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When your sick and tired of being sick and tired

#Fibromyalgia #Fatigue #Pain #BackPain #ChronicFatigue #ChronicIllness #suffering #CognitivelyDisabled #Pyhsicallydisabled #FibromyalgiaSucks

We are so sick and tired of being sick and tired. Not having energy to do life. Not haveing the ability to do life. Living codependent and not independent. We are so frustrated sad fed up miserable we are not able to do what others do. In some cases IT is a blessing you have no 9 to 5 cause you can’t work. You have no significant responsibilities cause your not reliable. You have no commute or co-workers to deal with. An ungrateful supervisor or boss to report to. On the flip side you can’t even handle basic vehicle maintenance cause you can’t be outside in the cold or you get a chill. Further you are not able to drive anywhere anyway cause the stress of driving and travel on your body causes severe fatigue pain and you don’t enjoy yourself being out in public.

At this point if IT were possibly you would like to work remotely like built websites or programming. Yet you have such brain fog or you are not able to focus and you have several fatigue issues with mental focus. So you can really just barely concentrate on your needs to do to keep you alive. You even forgot to pay you bills or get back to that email. In fact you don’t even know what day IT is until you look are your phone.

Then you go to mindfulness classes or CBT sessions and chronic pain centres where they tell you you can get some relief if you change you thinking or if you meditate 🧘‍♀️ and or do stretches and physiotherapy movements. This is a journey to mental health and body recovery ❤️‍🩹. You continue to do so and when you go and do you feel good yet 1 to 2 hour sessions drain you drastically because your done for the rest of the day.

Try going to watch your children at a sporting event for a few hours only. To spend the rest of the day on the couch with a heating pad.

We know there is someone out there that this is speaking to. We know you are going through this too.

HSP Highly Sensitive People are so sensitive that environmental and social interactions completely drain us. We would love to go and go like the rest of the world. However if your a HSP you have to hibernate and recharge before going out again.

Please don’t give up there must be a cure there must be a way we can get better ❤️‍🩹.

Once able to work 60 hours a week. Once able to work look after children and house with a partner. Now just barely managing us. There must be a way. Heck they are transplanting new nerves into people who are stuck in a wheelchair so they can walk. You can’t tell me that IT is not possible to cure this cause world governments came up with a vaccine 💉 for Covid there must be a way to correct Fibromyalgia.

So if your still reading this and IT hits home cause someone you know has this Chronic Condition. Please please tell them do not give up.

You matter you are important you are worthy you are not alone you are valued and loved.

Please write ✍️ please post there are so many people who suffer from this.

Please keep the faith God can heal anything.

Please help our community so we can help others with this condition.


16 reactions 2 comments

GMoring Prayer


Just want to thank you for everything. Every single little and big thing you have done. Thank you for being the great God you are.

Amen 🙏🏾

#godsbeenbetterthangood #GoodDay #Fibromyalgia #FibromyalgiaSucks

6 reactions 1 comment

Deuteronomy 31:6

"Be strong and courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave you or forsake you."

#hewillnotleaveyouorforsakeyou #FibromyalgiaSucks #Fibromyalgia #alwayspray

6 reactions

GM Prayer

Good Morning God,

Last night was pretty rough, but I'm grateful to wake up to see another beautiful but rainy day. It took me a minute to get it of bed because the pains were so very intense.

Be with those who go through physical and mental pain. We will keep going, we have a purpose we are here for so many reasons. Love you always!


#betterdaysarecoming #FibromyalgiaSucks #Fibromyalgia #Depression

15 reactions 3 comments


I have fibromyalgia since I had gastric bypass surgery. So it's been 9yrs. When I hurt I'm told I'm either looking for attention or just plain old lying about it. I've told them to read up on it. My house is a mess, but I get late starts because hubby works at night & he needs sleep. But he & others at least in his family don't read what I have to understand what I go through. My sister & family understand because others have what I have so I know I get some from the mothers side. How do I make the married side to understand. I can't take any meds that have nsaids because of the surgery. Arthritis Dr seems to not care the PT she recommended was rude as heck I'm not looking for pain pills, just want I need is more pills, but something to help control the fibromyalgia. I do have other problems but again the same thing as before just looking for attention, yeah right. My sister makes me cry because she tells people that I am the strongest woman she knows because I try to make others smile even when I don't feel good. Those positive words lift me up more than she knows. Thank you for reading this.
#ChronicIllness #FibromyalgiaSucks #anxitysucks #bipolarsucks


Today I cried all the way through my doctor appointment. #FibromyalgiaSucks

#Fibromyalgia #Doctoranxiety . Uggh. I wasted $178 today… Cried my way through a new patient visit with a pain specialist. Well sobbed actually. The poor woman must think I’m truly nuts. Why????!!!! I just cannot keep it together. So frustrated. I needed to get some real help all I got was yet another referral to PT, a request for a cervical mri and a appointment for a month. It just drags on and on. Why won’t anyone listen.


Newly Diagnosed with Fbromyalgia

I was finally given a diagnosis! “Chronic pain syndrome, fibromyalgia, and hyper mobility.” After all this time doing tests and scans and all sorts of things and being told everything is normal I have at least something. It sucks that it’s exciting to even have a title for everything going on. I’m really struggling with knowing this is a lifetime thing and I most likely will never NOT be in pain. Like this is it? Plus I’m on my last year of insurance from my parents then I have to figure out how to pay for treatment and meds, physical therapy, therapists. I was given referrals for a chiropractor, acupuncture, massage, chronic pain focused therapist, and an evaluation from someone who deals with rehab and functionality. Hopefully we can figure out a treatment plan and start getting me into a routine with things that actually help.

This plus depression, anxiety, BPD, PTSD, and whatever else it is at this point?? This is hard to take in already. Covid has been extremely difficult for me. Living alone is great normally but trash in the panorama. What we just don’t wear masks anymore?? I’m stressed. Thankfully I have my cat Mia to keep me company and make lots of noise. She has a very much to say!

Any tips for coping strategies and moving forward? I would love some recommendations for treatments and things to try! What has helped you feel better?

- Emily

#ChronicIllness #FibromyalgiaDiagnosis #Fibromyaliga #FibromyalgiaSucks #ChronicPain #newlydiagnosed #feelingdefeated #BorderlinePersonalityDisorder #Anxiety #PTSD #COVID19 #painallday


Advice? I’m having a bad #fibroflare

My #Fibromyaliga is kicking my butt right now. I am in unbearable pain, brain fog, fatigue and neuropathy. I can’t slow down at work because I’m a nurse that works 12 hour days. Any times on what to do to keep yourself afloat? #FibroFog #Fibromyaliga #Fatigue #FibromyalgiaSucks

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#Depression #Fibromyalgia #nervepain Unbearable pain, when your body becomes a weather beacon

It is snowing again! How do I know that you ask? No it’s not by looking out my many windows, no it is because my entire body of nerves are on overload. I knew it was going to snow before it even got here. Some might say hey thats a handy trick you have or I wish I could do that. Well if they want it I’m willing to part with it.

Anyone who has chronic pain, fibromyalgia, nerve damage or any of these type of debilitating diagnoses does not want them!!

Today is a down day for me. What does that mean for me and my family that depend on me. For me it means minimal walking because I’m likely to fall and dislocate something or worse. For my family it means no hands on mom today and having my mother in law step in and help. Making sure the kids stay on track with school here at home. Letting the dog out. Me being grateful we have a smart home that does things for us by voice and timers. Fortunate enough that meals are prepared for us.

Days that I can move I love to cook dinner and do things. Make treats for the kids. Drop things off for friends if they need it. But today will not be one of those days.

I have to accept that I have limitations and I’m not “superwoman “ as my kids call me some days. Feeling depressed, lonely and in pain. This stinks, I hate bad weather. #FibromyalgiaSucks #Acceptance