MysteriousIllness

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A cheerful hello from inside the West Coast wildfire smoke!

Hello, you extraordinary humans. Yes, you! Thank you for bringing this community your candor, truths, trust, kindness, generosity, support, and humor. You make a difference (yes, you!).

I found this community of truly beautiful people (yes, you!) through Sarah Ramey’s remarkable memoir, cheekily titled The Lady’s Handbook for Her Mysterious Illness. I could write a dissertation about it, with love in every sentence. Have you read it?

So, hello from the US West Coast, from under a thick layer of toxic wildfire smoke. I took this two days ago when the air was better. Look at the beautiful, subdued amber sunlight! So gross. And please enjoy my lovely accessories! N-95 mask for the smoke particulate, tactical glasses, work gloves (they go straight in the wash). And my Pandemic Bangs, which I foolishly cut myself. I never learn. I’m considering cutting the rest of my hair, too. What could go wrong? (Don’t answer that.)

#ChronicIllness #MyalgicEncephalomyelitis #Fibromyalgia #ChronicPain #TraumaticBrainInjury #Disability #Insomnia #HighlysensitivePerson #MightyBookClub #COVID19 #MysteriousIllness #DoubleVision #SeverelyDryEyes #PTSD #PandemicHair

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Tim to un-thaw.

It’s not because you remain nameless that you are not real. The irony of being frozen in a fire burning pain.
#ChronicPain
#MysteriousIllness