Chronic Obstructive Pulmonary Disease (COPD)

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Chronic Obstructive Pulmonary Disease (COPD)
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I’m new here!

Hi, my name is ToastyButterflyfish1. I've been diagnosed with multiple sclerosis and also COPD. I’m looking to learn more about more about my diseases. I am also interested in meeting people with the same issues I have.

#MightyTogether

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#treatments #fibroflareups #Osteoarthritis #PTSD #Anxietyanddepression #Anemia #AlopeciaAreata #CFS #COPD #ChronicPain

Hi Everyone
Has anyone had infusions for the treatment of fibromyalgia? If possible I’d be interested to hear how your treatment went and if it helped at all ? Any info would be much appreciated. I’m getting nowhere with any Drs I see, and trying to see a Dr is becoming a nightmare.
Thank you in advance xx

#Fibromyalgia

2 reactions 1 comment
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#treatments #fibroflareups #Osteoarthritis #PTSD #Anxietyanddepression #Anemia #AlopeciaAreata #CFS #COPD #ChronicPain

Hi Everyone
Has anyone had infusions for the treatment of fibromyalgia? If possible I’d be interested to hear how your treatment went and if it helped at all ? Any info would be much appreciated. I’m getting nowhere with any Drs I see, and trying to see a Dr is becoming a nightmare.
Thank you in advance xx

#Fibromyalgia

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😳What Said What?!😳

When you live with a chronic health condition or disability, especially if you’re a younger looking person, young adult, or an ambulatory wheelchair user, there’s a good chance that you will have been unfortunate enough to have experienced some negative & hurtful comments from people.
There’s the classic comments that people living with Invisible Disabilities will have heard, for example “You don’t look sick.” & “It’s all in your head.”
Then there’s the unfortunate comments that people living with Mental Health conditions such as Depression & Anxiety will have heard, for example “Cheer up.” & “Stop worrying about it.”
And if you’re an Ambulatory Wheelchair User? Wow! The looks alone can be upsetting! I’ve lost count of the number of times I’ve been met by judgemental looks from people when we park our car in a Disabled Parking Space (I am a valid Blue Badge/Disabled Parking Permit holder) because I “don’t look sick/disabled” when I’m sitting in a car. These looks soon change when these people see my wheelchair but by then I’ve already started feeling awkward, embarrassed & like I have done something wrong when all that’s really “wrong” is that I have a neurological disorder which causes debilitating symptoms. It may be a brief moment of prejudice but that is still a brief moment too long in my books. It’s so important that we continue to raise awareness of the various chronic conditions & disabilities because it’s only through making people more aware these issues that change can happen & hopefully people with disabilities & chronic illnesses won’t have to deal with such rude, inappropriate & often upsetting remarks. In the meantime, when we heard comments that are hurtful or prejudice looks, we need to do our best not to let these remarks cause us any further damage or embarrassment – which is something that I definitely still struggle with a lot.
Stay strong, stay Mighty & by the best ‘you’ that you can be!
🧡💙💜💝
#ChronicIllness #ChronicPain #MentalHealth #Anxiety #Arthritis #BackPain #ChronicFatigue #ChronicFatigueSyndrome #FunctionalNeurologicalDisorder #ChronicDailyHeadache #ChronicLungDisease #Disability #ChronicObstructivePulmonaryDisease #ComplexRegionalPainSyndrome #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #Lupus #Fibromyalgia #Grief #ADHD #AnorexiaNervosa #Endometriosis #MightyTogether #MightMinute

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135 reactions 46 comments
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Sharing

I was telling my daughter-in-law the other day about one summer we had some bad storms and we'd lost power for nearly a week. By day four I was so tired of eating out of a cooler and no hot food. I got out my turkey roaster and added everything needed for a good stew. Loaded it up into my van carefully as well as the bag of charcoal and headed to a neighborhood park a couple miles away. Once there I realized I wouldn't have enough charcoal. Looking around I thought, no big deal since there were lots of smaller branches down. I got the coals soaking up lighter fluid while I started gathering up sticks and small enough branches I could break smaller by the grill I was using. Lit the grill and once the fire burned down slowly began adding some of the sticks. Adding sticks every so often so the temperature would stay even. After awhile I began to smell the heavenly scent of cooking food again. One of the few children playing on the playground equipment asked me what I was doing. I told them the storm knocked out my power and I was tired of sandwiches so I'm cooking stew on the grill. He looked at me funny and said, I thought burgers and hot dogs cooked on a grill. But that smells good. Knowing I wouldn't be able to keep leftovers and my son and I wouldn't be able to eat it all, I asked the boy if the power took there electricity too. When he said yes I told him to go home and tell his momma what I'm doing. That if they want a hot meal to bring their bowls and I have plenty. I dished my son and I bowls I'd brought that had locking lids and wrapped those in foil to help keep it hot hopefully until I made it home. He brought his mom and two siblings back with him each carrying a bowl. His mom asks me, are you sure you have plenty. I replied, yes maam,it's just my son and i. I have more than enough because I can't make a good stew for only us two. So as I filled their bowls their mother insisted they thank me. When I filled hers she gave her thanks and home they went. No sooner had they gone than another woman walked over and sheepishly asked if I might have enough of what I'd given the others. In her hands she had a stack of four plastic bowls. I assured her I had enough. Then she looks around at the debris from the storm shaking her head. Tells me she'd never thought or heard of anyone cooking a hearty stew on a grill before. But she's very grateful I did and was willing to share. Just sorry her husband was missing out on a hot meal. I told her to just take her bowls back home and bring a pan big enough to hold the rest. I had plenty for my son and I. When her husband got home she could warm his up on the grill. I'm just glad that I was able to help others have a hot meal as well.

Please add times when any of you have helped neighbors that hadn't been planned. I think it helps keep a positive mindset hearing about good things. #MentalHealth #ChronicPain #Addiction #PTSD #EhlersDanlosSyndrome #ChronicObstructivePulmonaryDisease

16 reactions 2 comments
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New to this group

I have an autoimmune system, with ulcerative colitis flares, Hashimotos disease, Fibromyalgia and chronic fatigue syndrome. COPD. I have 3 active viruses and Ebstein Barr is the heavy culprit. I have a genetic mutation (both genes) called MTHFR factor. It took about 20 years to get diagnosed . I am 72(very young minded) and can no longer work because of the level of dysfunction, so now I am very low income and am on medicaid and food stamps. My main occupation now is catching up on the stuff that doesn't get done when I am in bed about 60% of the time. I don't ask "why me" because really "why not me"...I look at this all as my own personal venue for growth potential as a human being which usually involves 2 steps forward and 1 step back. I am trying to learn a concept called Radical Acceptance and it gives me a point of focus. I am a type A and am trying to learn that I can no longer be what I was. That I need to learn a different way and mentality...

8 reactions 4 comments
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Enough

Cornered. Hopeless. BPD has ruled and ruined any chance at life for me. My dad was an undiagnosed Borderline. I was his rage’s favorite target. My earliest memory is age 3 hiding in a closet as he rampaged so he wouldn’t find me. He did. My inheritance was an even worse case of BPD along with major depression and extreme anxiety.

I’ve been on every iteration of every psych drug since 1964. I’ve tried brain wave therapy, bio-feedback, DBT, CBT, two rounds of infusion Ketamine and TMS and I’ve been hospitalized. Nothing even dents this. The pain. The cycles of self harm. The suicidal ideation. The vibrating anxiety- racing heart - unable to catch my breath. The trembling. The psychic pain which leaves me curled under a blanket because light, sound, touch, it’s all too much.

My wife of almost 24 years has had enough. I don’t blame her. I’ve been unable to work for 23 years because of this disease and a buffet of physical illnesses. The entire burden of our finances sits with her. It’s so unfair. When we first married I was able to hold a job. That didn’t last. I’m terrified of her leaving - yet I can’t say I’d do different if our places were reversed.

My anger terrifies her, though the only person I’ve ever injured is me. My desperate crying when I dissolve into the world of my past abuse has exhausted her. She’s at her end and I don’t blame her having lived the other side because of my father.

Now I’ve been told I’m going both blind and deaf at the same time. Macular Degeneration and hearing nerve damage which hearing aids won’t help. I’m almost 70. I’m tired of fighting so many battles I’ve never had any chance to win.
#BorderlinePersonalityDisorder #Depression #Anxiety #ChronicIllness #hopeless #MentalHealth #SuicidalIdeation #ChronicPain #UlcerativeColitis #ChronicObstructivePulmonaryDisease #Blindness #Deafness #Abuse #PTSD

36 reactions 18 comments
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I’m in treatment currently for my depression. And my mom is in the neurological ICU dying after suffering the last few years from cancers and copd. Most recently broke a hip and had a stroke after her hip surgery. I’m 3000 miles away and my brothers are there with her. They continue to take every measure to keep her alive despite what that means for the quality of her life. She’s basically drowning in her lung fluids until the hospital removes the fluids. This a vicious cycle of draining and filling. I’m sad and feel like I’m on death watch by torture. (I know that sounds dramatic) but it is how it feels.

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Day After Day

Day after day, so many of us seem to have to stay in bed. It's so hard when you've been so active before. I have polyneuropathy. Some mornings I don't know if my feet and legs will take me to the bathroom. I also have Osteogenesis Imperfects, Type 2 Diabetes, COPD. When in the bed, I have my phone, magazines & books, TV remote, healthy snack orange or an individualized Jell-O. Might I mention I love Squishmallows for extra pillows. They are so soft! I don't like being stuck in bed though! Some days can really get rough, whereas I'm just really crying it seems all day.But all in all, I am a fighter and still fighting to this day. Y'all stay warm! 💜Cindy Lynn

40 reactions 9 comments
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I'm new here!

Hi, my name is Slinkyman. I'm here because my wife and I are dealing with a lot physically and mentally and I am looking for support/information/community.
#MightyTogether #Anxiety #Depression #COPD #DiabeticNeuropathy #CKD #Fibromyalgia #Arthritis #BreastCancer

10 reactions 5 comments