Thanks in part to my Mighty Community I went ahead and gave my Dr this gift of old Apocathery bottles and he loved it. He even showed me pictures of where he was going to put the display making another shelf for it. Anyways just wanted to thank you guys for your input 🙂🙂💙💙#MentalHealth #MuscularDystrophy #MuscleDysfunction #Fibromyalgia #Depression #Anxiety
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We grew so many plants over the years on the patio they spread seeds. In these little cracks you can see the flowers. Also a picture of my San Pedro cactus pre bloom you can see what looks like a spider nest on the side. More to come as they will bloom at night in September.#MentalHealth #MuscularDystrophy #RareDisease #ChronicPain #Depression
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Like many people we had a pretty hot summer so I don't have any new plants to share so I thought of making a collage of sunflowers. I hope everyone has a great day 🙂#MentalHealth #MuscularDystrophy #RareDisease #etc
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The elasticity of the human brain is really put to the test when you have a chronic illness with no cure or treatment. The first couple of years i was handling it but that goes up and down you are being put through the test as all this pain and immobility takes down your spirit. You learn to accept your limitations and you move on until the next symptom comes up. Im just tired of playing the mind game of fending off the obvious like it's going to be ok when you know its not.
What keeps me going is i taking care of my 86yr old mom and i have a wonderful dog.I also live in a beautiful mountain community as natire brings me joy.#MentalHealth #MuscularDystrophy #DegenerativeDiscDisease #RareDisease #Depression #Fibromyalgia
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Just a snap shot of the San Pedro cactus blooms over the years. Its almost prehistoric looking as you can see the bloom pod grow has protecting scales before they bloom. Starts off as a small nub with hair in it on the side or top of the cactus. Wanted to share some positive pictures something I enjoy.#MentalHealth #MuscularDystrophy #RareDisease #DegenerativeDiscDisease #ChronicPain #Anxiety #Fibromyalgia #PeripheralNeuropathy #CervicalRadiculopathy #Disability #Diabetes
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Just having a great time with my dog Magnus he really is a bright star in my world. He has totally bonded with Mom also very affectionate. The beginning was a lot of work but he is listening better after all he is only 9 months old now.
I have been having a really rough time with my new symptoms the abdominal muscle spasms are all day. I wake up in great pain every morning that's the reality of muscular dystrophy no matter how long you rest it's back to square one. This is where my little buddy Magnus comes in and is so happy to see me every morning. He is so much fun with his toys and loves to play fetch. He is truly my best defense against rough times and he ha captured my heart 💙💙#MentalHealth #DegenerativeDiscDisease #Anxiety #Depression #RareDisease #Fibromyalgia #PeripheralNeuropathy #FootDrop #facialneuropathy #MuscularDystrophy #ChronicPain #ChronicIllness
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Awesome went to a fundraiser at church today for a boy who has muscular dystrophy. It went well. Amen God is good. Unfortunately, I had to let one of my new caregivers go yesterday because I had to do maximum assistance with transfers and my mom and physical therapist don’t like that because if I force the muscles in my leg and knees to work they get really tired, tight, sore, and jumpy.
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I posted this once and took it down because i felt it may be too negative. I am having problems getting the courage to tell my friend that my Dr said i would die from the complications of my muscular Dystrophy. I don't want to get emotional when i call him because now i have zeroed in on the people that im going to miss when im gone. I know there is no one answer to this task but posting it may make me feel better i apologize for the content. #MentalHealth #MuscularDystrophy #etc
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Thank you so much my mighty friends for your support my heart is filled with gratitude for you all. I put up a post yesterday about my health and you guys gave me love and support 💙💙💙💙#MentalHealth #MuscularDystrophy #DegenerativeDiscDisease #etc
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I try to stay positive you have to if you're going to survive a chronic illness at least mentally but you can't change the projectory. I already had ten spinal surgeries and last year diagnosed with a rare muscular Dystrophy caused by a genetic mutation no cure no treatment. Lately i have been experiencing severe muscle spasms and weakness in my abdominal muscles and it's affecting my breathing.
Today my Dr sat right next me rather than his usual chair and he said your going to die from this disease and all we can do is make you feel more comfortable as it happens. I knew in the back of my mind that this was true i have researched my condition until my brain was numb and the Neurologist at Cedar Sinai said there was no information on my condition and no cure but it didn't all sink in until today. I am afraid of dying before my Mom she doesn't deserve that i don't know what to tsay next#MentalHealth #RareDisease #MuscularDystrophy #Fibromyalgia #Disability #
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