Fndlife

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    Even with FND you are still you

    <p>Even with <a href="https://themighty.com/topic/functional-neurological-disorder/?label=FND" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce8100553f33fe99303c" data-name="FND" title="FND" target="_blank">FND</a> you are still you</p>
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    Community Voices
    Community Voices
    Community Voices

    Do you have chest pain & fainting spells?

    For the last month I have had major chest pain & I pass out almost every time I move. I’ve been to the ER three times & every time they assure me there is nothing wrong. Is this #FunctionalNeurologicalDisorder related? If so, what do you do to help? It is taking over my life & I am scared. Doctors are of no help to me I don’t know what to do.
    #FunctionalNeurologicalDisorder #FunctionalNeurologicalSymptomDisorder #Fndlife #fndhope

    6 people are talking about this
    Community Voices

    More reading material *INTERESTING*

    #FunctionalNeurologicalDisorder #Fndlife #fndhope
    Here is some stuff that makes me feel hopeful. It really helps to know what’s happening out there as far as research and interest being taken in this diagnosis/condition. Maybe it will help you too...

    “Brain scans help unravel the neurobiology of functional neurological (conversion) disorder”
    www.google.com/amp/s/medicalxpress.com/news/2019-03-brain-sc...

    “Inflammation and brain function in functional neurological disorder: Implications for diagnosis and treatment”
    www.findaphd.com/phds/project/inflammation-and-brain-functio...

    Community Voices

    #FunctionalNeurologicalDisorder
    Open Our Minds READ IT!:)

    #PsychogenicNonepilepticSeizures #EssentialTremor #Dementia #AlzheimersDisease #NeurologicalDisorder #SeizureDisorder #StiffPersonSyndrome #Undiagnosed #Fndlife

    “What is a Root Canal and Why is it Dangerous”
    articles.mercola.com/what-is-a-root-canal.aspx
    (Also applies to pulled teeth and deep cavities)

    “Can the Flu and Other Viruses Cause Neurodegeneration?”
    www.the-scientist.com/features/can-the-flu-and-other-viruses...

    This will give ya something to think about! For me personally it is stuff like this that reminds of how little doctors and scientists know of and how much they fail to care to consider when they meet patients with complex conditions that don’t fit into a box they can recognize. It is offensive to me that the term “inorganic” is so often used by doctors when discussing FND and other “psychogenic” disorders....as if THEY are all knowing of all things to the point that they could categorize these diseases as something which is not biological in nature simply because THEY are not able to identify the etiology of a the condition. Isn’t it more likely that it IS “organic” but that THEY just don’t know what and how that it is yet....?

    Few doctors are willing to put ego to the side and simply admit that they do not know everything.....the ones that do are not intimidated by the things they do not know....you will recognize them immediately because they will be inquisitive and empathetic and willing to take on the challenge of a patient with a condition they do not fully understand or they will respectfully admit to your face that they do not know of anything they can do for you if they do not want to take you as a patient....and you will never leave an appointment feeling dismissed or disrespected in either case. You may leave without answers, but you will feel like you have someone on your team if the doctor wants to TRY to help....the good ones won’t instill hopelessness in order to pacify their own ego. It is only common sense that EVERY doctor does not know everything. Us FND and “psychogenic” diagnosed patients and many others are the walking(or not walking) proof of it...

    If everything was already all figured out and the doctors who treat us already knew all they ever needed to know in order to be good doctors....then scientists would be outta business and places like Mayo Clinic wouldn’t exist. If only the medical system were built upon common sense.... THAT is a much bigger conversation! LOL....guess I needed to rant apparently. I am like the anti-social media person but I just got on this site because I have so much sadness and frustration to do with my health problems and the medical system...and I feel so alone when I’m not at all. Thank you for reading!❤️

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    Community Voices

    “Can the Flu and Other Viruses Cause Neurodegeneration?”
    www.the-scientist.com/features/can-the-flu-and-other-viruses...

    This is some food for thought for anyone out there with an “inorganic” or undiagnosed neurological and cognitive condition, or for people with known neurodegenerative diseases. Check it out!!:)

    Community Voices

    What do I do?

    Tuesday I went to the ER because I kept passing out every time I moved and I was having EXTREME chest pains. After multiple tests the doctor determined it was my FND. They sent me home still passing out and still with chest pain, no meds, no advice really. I don’t know what to do. This isn’t living and I’m in so much pain. #FunctionalNeurologicalDisorder #FunctionalNeurologicalSymptomDisorder #fndhope #Fndlife

    Community Voices
    Community Voices


    #CheckInWithMe it’s my best friend of 20 years’ 21st birthday today and I haven’t been able to attend any of her birthday celebrations as they aren’t wheelchair accessible or practical for my health. Why do I feel like such an awful friend even though it isn’t my fault? #LivingwithFND

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