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I Need Some Positive Words ... Feeling a little down ...

What is something positive that you could share with a chick that needs to feel a little more upbeat? I want to get out of this funk so much. Anything POSITIVE or encouraging or motivating is welcome. Or if you need to vent, that's okay, too!

#Anxiety #Depression #BipolarDisorder #Bipolar1Disorder #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #Narcolepsy #prolactinoma #sibo #smallintestine bacteriaovergrowthsibo #RaynaudsPhenomenon #LeukocytoclasticVasculitis
#SpinalStenosis #Lumbarfusion #SpinalFusion

30 comments
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Anyone with #PosturalOrthostaticTachycardiaSyndrome ran a fever 🤒 when water in a shower has been run over your head?

Do any of you #Potsie s run a fever when you take a shower? Spike in heartrate? Drop in blood pressure? You think that you may pass out? But, if you take a bath it isn't as bad, but you find your hygiene suffering? I find that even taking a bath, I have to cover my head with water. What do you do to get through this? I'm on medication, but I can't go on a higher dose cuz of side effects. You know how people feel so "refreshed" and "revitalized" after a shower; that's not me. I feel such a itchy and sticky feeling - like I had just gotten back from the gym (and I don't use hot water - so it's not dry skin) - does anyone else have this? or my heartrate goes even higher afterwards and during. It's not when I get my body wet, just my head. Or I will run a temperature about 100°F for no other reason. And no hot water. Does this happen to you, too? I absolutely hate the way that a shower makes me feel in regards to physical symptoms. I hate that I can't take a shower before a doctor's appointment, because then I'd run a fever when I got there and they'd make me get a covid test (which would normally make sense - so I just don't take a chance).

So, who else with #PosturalOrthostaticTachycardiaSyndrome or any other #ChronicIllness has a terrible reaction to water being ran over top your head? Horrible, huh?!

#Anxiety #Depression #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion #Potsie #BipolarDisorder #Bipolar1Disorder

6 comments
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Is anyone else scared to sleep with the lights out?

My sleep doctor has a fit everytime that we discuss this. But, trauma has caused me to need to sleep with the lights on. Does anyone else have this problem?Even a lamp won't do. I feel like the light is a warm blanket. Does anyone have any suggestions for getting through this? My sleep hygiene is horrible 😫.

#Anxiety #Depression #BipolarDisorder #PTSD #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #Undiagnosed #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #Upallnight #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion

49 comments
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What's your FAVORITE comfort beverage? Mine is Chicory Coffee ☕️!!!!!

So pull up a mug/glass/cup and chill with the Shanster!!!! Allow yourself to take some comfort in yourself and enjoy a special warm or cold beverage that meets your fancy!!!! 😃😃😃😃😃

#Anxiety #Depression #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #Undiagnosed #COVID19 #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #funactivities #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion #Comfort #warmth #Love #caring

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Someone Share Something HAPPY with me cuz I am feeling a little Down

Hi All! I am relatively new here and I need some motivation and happy thoughts sent my way! One of my friends ditched me the other day and told me that, I was annoying and hasn't spoken to me since. I am taking this hard. I want to be positive and am hoping that you guys could tell me about all the happy things going on with you ❤️!!!! Happy and fun hobbies! Anything that just makes you smile 😃! Maybe music 🎶? Anything really? I just need some cheerful words!

#Anxiety #Depression #Bipolar1Disorder #BipolarDisorder #PsoriaticArthritis #Narcolepsy #Gastroparesis #small intestine bacteria overgrowth sibo #sibo #sbbo #ObsessiveCompulsiveDisorder #Undiagnosed #COVID19 #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #funactivities #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion

51 comments
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One Year Opioid Free!!!!!🥳💯🤘💥 #Recovery #ChronicPain

There's so much that I want to say about the last year. But, clearly the main thing on my mind is that I made it with no opioids, my friends!!!!! One whole year with no opioids! I have suffered from some horrible nerve pain, too.  May it have come from severe nerve pain or surgery pain; over and over I did NOT take anything but Tylenol or Ibuprofen. It was a tough year with many nights in tears, calling dear friends to help me cope. I made it through! I had been on high doses of opioids for 15 years, ever since I was diagnosed with #PsoriaticArthritis and then fell down a flight of stairs. I actually fell down a couple flights of stairs during this time and later broke my ankle, then tore a tendon in my ankle. I have been through a lot and I am just waiting to see what will be thrown at me next!!!!! I know that I can conquer 💪 it with lots of love and prayers ❤🙏💖💕!!!!!!

I have to say that the clarity is amazing and the world 🌎 is becoming more and more beautiful everyday ❤! I am loving thinking so clearly, again!
#Anxiety #Depression #ChronicIllness #AnkylosingSpondylitis #Narcolepsy #coping #LivingWithPOTS #PosturalOrthostaticTachycardiaSyndrome #Bipolar1Disorder #PsoriaticArthritis #ChronicPain #Pelvicpain #Migraine #Medication #PudendalNeuralgia #Love #Endometriosis #PolycysticOvarySyndrome #Recovery #Vasculitis #Stress #pelvic Dyssynergia #Lumbarfusion #SpinalStenosis #SpinalFusion #Happiness

29 comments
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Hey all.

I’ve had a fibro diagnosis for 11 years. It’s been tossed around that I have myofascial pain syndrome as well. Recently I’ve started PT for the millionth time and this time seems more hopeful to be honest. We’ve tried dry needling this time and it sent me into one of the worst flares in a while. I haven’t had normal range of motion in two weeks and it cracks every time I move it. Super tight muscles, huge hard as rock knots and headaches all day everyday. I have a theracane and use hot and cold. Literally nothing works. No relief what so ever. I’ve had trigger point injections multiple times as well. Does it ever get better? I’m a very motivated patient and will do anything to feel better. I’ve done meds, diets, PT, swimming, exercising, stretching, trigger point injections, cortisone shots. Literally everything I can think of. Am I doomed? I hate life. I have three children that are high needs. My husband can’t tough me without being in pain. I’m tired of pain medication. Eventually trying medical cannabis soon. Any input or advice appreciated. #MyofascialPainSyndrome #Fibromyaliga #triggerpoints #Lumbarfusion #CarAccident #MedicalCannabis #PainManagement

5 comments
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New Year's Can Be Hard For Many People #Anxiety #Depression #Recovery

It's a New Year and a time that is hardest for some people. I understand this, because for many years this time of year was the very worst for me. November, December, and January were my 3 hardest months of the year. 15 years ago this time of year, I was declared "disabled". It was heart shattering, because I had just spent the previous 4 years busting my butt in college studying Mathematics and Accounting. I wanted to be an Actuary and work for a big insurance company.
I have finally gotten past that lost dream and have semi moved on. Now I focus, not on the future (like before), but the present. I try to enjoy every little moment with a friend or dear family member. It's now about the present day and making it the very best that I can. Some days are better than others, but today I stand before you, saying that I am a stronger, more vibrant person than ever. I have a lot to give society and so do you, friend. Whether it's just a caring smile to a neighbor or just taking care of yourself by eating healthy. Or heck, if it's treating yourself to an icecream sundae. You are a valuable member of society. No matter how small you may feel, you are not. You are way more important than you can ever anticipate. (A little self talk, here!). Anyway, it's been 7 months that I have been Opioid free!!!!! My first New Year not on any pain medication. Not even Ibuprofen or Tylenol. I don't know how I have survived, but I rang in the New Year with a completely clear head for once. I never abused my medication, but that didn't bring back any lost clarity. Even at prescribed levels, I was always in a sort of a haze. But, like I said before, I stand before you to reclaim my clarity on my life. I love seeing life for what it truly is. The good, the bad, and the ugly, but mostly the beautiful!!!!!
#Anxiety #Depression #ChronicIllness #AnkylosingSpondylitis #Narcolepsy #LivingWithPOTS #PosturalOrthostaticTachycardiaSyndrome #Bipolar1Disorder #PsoriaticArthritis #ChronicPain #Migraine #Endometriosis #Lumbarfusion #SpinalStenosis #SpinalFusion #prolactinoma #Love #Medication #Recovery #PolycysticOvarySyndrome #PudendalNeuralgia #Undiagnosed #IrritableBowelSyndromeIBS #GastroesophagealRefluxDisease #Gastroparesis

10 comments