Traumatic Brain Injury

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Traumatic Brain Injury
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  • About Traumatic Brain Injury
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    What's New in Traumatic Brain Injury
    Community Voices
    Community Voices

    Confusing app?

    <p>Confusing app?</p>
    3 people are talking about this
    Community Voices

    Having a TBI is Quite A Journey

    Good evening!

    I’ve had my TBI for six years, and I have to admit; I’ve learned something new each year that passes. The brain is such an amazing organ. It has abilities that we haven’t even fully understood. Humans are constantly learning new things about what our brain can do.

    One thing I have learned is that just like any other injury, often times the healing process can be more painful than acquiring it. The surface of the brain can heal, but it’s much more difficult to see the deeper part of the injury.

    The brain reroutes pain. Nerves that are damaged have to also reroute receptors. There’s a lot that goes into the healing process when the brain is damaged.

    The first 2-3 years were the most painful. Then, years 3-5 were a bit more modest. Now, year six, I’ve reverted back to the early years for whatever reason. The migraines are debilitating and prevents me from working currently.

    I also am experiencing some odd changes with my body. I only eat one meal per day. Very limited snacks and limited sugared beverages. Yet, I’ve gained weight and my fingers are very puffy. I’m seeing a hormone doctor tomorrow to see if something has changed to caused these changes.

    My fingers are the biggest sign. I have no idea why they are so puffy! Has anyone else experienced this issue without having a manual cause?


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    Community Voices

    Everyone is different & the smart ones are the ones getting help. Maybe we aren’t the ones with the disabilities. We just talk about it & get help.

    <p>Everyone is different & the smart ones are the ones getting help. Maybe we aren’t the ones with the disabilities. We just talk about it & get help.</p>
    1 person is talking about this
    Community Voices
    Community Voices

    How Music Therapy Helped My Stroke Recovery

    I have always loved music. I loved to sing along with the radio. I’d sing in the shower. I was in the kids’ choir at church. I played the piano and flute for several years. I was in marching band in high school. So I was not unfamiliar with how to sing to tune or clap to the beat. Once I had a stroke, all that changed. After the ischemic brain stem stroke, I couldn’t talk or move. My communication was limited to blinking my eyes. After much hard work at subacute therapy, I wound up in a wheelchair at inpatient therapy at the hospital. I could say short sentences and walk short distances with a walker at this point. I was all too familiar with physical therapy, occupational therapy, and speech therapy. I was surprised to find myself in music therapy. Although music had been part of much of my life, that came to a crashing halt after my stroke. I could barely hum, let alone sing or play an instrument. So I was surprised to be sitting in a circle with other stroke/TBI survivors and holding a pair of maracas. Everyone in the group had some type of simple instrument to play, and when the leader played a guitar, everyone else played along with her, making “music.” Now, I wasn’t regularly a maraca-shaking kind of girl. I could barely shake the maracas let alone keep any type of rhythm. I honestly felt foolish and didn’t know how this was supposed to help my recovery. The next music therapy session was later in the week and I was made to go. I wasn’t there by choice. This time, the leader was having the survivors each choose a song and everyone sang along with the guitar player. I kind of mumbled, halfheartedly participating. Then, the leader brought me a big notebook of songs and asked me to pick one. A bunch were rap or hip hop — not my style. Then, I saw a familiar one I had always loved, “The River” by Garth Brooks, my favorite singer. As I listened to the familiar beginning strums of the song, I forgot where I was and sang my heart out. I had the song memorized, so I didn’t have to look at the words. I closed my eyes and I sang along to the tune I’d heard so many times before. I could actually sing better than I could talk at that moment! I cried tears of joy because for a few minutes, I felt “normal.” At speech therapy the next few days, I asked my therapist if I could sing some more Garth Brooks songs. She looked them up on YouTube and I sang loudly to “Friends in Low Places” and “The Thunder Rolls.”  I would listen and sing away to songs in my hospital room while I was by myself. Amazingly, I remembered words to songs and sang clearer than when I had a regular conversation. It helped me feel like me somewhat. I never thought singing would help me to speak again, but there you have it. Singing was a way for me to feel close to a regular person and encouraged me to try harder in other areas of my recovery. Now, I still sing in the car along to the radio, but my teenagers tell me to stop. Heaven forbid mom get her groove on.

    Community Voices
    Community Voices

    Ive had m’y injury for 25 years, for some reason the last 2 years, had setbacks, can’t leave house hate to go anywhere, it’s causing issues in my marr

    Community Voices