Lymphedema

Hopefully next week I'm getting compression socks. This swelling is making walking very painful.

#Lymphedema

The skin has no elasticity so it's swollen and stiff and tight. My ankle is 3x it's normal size and hardly turns. It hurts to walk. So tonight I took a caffeine diuretic. My cardiologist doesn't want to see me until the 26th. Fine. But I'm not gonna let this go. If she doesn't like it, I can find a new doctor.

#Lymphedema

It might be because I drank a bottle of IQ Joe with my dinner lol.

Now Pauley and I are eating chocolate chips. She's going down obscure rabbit holes on Wikipedia while I'm just listening to music and researching medical stuff.

Today was testosterone Tuesday. I have been back on T for about 3 months. My facial hair is coming in thick and my voice is cracking again. But I'm also breaking out in lots of acne. Boy puberty sucks but it's a jillion times better than girl puberty.

My right foot is 2x it's normal size. Tomorrow the first call I'm gonna make is to the Endo. I'm concerned about how lymphedema and diabetes interact.

I'm feeling very invisible. If you see this post, what's your favorite poem? Or if you're feeling spry, write me a haiku about spring.#HRT #HormoneReplacementTherapy #Transgender #LGBT #Transman #testosterone #Lymphedema #Diabetes

How is this something to just dismiss and ignore? My cardiologist said that all I can do is elevate my leg and cut salt intake. But there are some safe diuretic pills that I can take. I'm really upset.

#Lymphedema

My feet are huge. 2 days ago I emailed my doctor but I haven't heard back. I'm gonna schedule an appointment to discuss my lymphedema. She said if it got worse we could talk about it and yeah it got worse. I gave the new meds 3 weeks. And I can't find anywhere to get compression socks with my insurance. I'm so stressed out.

And the pharmacy my doctor sent the script for dexcom to doesn't accept my insurance either. So I gotta find a different one that will deliver.

My caseworker from yesterday found the info page for the surgeon my neuro-ophthalmologist referred me to. The page had a link to request an appointment so I filled it out. I'm hoping to hear back.

I am so anxious about eye surgery. I've had a lot of surgeries over the last 9 years and I've done really well with handling it. I even had major back surgery 2 and a half years ago. But for some reason eye surgery scares me the most.

Just thinking about it is making me cry. So I'm just gonna lay here and drink my coffee and cry for a bit.

#intermittantexotropia #Strabismus #Depression

I got a text out of the blue today from my local QPP. We don't really talk much, he's so busy with work. But he said he really misses me and wants to see me soon. So we talked about maybe getting together next week for bubble tea and Italian street food. We used to get bubble tea at least once per month, but we haven't gotten it in over a year! So we're kinda really looking forward to it. #Relationships

I discovered my favorite flavor of bubble tea maybe 3 years ago... Taro, caramel and banana with tea and coconut milk and no ice. It's amazing. It tastes like fancy popcorn. And if you know anything about me by now, you know how important my tea and coffee is to me. I've taught pauley how to order the drink I like for herself cuz she's still learning about the different types of offerings.

The next time we go out to get bubble tea I'm gonna have her try the lychee jellies. They're so yummy in fruit teas. I don't like the bursting bubbles. The skin is gross.

My foot is still quite big and hurts. I'm gonna call my cardiologist tomorrow to get their email address so I can show them how big it is. I'm hoping she'll admit she made a mistake and put me back on lasix. #pittingedema #Lymphedema

Pauley and I need to go to the medical building at the hospital to get compression socks. I have a prescription for them. Incidentally I was told my script for dexcom was sent to the same place but I haven't heard anything about it. I'll schedule transportation for the week after next week. I've got 2 appointments next week. I'm trying to space them out so I'm not running myself into the ground.

One of our friends lives near the big local mall that I want to go to. I'm gonna try to ask her if the 3 of us can make a day of exploration. I heard there's an aquarium in the mall. While nobody is looking, I'm gonna eat all of the fishes! Om nom nom.

Pauley and I talked about going to demolition derby races and I'm really excited. I love car crashes. It's not for a few more months but I'm anxious and excited.

I'm trying to focus on the positive. I only googled my condition once. Of course I ate about 400mg of sodium in my dinner which made my feet bad. But I needed comfort food. Gnocchi is my new favorite comfort food.

I don't know what time I fell asleep on the couch but I woke up around 6am and I just sorta shot the shit for about an hour. Then I realized pauley needed to go to bed. But when I got to my bed I needed to get a refill of my tramadol. I took my night meds, some hydroxyzine pamoate, a tramadol, and 2 aspirin.

My foot hasn't been this bad in over 6 years and I don't know what to do. It's so stiff.

#Lymphedema

I waddled to the bathroom cuz OMG and my right foot was swollen so bad. It's double it's normal size. I'll be able to show my PCP today and try to figure out what to do instead of lasix. I'm gonna try to make time to go back to the hospital for binsons to get compression socks in the next 2 weeks.

I didn't have therapy yesterday cuz my appointment cut into the time. We rescheduled for today at 4pm. I didn't do any journal prompts this time but I did some last time and we didn't go over them. But I'm sure with the cardiologist appointment and my PCP appointment I'll have plenty to talk about. And I'm so burnt out. We'll be fine as far as topics to discuss.

I'm gonna have a bunch of labs done today. Prolactin levels, testosterone, CBC, and A1c at the very least. Originally this appointment was for checking my urine for cultures cuz I had a UTI but I feel better.

I'm so thirsty. My tongue burns. My mouth is dry. I'm craving coffee. Except it's 530am and I can't have coffee right now. Pauley decided to wash dishes and accidentally chipped my starbarks mug.

I'm burping up stomach acid. I ate a little bowl of GF Velveeta Mac and cheese for dinner. It was delicious but it had quite a bit of salt. It's what made my feet swell up.

Today we're gonna place an order for groceries. I already picked what I want. I'm excited about some of the stuff I ordered, like the pork carnitas and the chocolate chip banana waffles and the cod. We're gonna eat the cod Wednesday night. Ooooo and the Dino nuggies are on sale! I ordered 2 boxes! Rawrrr

I've decided I'm awake for the day. I'm having pauley make me a bottle of IQ Joe. It'll help me feel more alert and less foggy. I'll also make a cup of juice when I finish drinking the coffee.

#Lymphedema #GERD #AcidReflux #HiatalHernia #Dehydration #foodieadventures #coffeeadventures

I've been slacking on tracking my BG and my insulin usage on my app. I'm so burnt out on medical bullshit. Either I'm sick at home taking fistfuls of pills just to keep me functional when all I do is stay home all day or I go to doctors appointments and get orders for more useless testing and they prescribe more medicine. I don't know if my doctor realizes I'm back to being polypharmacolegic.

Tomorrow I see my cardiologist. I really like her. She's super nice. I'm gonna talk to her about getting a script for compression socks. My right foot is huge. The pitting lymphedema goes all the way up to my knee.

I'm really worried about my hypertension. My BP and HR are really high. They didn't respond to the new meds. I'm getting some nosalt on Wednesday so I can cut a lot of salt out of my diet. I gotta start drinking more sugar free juice. I don't know what else to do.

One hour until pauley and I start making our tea party. I'm gonna make blueberry pancake bars. I know it's not the same as scones with clotted cream or biscuits and jelly or finger sandwiches. But I think it's going to be nice. The tea is gonna be delicious and the pancake bars will be warm and yummy.