Muscular Dystrophy

Create a new post for topic
Join the Conversation on
Muscular Dystrophy
2.6K people
0 stories
364 posts
About Muscular Dystrophy Show topic details
Explore Our Newsletters
What's New in Muscular Dystrophy
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Having a hard time

It was easier for me to tell my mighty friends and community that my Dr said i would pass away from my muscle disease and try to keep me going and make sure i was comfortable.

I am afraid to tell my best friend about my health condition he knows my long fight against this disease but i can't muster up the courage to call him. I know there is no one way to do this but i feel i should do it soon it's wierd not knowing how long you have but then again who wants a definitive date to stress on one day at a time and all that . Again i think posting this may sound negative because it's so real for that i apologize #MentalHealth #DegenerativeDiscDisease #Lumbarfusion #MuscularDystrophy #Depression #Anxiety #Fibromyalgia #PeripheralNeuropathy #CervicalRadiculopathy #Disability #RareDisease

(edited)
Most common user reactions 2 reactions 2 comments
Post
See full photo

Gratitude

Thank you so much my mighty friends for your support my heart is filled with gratitude for you all. I put up a post yesterday about my health and you guys gave me love and support 💙💙💙💙#MentalHealth #MuscularDystrophy #DegenerativeDiscDisease #etc

Most common user reactions 13 reactions 6 comments
Post

Dr appointment bad news

I try to stay positive you have to if you're going to survive a chronic illness at least mentally but you can't change the projectory. I already had ten spinal surgeries and last year diagnosed with a rare muscular Dystrophy caused by a genetic mutation no cure no treatment. Lately i have been experiencing severe muscle spasms and weakness in my abdominal muscles and it's affecting my breathing.

Today my Dr sat right next me rather than his usual chair and he said your going to die from this disease and all we can do is make you feel more comfortable as it happens. I knew in the back of my mind that this was true i have researched my condition until my brain was numb and the Neurologist at Cedar Sinai said there was no information on my condition and no cure but it didn't all sink in until today. I am afraid of dying before my Mom she doesn't deserve that i don't know what to tsay next#MentalHealth #RareDisease #MuscularDystrophy #Fibromyalgia #Disability #

Most common user reactionsMost common user reactions 45 reactions 22 comments
Post
See full photo

Railing flowers

Mom and i planted these flowers on the railing a couple of weeks ago. Really like the contrast between the two colors anyways just thought i would share 🙂#MentalHealth #Depression #cervicalfusion #ChronicIllness #Anxiety #RareDisease #MuscularDystrophy #Lumbarfusion #ChronicPain #Fibromyalgia #hyoeralgesia

Most common user reactionsMost common user reactions 39 reactions 13 comments
Post
See full photo

Abundance

We are having a great blooming on our patio. All three of these plants already gave out blooms in Spring and now there is a whole set of new pics of the same plants i know just we got an abundance of colors this year again thought i would share #MentalHealth #Anxiety #DegenerativeDiscDisease #cervicalfusion #Lumbarfusion #depresio n#MuscularDystrophy #Fibromyalgia #RareDisease #Disability #ChronicPain

Most common user reactionsMost common user reactions 22 reactions 13 comments
Post
See full photo

My favorite cactus

This is a picture of my San Pedro Cactus it only blooms every 7 years i have several that will flower this year very happy. I have had this San Pedro for 12 years then i propogated off this one to make more so more pictures to come. This is also known as the moon cactus because it blooms at night 🙂#MentalHealth #DegenerativeDiscDisease #MuscularDystrophy #Depression #Anxiety #RareDisease #ChronicIllness #ChronicPain #cervicalfusion #lunbarfusion

Most common user reactionsMost common user reactions 26 reactions 10 comments
Post

Exhausted

Chronic illness is taking over my life as my muscles are weak inflamed and becoming dysfunctional. Muscular Dystrophy is a cruel unrelenting disease with no cure or in my case even a treatment to slow it down.. i have hit a mental wall i feel mental defeat and i don't know what to do. I am constantly busy with healthy distractions my mom my dog and i love my music i am just tired is all. There are life threatening aspects ro my disease and i can't pass away until my mom has lived her life she is my responsibility there is no one else.

Just wanted to vent a little helps me feel less afraid of what lies ahead.#MentalHealth #DegenerativeDiscDisease #MuscularDystrophy #ChronicPain #RareDisease #Fibromyalgia #Disability

(edited)
Most common user reactionsMost common user reactions 13 reactions 9 comments
Post
See full photo

My best friend

Things are going fantastic with my 8 month old rescue puppy Magnus. He absolutely loves his new house exploring our couple of acres. Mom and Magnus are forming a bond also she is totally comfortable now with this dog and our little family is now complete again.🙂☀️#MentalHealth #Fibromyalgia #DegenerativeDiscDisease #MuscularDystrophy #Depression

(edited)
Most common user reactions 23 reactions 9 comments
Post
See full photo

Im so happy.

Most of you know my saga with rescue dogs well yesterday i picked up a fantastic Black Lab about 6 months old and im very happy. The emotional support that these animals are to meis unparalleled. Chronic pain and illness take a back seat when i am with my special dog. The isolation and loneliness doesn't matter as long as i have my buddy Magnus #MentalHealth #ChronicPain #MuscularDystrophy #Anxiety #DegenerativeDiscDisease #etc

Most common user reactionsMost common user reactions 12 reactions 6 comments