mgwarrior

I just posted a thought somewhere else but I thought I’d share with you guys to that one of the things that I did this week that was very uplifting was to attend a virtual dance class taught by one of the Rollettes.

I definitely did not get all of the moves during the class but I move pretty slowly and a week in a lot of areas. Fortunately she made a video with the step-by-step moves that I was able to work with throughout the week. I even recorded it on one of my apps that allowed me to see her and myself at the same time of course not nearly as good as the instructor but I got it down and it was definitely a great work out throughout the week. #mgwarrior #MyastheniaGravis #EhlersDanlosSyndrome #EhlersDanlosSociety #ehlersdanlosawareness

A recent blog article asked me what it is like living with disabilities. I thought this was a very loaded question and had some difficulties how to start my response. it ended up being way longer than expected. Fortunately, they saw the value in it, and turned an advocate spotlight into a blog post!

www.christopherreeve.org/blog/daily-dose/deborah-vick

#rarediseasewarriors #InvisibleDisability #ChronicPain #Dysautonomia #mgstrong #mgwarrior #EDSAwareness

I was able to leave behind the idea that I would ever be able to live free of the medications that keep me alive. I truly felt, by changing my lifestyle and eating , it would be enough. Now, I do all I can in a day. Sometimes it is a 5 minute something and its ok sometimes I get most of the day. My 4 children and man of the year husband give me love and understanding that allow me to accept the unacceptable, and take my meds
#CheckInWithMe #mgwarrior #FibromyalgiaSucks