Lymphedema

My sciatica is flaring up. Both sides. But my left side is the worst. It's all the way to my toes. I only took one Norco today. I just asked for another one. It's not ideal but I never asked to be disabled, I didn't go out of my way to get hurt. So I need tools to get through life. And that's not shameful or embarrassing. I'm not addicted to my meds. I just happen to enjoy pain (free? Hahaha) minimal moments.#sciatica We might go to the dispensary tomorrow afternoon. They have a THC/CBD topical cream for $60. I just got paid yesterday. My pain level has been way too high lately. I know I need surgery but I can't get ahold of my surgeon and I gotta find ways to be functional.#ChronicPain I wish I was cute.

I just realized my right foot felt funny, kinda numb and stiff. It's over 3x it's normal size. I got the compression socks yesterday but I didn't wear them yet. I gotta make an appointment with my vascular doctor.#Lymphedema I've been so thirsty all day. I drank 116oz of coffee and over 200oz of sugar free juice. But I'm really dehydrated. My mouth is really dry and my eyes burn.#Diabetes One symptom of exotropia that I've had for a long time is closing one eye most of the time. Light bothers my eyes so I always close my right eye. But that's where the problem was first discovered.

I've eaten too much sodium over the last few days. My ankle is easily 3x it's normal size. My toes are pudgy little cocktail weenies. My shin can show pitting lymphedema just below my knee. I'm drinking a bottle of IQ mix (the caffeine free sugar free adaptogenic mushrooms drink). I'm trying to flush the sodium out of my system.

I thought the ringworm was just a small spot. No, no it isn't. It's in my groin and halfway across my c section scar. Each part is the size of my hand. Pauley took a picture of it to send to my doctor.

My double vision makes typing very difficult. The letters look like little ants. they're all wiggly.

My psych doctor wrote me a script for something he wrote for me 5 years ago. None of us remember why I stopped taking it. But it's literally the only thing he'll write for me to help with my anxiety.

I just took my testosterone injection for the week. I'm getting better at it. I gotta order more subQ needles.

#CheckInWithMe #Lymphedema

Depression leads to anxiety leads to stress leads to grinding my teeth leads to one hell of a migraine.

No 2 people are perfect together. There will be arguments and disagreements. But when you genuinely love each other you get through it together. Right now I'm upset and I need to calm down before I deal with it. She's been giving me space to deal with my brain weasels. But after I've processed my emotions, I'll be able to have that talk. Because I love her.

She just made homemade oat milk. I made some steamed sweet potato and put butter, Parmesan seasoning, and lemon pepper. It was freaking delicious!

Now Pauley is making pork chops. I explained how to cook them. My pain level is sky high and my depression is all encompassing. I'm going to make butternut squash to go with the pork chops. Maybe.

My cervical spine is really painful. My neck is grinding. The X-ray showed the vertebrae that butts up to the base of my skull is calcified. It explains why it's so stiff. Yesterday I sent a message to my spine surgeon asking if I can see him soon. I haven't heard back yet.

However I did hear back from my cardiologist. She started the email with "Mr. Caelum". I had asked if there were any safe diuretics. She said no, saying the risks outweigh the benefits. She said just use the compression socks, elevate my feet, and try to do leg exercises. Then she suggested I see a vascular doctor. She said I'm more than welcome to seek a second opinion.

I ran out of almond milk this morning. I've been using cappuccino powder to make it creamy. I've been drinking blueberry crumble flavored coffee. It's actually quite good.

We ordered groceries last night. They're getting delivered tomorrow . I ordered 5 cartons of almond milk. Should last about 2 weeks.

I really don't feel good. My tummy has been bothering me since yesterday. I took a ubrelvy for the migraine. I need a Norco for my back pain. It's at 7 right now. I'm still semi functional as long as I'm sitting.

So my day was a mess but had a few good things.

#Migraine #BackPain #Lymphedema

I've got a telehealth appointment tomorrow with my doctor to go over my lab results. They're pretty bad. She's gonna be cross that I haven't found an Endo yet. I'm on a really high dose of insulin. It's not helping. But it's making me gain weight really fast. It's kinda scary.

But I'm gonna talk to her about getting me a proper rescue inhaler. I've got dulera but that's just twice per day. When I go up and down the stairs or walk for more than 5 minutes I can't catch my breath.

I'm gonna get a refill of my Norco. I've been trying to contact my previous back surgeon but they haven't responded to my 2 emails and phone calls. As long as I am making an attempt, my doctor will refill my meds. I've only been taking maybe 5 per week. I'm trying to use my tramadol more often. I'm not addicted. And I intend on staying that way.

My doctor is concerned about my lymphedema and high blood pressure. I told her how my cardiologist is handling it and she's kinda pissed. The new meds aren't working. And I had a low symptoms day on Tuesday so my cardiologist thinks everything is fine. And even after emailing her pictures of my pitting lymphedema, I haven't heard back.

I'm so frustrated. And my anxiety is making me sick. I'll talk to my doctor about how bad my adjustment disorder is. Maybe she'll have an idea. She's a good doctor.

#COPD #Diabetes #ChronicPain #a1c #BackPain #Lymphedema #HighBP

This is the summary of my day so far:

Dr:*gently pokes my shin* I don't see any pitting lymphedema so I don't think you will need the compression socks.

Me getting home:*presses on shin for 3 seconds and I created a crater* the fuck...

Me:*calls doctor* I need your email address so I can show you my pitting edema.

Dr.: oh...

Hopefully next week I'm getting compression socks. This swelling is making walking very painful.

#Lymphedema

The skin has no elasticity so it's swollen and stiff and tight. My ankle is 3x it's normal size and hardly turns. It hurts to walk. So tonight I took a caffeine diuretic. My cardiologist doesn't want to see me until the 26th. Fine. But I'm not gonna let this go. If she doesn't like it, I can find a new doctor.

#Lymphedema

It might be because I drank a bottle of IQ Joe with my dinner lol.

Now Pauley and I are eating chocolate chips. She's going down obscure rabbit holes on Wikipedia while I'm just listening to music and researching medical stuff.

Today was testosterone Tuesday. I have been back on T for about 3 months. My facial hair is coming in thick and my voice is cracking again. But I'm also breaking out in lots of acne. Boy puberty sucks but it's a jillion times better than girl puberty.

My right foot is 2x it's normal size. Tomorrow the first call I'm gonna make is to the Endo. I'm concerned about how lymphedema and diabetes interact.

I'm feeling very invisible. If you see this post, what's your favorite poem? Or if you're feeling spry, write me a haiku about spring.#HRT #HormoneReplacementTherapy #Transgender #LGBT #Transman #testosterone #Lymphedema #Diabetes