Muscular Dystrophy

I liv#e in a small town in the Sierra's and i am fortunate to have a lot of beauty surrounding me but as many of you know rural areas have limited resources. I feel fortunate to have a Dr so close to my house and today during my office visit i asked to get braces for my arms because the muscular Dystrophy is getting quite taxing on my arms and i already wear full leg braces KAFO. He told me that bigger things will start to happen eventually that will be more important such as breathing, swallowing, and bodily functions. He said such a brace for your arm would be cumbersome and ineffective for my condition since all my muscle groups are involved.

.You may think where is the gratitude? Its in the Dr its in the office staff there rhat treat me so well. Most of all that Dr gave it to me straight and practical he's been my PCP for 10 years and i trust everything he says. Don't know when i will be that bad but i don't sit around waiting for it i do light yard work walk when i can plant stuff in the garden keep it moving you don't know when the ride stops.🙂☀️chronicpain#Anxiety #MuscularDystrophy #RareDisease #DegenerativeDiscDisease #CervicalRadiculopathy #Hyperalgesia #MajorDepressiveDisorder

Hello im new to this group i accidentally posted on another group I'm in # in the wrong place. Long story short i have fibromyalgia just wanted to join another group for insight 🙂#Fibromyalgia #ChronicPain #DegenerativeDiscDisease #PeripheralNeuropathy #MuscularDystrophy #Disability

I have spent some time on the mighty but always wanted to comment on this page. I have severe pain from Hyper Algesia, peripheral neuropathy and fibromyalgia. The root cause of these ailments over eight spinal surgeries and a diagnosis last year with progressive myosinopathy a rare disease that is slowly taking out all my muscle with no cure or treatment.

The fibromyalgia is all over my body all day non stop i can't stand the feel of my own hand on my body this saga has been going on for years just thought i would join another group #Fibromyalgia #DegenerativeDiscDisease #MuscularDystrophy #RareDisease #Depression #Anxiety #CervicalRadiculopathy #Disability

I was unable to home the rescue that bit my Mom and the adoption agency initially wanted me to train the Aggression out of the dog and crate it. The dog had already been through training according to them but they care about the dog more than my safety because retraining a dog who has bitten at a level Five is dangerous even for experienced handlers. They sent out several emails asking if anyone would take the dog even supposed pros and no one responded. I am going today to put the dog down for the safety of others because he has completely bonded with me which makes the whole thing harder. I love dogs but i love my Mom even more and she can't live in trauma while the dog is here. I believe some dog owners are more animal than human.😔#MentalHealth #OCD #DegenerativeDiscDisease #MuscularDystrophy #Fibromyalgia

Today i reflect on the amazing people on this forum thank you mighties for lending me your ears through triumphs and fears.💙 Thought i would share some pics of tge flowers on the patio because like them the mighty brings me peace 🙂☀️#Depression #MuscularDystrophy #RareDisease #Anxiety #Fibromyalgia #alodynia #Hyperalgesia #DegenerativeDiscDisease

Just wanted to share some pics my rescue and i have really bonded within 48hrs. Im so excited to give him the loving home he deserves and my elderly mom just adores him. I posted yesterday i know but i forgot to mention his name andsometimes you just want to share the good in life 🙂💙#MuscularDystrophy #ChronicPain #ChronicIllness #Rare disease #Depression #Fibromyalgia #Disability #Anxiety

I know some of you know i lost my Black Lab but i have some exciting news i adopted a rescue dog a Dutch Shepherd. He was abused with shock therapy and an owner who dropped him off at a high kill rate shelter in Orange county when the animal barked too much he would turn up the shock voltage. The dog was luckily taken to a foster house and then put up for adoption. I know the pain of life but when someone abuses an animal in this manner my heart breaks so i saved a life and enriched ten fold.#ChronicPain #MuscularDystrophy #RareDisease ###Fibromyalgia #Depression #Disability #Anxiety

Needed some uplifting distractions so I noticed our garden has begun to pop early excuse the pun. California poppies, Lavender Splash (probably last year it's a bit unruly and Tuscan Blue Rosemary with another variety of crawling Rosemary can't remember the name. Just thought I'd share to hopefully brighten someone's day 🙂💙#Anxiety #Depression #RareDisease #MuscularDystrophy #Fibromyalgia #Disability #ObsessiveCompulsiveDisorder #MentalHealth #DegenerativeDiscDisease

He was 6 weeks old when I got him so I was his dad not just an owner and I loved him dearly. My heart is broken the ray of sunshine that saved my soul in so many ways has passed away. We were just going to the vet for a checkup but that morning he was already acting strange panting uncomfortably and on the way there he was foaming at the mouth I had a bad feeling that today he might not make it. When I got to the vet they had to pull him out of my truck on a stretcher and he went inside and I waited until they called me in. The vet said your dog is in major distress and the prognosis isn't good so with a very heavy heart I made the choice to have him put to sleep he was 14 trying out another cancer medication would only hurt the dog.

So I write here to my dog papi loves you Mayak and you were the best companion I've ever had. Now you can play with your brother Moose in Heaven 💙❤️#MentalHealth #MuscleDysfunction #RareDisease #Depression #MuscularDystrophy #DegenerativeDiscDisease