Hello, you extraordinary humans. Yes, you! Thank you for bringing this community your candor, truths, trust, kindness, generosity, support, and humor. You make a difference (yes, you!).

I found this community of truly beautiful people (yes, you!) through Sarah Ramey’s remarkable memoir, cheekily titled The Lady’s Handbook for Her Mysterious Illness. I could write a dissertation about it, with love in every sentence. Have you read it?

So, hello from the US West Coast, from under a thick layer of toxic wildfire smoke. I took this two days ago when the air was better. Look at the beautiful, subdued amber sunlight! So gross. And please enjoy my lovely accessories! N-95 mask for the smoke particulate, tactical glasses, work gloves (they go straight in the wash). And my Pandemic Bangs, which I foolishly cut myself. I never learn. I’m considering cutting the rest of my hair, too. What could go wrong? (Don’t answer that.)

#ChronicIllness #MyalgicEncephalomyelitis #Fibromyalgia #ChronicPain #TraumaticBrainInjury #Disability #Insomnia #HighlysensitivePerson #MightyBookClub #COVID19 #MysteriousIllness #DoubleVision #SeverelyDryEyes #PTSD #PandemicHair