This morning I woke up to my alarm. I snoozed.
That’s very much unlike me.
I finally got up and my legs felt weird, they didn’t carry me. I sat down and my body went on a strike. All my muscles worked against each other and the product was a limp body and me not even being able to hold my own head up.
I had to cancel all my plans and then proceeded to crawl on the floor, using the few muscles that worked, back to bed.
This hasn’t happened since last year when I was in the hospital. The last 14 months have been a fight to get my body back. Relearning to walk, to use my hands, to function as a human being, and it feels like I’m back at square one. Wheelchairs are taking over my crutches. Tears are taking over my smile.
It feels like everyone has given up on me, and worst of all- I’ve given up on myself.
Life keeps throwing me curveballs and kicking me while I’m down. It’s not fair.
WHAT DO YOU WANT ????!?!!!!
#LivingwithFND #FND #EhlersDanlosSyndrome