmakessense #stretchingmeout #Diagnosis #Answers

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    No idea I had EDS

    (Im the girl with have the grey shirt on) I had no clue I had EDS till last year and this picture was 11 years ago. #EDSHT #TheBendyBunch

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