Traumatic Brain Injury

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WTF

June 1993 I suffered a traumatic brain injury complete with a helicopter ride to the hospital unconscious and unable to enjoy the ride out of the mountain to Denver.
June 2024 I suffered a stroke and get a surgical procedure in three week to clean out my right carotid artery at which time the Dr. will decide of the left side carotid needs cleaned out as well at a later date. His current guess as of this morning it will not need to be done, lucky me. So now I am seeing how this app works. At least I will be back to Sky Ridge Hospital which has tasty #BreakfastBurritos but not to the point of being a fair trade off. I like to #Workout an hour a day to avoid a big belly and am at least winning that battle.

What did I do to deserve this second dose of OT, PT, AND Speech therapies? They even said they took my drivers license again, oh joy… #OccupationalTherapy #PhysicalTherapy #SpeechTherapy #BrainInjury #Stroke #sucks I am not bitter, I just want to know why me again
Peace
Brownie points to the person who knows where the app screenshot came from

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I got diagnosed!

After 5 years, too many doctors to count, I got diagnosed! Verdict: Slipping rib syndrome, cranio cervical instability (CCI), and TBI. No I don't have EDS, all mine is from trauma.

Had surgery to fix my ribs (Hanson procedure, surgeon couldn't tell until they did surgery to look for it), they say 4 more months until I can start physical therapy.

I did stem cell injections for my neck, should be 6 months then go again and/or start physical therapy. Most likely I'll have life long problems.

I also got TBI officially diagnosed, but I knew about that one, but nobody believed me.

My CCI was diagnosed by digital motion xray. My CCI symptoms are: intense fatigue, muscle spasms, vertigo, dizziness, balance, proprioception issues, migrains, binocular vision disorders, nausea, body temperature control, swollowing etc.

My rib symptoms were chest pain, balance issues, shortness of breath, nausea.

Things that help me are: vitamin injections particularly B, D and alpha lipoic acid, heat/ice, weighted blankets/weighted neck thing, sunglasses, emgality (migrain med), sleeping in lawn chair, dry needling, lower teeth dental splint, special glasses matched to my dental splint, special thoracic physical therapy.

Whew. Trying to swap head space from fight for my life convincing doctors I wasn't depressed or crazy to being diagnosed and working on very real disabeling diagnosis. And other then sinking feeling real shoe hasn't dropped, very relieved this hell has a name. Very happy to have the labels. People don't get why I am so happy with this but I am. 💕 Stay strong mighties!

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Post-traumatic stress disorder and sleep

#Insomnia #CBT #PTSD

Post-Traumatic Stress Disorder(PTSD) is characterized by a chronically heightened state of arousal after a traumatic event. PTSD often gets worse over time or develops insidiously, so that people may not realize they have it until many months after the traumatic event. The disease is more common in women, though it can happen to anybody. An estimated seven people out of 100 will experience PTSD during their lifetime.

PTSD and sleep have a complex relationship. Though sleep problems accompany many mental health conditions, sleep problems in PTSD are actually considered part of the disorder. Among the symptoms used to diagnose PTSD, two are directly related to sleep: hyperarousal and intrusion, which can manifest as insomnia and nightmares. Researchers are still trying to understand whether sleep problems precede PTSD or whether PTSD causes sleep problems.

Individuals with PTSD frequently have trouble falling asleep and awaken easily, often waking up many times throughout the night. Many people with PTSD also have nightmares. These issues result in disrupted, non-refreshing sleep.

Those with chronic pain, substance abuse, traumatic brain injury, depression or other medical problems face an additional barrier to getting quality sleep. Certain sleep medications also interfere with REM sleep, which is the sleep stage during which we dream and an important sleep stage for dealing with traumatic memories.

You can refer to this:

resiliens.com/resilify/program/cognitive-behavioral-therapy-...

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A post of gratitude…

I’m grateful for finding groups and sites such as this one. Grateful to find people that understand what it’s like to be in that constant internal conflict between under and overstimulated. I am an HSP/HSS, amongst other things, and I continually find MySelf trying to steady between Being “not enough” and “too much” for the world around Me, while seeking My perfect balance internally.

I, like most here, have a great many interests, and feelings about those interests. Every last one of them. So many feelings. I’m grateful to find space with others here who also aspire to find their perfect blend of balance. Looking forward to interacting more with everyone.

May all be well.

May all be safe.

May all be free from suffering and harm.

May all be joyFull and at ease.

🙏🏽✨

#highlysensitveperson #Anxiety #AspergersSyndrome #AutismSpectrumDisorder #ADHD #audhd #highsensationseeker #PostTraumaticStressDisorder #TransientIschemicAttack #ComplexPosttraumaticStressDisorder #EhlersDanlosSyndrome #Addiction #PanicAttacks #Neurodiversity #Grief #Endometriosis #Arthritis #EmptySellaSyndrome #TraumaticBrainInjury #Trauma

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I’m new here!

Hi, my name is bella22722.

#MightyTogether #Depression . I have been on antidepressants for 50 years. I am so codependent that I am tired of life. I am overwhelmed & can't focus long enough to complete any project I start. My son, who is 43, has a TBI from an accident 4 years aworriedgo. He received a settlement 4 months ago which was supposed to last the rest of his life. It is gone after 4 months. I am worried all the time. I am a Christian & I tried to turn my son's life over to God, but I just can't stop crying which is so unlike me. I am trying to find help, but I am not having any luck.

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My brain injury kept giving

What can I say? It took me 4 days to be brave enough to able to share
recent life experience here in Lone Tree, Colorado. My life took a serious turn for the worse and I’m not having any fun. Wishing I could be outside and play-but no. Instead I have heavy track marks on my arms from a few billion ivs.
I went head to head with a #Stroke but I’m too stubborn to let it win when it teamed up with my #TBI to double my fun. The experience damn near killed me. Good thing I have a great night nurse from Tibet that has a my back totally #grateful for her awesome care and a breakfast burrito with green chili to get and keep me fired up.
Getting tired waiting for my sleep medication to be delivered tonight after 3 to 6hours of butt kicking therapy a day. This morning I had to stand on a ball that looks like the planet Saturn to balance on while playing catch with a beach ball without crashing. Kinda impressed my 63 year old brain but don’t tell my PT, ST. and Ot team or they will up the ante. I need video of this stupid human trick to show off my lost talent. Have a great day.

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My brain injury kept giving

What can I say? It took me 4 days to be brave enough to able to share
recent life experience here in Lone Tree, Colorado. My life took a serious turn for the worse and I’m not having any fun. Wishing I could be outside and play-but no. Instead I have heavy track marks on my arms from a few billion ivs.
I went head to head with a #Stroke but I’m too stubborn to let it win when it teamed up with my #TBI to double my fun. The experience damn near killed me. Good thing I have a great night nurse from Tibet that has a my back totally #grateful for her awesome care and a breakfast burrito with green chili to get and keep me fired up.
Getting tired waiting for my sleep medication to be delivered tonight after 3 to 6hours of butt kicking therapy a day. This morning I had to stand on a ball that looks like the planet Saturn to balance on while playing catch with a beach ball without crashing. Kinda impressed my 63 year old brain but don’t tell my PT, ST. and Ot team or they will up the ante. I need video of this stupid human trick to show off my lost talent. Have a great day.

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I'm new here!

Hi, my name is JoyRussell0318. I've been diagnosed with MS recently. My Brain MRI showed this disease in 2018 but hospital didn't refer me to a neurologist. I was hit in the head by a parking garage arm and that MRI in 2024 is how I discovered my disease as I was being treated for TBI. I'm already feeling symptoms progressing just months after my diagnosis in March 2024. I lost my fav sister in Dec 2021 to MS. I know what to expect but I want to prepare for an independent life and need some guidance with treatments, wholistic avenues and locoate a support group to feel educated in this process. Also, I was in the military so also suffer with PTSD and grief issues.

#MightyTogether #Anxiety #BipolarDisorder #Fibromyalgia #PTSD #RheumatoidArthritis #MultipleSclerosis #Grief

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Messing stuff up

#PostconcussionSyndrome

Well messed something important up again. Think I see one thing but it is another. I check, later it is still wrong. I am 5 years post tbi, and still living my same life...sort of, shadow of it anyway. I don't know anything else and can't learn something all new, not without a lot of time and help. I think I should never work on important things, only simple things, but yet here I am still pretending like I can do these things. I am untrustworthy. No judgement in that, it is just simply true. If I stop doing anything important where does that leave me? How do you change your whole life when you can't figure out how? My socks match today, still living the life I knew.

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New here, love to connect

Been off work 3 months motorcycle accident, severe tbi, back to work. Get fatigue very easy, I can’t go the gym yet, don’t have the strength, do meditations , any suggestions

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