Parkinson's Disease

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I'm new here!

Hello from keepfngoing2025.I was diagnosed with Parkinson's, in 2018, at the age of 52. To say we were shocked is an understatement. The journey is not easy. Every day is a challenge. Through blogging, cohosting a podcast, and developing a mentoring program for the newly diagnosed, I realize that I have a voice.

My goal is to help those struggling following their diagnosis. My blog www.keepfngoing.com chronicles my journey with moments that inspire laughter and joy to those that evoke deep reflection and sadness. The blog is not just a collection of thoughts; it is an unfiltered, raw reflection of my personal journey living with Parkinson's.

Also, I am a 34-year public relations' veteran, now retired, yet would love to offer content andf my perspective on everything from what happens the minute you walk out of the doctor's office to ensuring that people understand that Parkinson's is more than a tremor.

Let's chat.

#MightyTogether

Keep F'n Going | living with parkinson's

A funny, irreverant, and unfiltered reflection about my journey living with Parkinson's.
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SMI and caregiving for parents

Is anyone else trying to mange their own mental illness while caring for elderly parents? Both my parents need help, but my dad has Parkinson’s and as it worsens, his needs increase. I’m the only one in the household physically capable of caring for him but he needs help getting out of chairs, going to the bathroom, dressing, and preparing food. I can’t even get a full night’s sleep anymore because he needs me so often in the middle of the night to help him go to the bathroom. We’re not poor enough to qualify for financial help with caregiving nor are we rich enough to afford assisted living. I’m the plan, the only plan. If I get sick, too bad. If I need a mental health day, too bad. We are researching options. We have caregivers come in a few hours each week. But I need more. My family doesn’t understand why this causes me to be emotional so often even though they know I’ve been hospitalized so many times for psychiatric problems and I’m on disability for it. I don’t see why they can’t understand. #Caregiving #Bipolar1 #ParkinsonsDisease

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Topic/Question Just for Fun and Connection 🙌🙌

To help encourage us to remember that we are more than our chronic illness(es) or any diagnosis, and to remember that we Are building friendships right here -

In the spirit of the current, Biggest, Buzz-Worthy, Trending Topic, MOVIES awards show airing Sunday night the Oscars🙌🤩🏆🍿🎥🎬

Let’s use this post all weekend Starting Now And And Into Next Week to connect through the art, power, storytelling, …and your particular views on any film. I will keep it as wide-ranged as that for a fun, varied, connecting conversation back and forth below 👇 in the comments!

#Loneliness #Grief #DistractMe #FamilyAndFriends #Relationships #IfYouFeelHopeless #Depression #Anxiety #GeneralizedAnxietyDisorder #MajorDepressiveDisorder #DepressiveDisorders #PersistentDepressiveDisorder #MoodDisorders #MDD #Agoraphobia #MentalHealth #MightyTogether #ADHD #BorderlinePersonalityDisorder #ChronicIllness #IntellectualDisability #AutismSpectrumDisorder #MyCondition #RareDisease #ChronicPain #ChronicFatigueSyndrome #ChronicFatigue #Migraine #Selfharm #Selfcare #Mindfulness #SuicidalIdeation #SuicidalThoughts #SuicideAttemptSurvivors #Suicide #ComplexPosttraumaticStressDisorder #PTSD #MyalgicEncephalomyelitis #PostTraumaticStressDisorder #PsoriaticArthritis #Trauma #Cancers #AlopeciaAreata #AuditoryProcessingDisorder #CerebralPalsy #BipolarDisorder #DownSyndrome #Addiction #Lupus #HashimotosThyroiditis #AutoimmuneThyroidDisease #BipolarDepression #HypothyroidismUnderactiveThyroidDisease #ObsessiveCompulsiveDisorder #AutonomicDysfunction #ParkinsonsDisease #PosturalOrthostaticTachycardiaSyndrome #POTS #EatingDisorders #AnorexiaNervosa #BingeEatingDisorder #Dyspraxia #BrainInjury #MotorDisorders

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I’m Moshe, I started this group 3.5 yrs ago, yet I took the last year off. This is a piece I wrote about my recent struggles w/ mental health balance

I hope you all have been having a great new year, and are staying warm and safe. Honestly, I myself have been struggling and I wanted to share what I wrote about my current experiences living with bipolar disorder. I will share more about the other challenges I have been dealing with over the last year that have all combined to feed into my emotional & mental struggles in a future post.

……………………………………………………………………………………………………..

There is a roulette wheel in my head…

…and sometimes it just won't stop.
The ball keeps spinning, never settling in a slot
I look to my right and see black
To the left I see red yet I’m stuck on the track

I feel like a hamster spinning in his wheel
For hours into the night until I can't feel
My legs should have been tired hours ago
Yet I didn’t notice anything so lost in the flow

I'm trapped on a spinning merry-go-round
Going up and down to the cacophony of sound
My horse hugs the pole, and I can't feel my butt
It doesn't seem to matter as I am stuck in a rut

I'm on a race track speeding round and round
Hurtling at high speed, almost off the ground
As I'm going so fast totally out of control
No brakes, no down shift, just on a crazy roll

I'm in suburbia driving in circles on a roundabout
Yet I can't see the exits and make a turn out
Circling around, my steering wheel is stuck
I speed up, I get dizzy, this is just my luck

It seems in these cycles I’m always alone
I hide, avoid and ignore, never pick up the phone
It is a lonely place yet my history proceeds me
I'm so ashamed to be weak and desperately needy

Then there are the mountains to climb
I hike really fast I'm having a great time
I sprint to the top emboldened & inspired
With unlimited energy when I'm totally wired

Yet what goes up must come down
And I tumble and tumble smack to the ground
There is absolutely nothing left of that energy
Its suddenly pitch black dark  and I can't see

There are poker games near the roulette wheel
I'm a winner, it's destined, I’m a real big deal
Bid big on a pot the chips are all mine
Then I go all in and moments later I find

My hands are empty, I completely lost it all
My savings are gone as I took the fall
I slink out the door can't even afford a ride
Won't call a friend, and break through my pride

The hamster on the wheel has fallen to the ground
Can't get up although I ‘m desperate to be found
Once again on the ground I just can't move
Lost my momentum and fallen out of the groove

The park has way since closed and the merry-go-round is shuttered dark
Yet lying at the foot of my horse
I lay lost without a hint of my spark
I noticed the the paint is cracked & faded
It shows its age, is it all overrated?

My cars battery died in the middle of the track
Under the hood my wiring was way out of whack
Can't start up again as I’m just stuck in place
It looks like its destined I’ll never finish the race

I often wonder when will these cycles ever end
Will I ever find balance or just have to pretend
Like I have for decades… everything is just fine
While I’m shut down, lonely and lost in my mind

I need to embrace support available to me
Ditch the shame & pride so others can see
What's really going on as I struggle inside
It certainly has not helped me to run and hide

Can I accept support, admit when I'm so down
Or I’m high in the clouds lost to be found
I don't need sudden riches, today I ‘ll just survive
I've found the glory & blessing that I'm still alive!

Moshe Mark Adler
21st February 2025

………………………………………………………………………………………………..

(the photo is mine - I have been exploring nature photography)

#MentalHealth #Depression #Anxiety #Bipolar2 #Bipolar1 #BipolarDepression #BipolarDisorder #ADHD #ObsessiveCompulsiveDisorder #Addiction #AddictionRecovery #PTSD #ChronicIllness #ChronicPain #SocialAnxiety #Disability #Grief #DistractMe #CheckInWithMe #ParkinsonsDisease #Headache #Migraine #IfYouFeelHopeless #Trauma #COVID19 #InsideTheMighty #MightyTogether

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I'm new here!

Hi, my name is LuminiferousLapwing5. I'm here because i have two siblings with severe mental health issues and a parent with advanced parkinsons. I don't have a lot of caretaker responsibilities now, but it feels like my brothers are getting worse with time and I'd like to be able to be in a better position to support. I have so much trauma/anxiety myself around them, and it feels like every time I try to be supportive it ends up causing more problems. I have grief about the present and worry about the future, and don't know if/how to address the worry. Honestly from this community I'm ideally looking for other people who get it and who have some inspirational stories -- especially guidance on how they've worked through their own trauma/ongoing challenges to be effective supports while also having healthy independent lives.

#MightyTogether

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An In-Depth Look At What “Self-Love” Looks Like, How It’s Different Than “Self-Care”, And A Reminder That Self-Love Is At The Top Level Of Everything

There is More talk about Self-Care than the Most Critical Key to Happiness and Great Relationships of all types——-“SELF-LOVE”.

With this in-depth look at what Self-Love looks like-for your own personal growth, I would like you to take an honest look inwards and determine if you Practice Self-Love.
If you’re not, or if you’re not doing all of the bullet points given below, don’t worry— “Each morning, we are born again. What we do today is what matters most.”

As always, let’s have a great conversation about this topic below 👇 in the comments where you can use this space for your own place in your mental wellness journey. Not your mental illness journey— I am here as a friend to guide you through to the other side as much as possible—yes, that is where I stand, and the magic only happens if you let me—so how about more group members join in for your sake.

The Mighty friends that have opened themselves up to this opportunity are telling me and showing me that they are really starting to get it, and they are taking bigger, new, determined steps in their lives.

"Self-Love" refers to a deeper internal state of accepting and valuing yourself unconditionally, while "self-care" focuses on taking practical actions to maintain your physical and mental wellbeing, like getting enough sleep, eating healthy, and engaging in activities you enjoy; essentially, self-love is the mindset that drives you to practice self-care. Self-Love is the mindset too that heals the pain and keeps you in the light, Determined to keep pushing away any darkness and to stop doubting yourself.

Key points to remember:
* Self-love:
* A feeling of intrinsic worth and acceptance, regardless of circumstances
* Becoming your own best friend - treating yourself with the same respect and understanding you would give a close friend.
* Be the love you never received.
* Includes embracing your flaws
* Foundation for setting healthy boundaries and prioritizing your needs
* learn to say no when needed and clearly explain why
* Don’t seek Anyone’s validation
* Positive self-talk: Use encouraging language to speak to yourself, focusing on your strengths and accomplishments.
* Pay attention to your thoughts and feelings, recognizing negative self-talk and actively replacing it with positive affirmations/relabel upsetting thoughts
* Say something nice to yourself in the mirror — looking into your eyes & smile at yourself & say “I love you”and your name. (Yes, I actually stop myself to do this & it’s Wonderful)
* cultivate self-compassion
* Encourage Yourself
* Talk to someone you trust who *Has The Capacity To Listen*-and, Another Big Key Here is that ***Being vulnerable - completely honest and thorough- about what you’re going through with someone else is a major form of self-love because you’re taking the time to dig deep, regardless of how uncomfortable it is, And, on top of that, you’re showing yourself that you want to work out whatever’s going on with you***
* avoid comparing yourself to others
* practice gratitude
* Seek out opportunities for growth
* Creating a safe zone all your own is an act of self-love because it gives you a designated area where you can focus on your needs and emotions instead of other people’s. The key here is creating a space that feels good and peaceful when life is neither of those things.
#MentalHealth #Mindfulness #Selflove #Selfcare #Selfharm #SuicideAttemptSurvivors #SuicidalIdeation #SuicidalThoughts #Suicide #Trauma #MajorDepressiveDisorder #PersistentDepressiveDisorder #Depression #Anxiety #GeneralizedAnxietyDisorder #Agoraphobia #BingeEatingDisorder #EatingDisorders #EatingDisorder #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #LymeDisease #ComplexPosttraumaticStressDisorder #PostTraumaticStressDisorder #PTSDSupportAndRecovery #PTSD #BipolarDisorder #BipolarDepression #AutonomicDysfunction #AuditoryProcessingDisorder #Deafness #ADHDInGirls #ADHD #AspergersSyndrome #AutismSpectrumDisorder #Addiction #CerebralPalsy #IntellectualDisability #Disability #Blindness #BorderlinePersonalityDisorder #BorderlinePersonalityDisorderBPD #Fibromyalgia #ChronicPain #Migraine #IfYouFeelHopeless #BrainInjury #MotorDisorders #MultipleSclerosis #RheumatoidArthritis #Arthritis #Grief #Loneliness #AnorexiaNervosa #Relationships #SocialAnxiety #FamilyAndFriends #Caregiving #CrohnsDisease #CysticFibrosis #AlopeciaAreata #Cancers #EhlersDanlosSyndrome #ParkinsonsDisease #PosturalOrthostaticTachycardiaSyndrome #POTS #Stroke #Diabetes #SelfharmRecovery #RareDisease #DownSyndrome #AddisonsDisease #IrritableBowelSyndromeIBS #ObsessiveCompulsiveDisorder #ObsessiveCompulsiveandRelatedDisorders #ObsessiveCompulsivePersonalityDisorder #DissociativeIdentityDisorder

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A Mighty Together EASY Game That Needs All Of Us To Work 🤗 👋 🎤🎶🎧 #DistractMe #MightyTogether #MentalHealth #CheckInWithMe

Simply remember or find/Google/ask Alexa or Siri……a line or part of a line from a song or a song title that was written for Empowering all of us.

You are welcome to add in even just one. This is easy because it is not even your words that you are adding in or articulating. The words have been given to us.

For example: I often think of this part of line from a song: “I am going to dance on broken glass.”

And this part song title, part of a line of the lyrics:
“Better Days are coming, if no one told you.”

And this longer one section of another great song:
“DON'T YOU TELL ME WHAT YOU THINK THAT I COULD BE;
I'M THE ONE AT THE SAIL
I'M THE MASTER OF MY SEA.”

And this small section of a song that I hold close to my heart:
“Just remember who you are; how you were never one for folding; how you never liked the corner; how the dark don’t even know you.”

Let’s Go Big on this one.

Let’s make this a holiday gift you can give for free that could be exactly what Many others need Right Now.

This ties in with the image I chose for this because we are going to be taking inspiration from Christopher Reeve aka Superman in the 1978 film who famously said "A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles".

So, I say YOU are a hero.

One of our Mighty family with a boatload of reasons to question this quote and anything, just a couple days ago, found, and in a way, smartly challenged my about 4 months old post with Christopher Reeve’s other famous quote “Once you choose hope, anything is possible.”

So, if you know anything about me, you know I accepted this challenge to help her and to help even more of us.

So I went to work for all of us— researching and drafting an impactful reply (and I can at times put hours into this work for all of us.)
Because YOU are worth fighting for.

So, I researched how he could say these profoundly optimistic and empowering statements when he, Christopher Reeve, a former role model to the world as Superman, was paralyzed from the neck down after a horse riding accident at age 42. His mother wanted doctors to remove his life support, because she thought that he wouldn’t want to live like this, but he fought back.

So the meaning to his quote about HOPE is: Hope, in this sense, is a decision. It is the most important decision we can make.

This choice of Hope also is not just wishful thinking, it has to be rooted in a Believing, it must be in the form of Optimism, and it must be held together by handing it over to a trust in ourselves, a trust in the universe having our back, to any form of spirituality that does not even need to be religion based faith.

Absolutely Right Now, All of Our Mighty Family Needs help with feeling Empowered to be Hopeful and Optimistic And YOU can be a hero and participate in this mission that is greater than all of us, greater than our own social anxieties, greater than our own fears and doubts, greater than our fatigue…

Whenever you see this post, especially through the rest of the entire holidays —All of them coming up for all denominations and through and past New Years…add in a line or part of a line from a song, or a song title, that was written for Empowering all of us. That was written to speak to all of us. To Connect All of Us.

GAME ON.

GAME FACE.

YOUR friend in this hard thing called life,
Dawn

#Depression #Anxiety #GeneralizedAnxietyDisorder #MajorDepressiveDisorder #PersistentDepressiveDisorder #MoodDisorders #Selfharm #Selfcare #Grief #ChildLoss #BipolarDisorder #Suicide #SuicidalThoughts #SuicidalIdeation #SuicideAttemptSurvivors #BorderlinePersonalityDisorder #ComplexPosttraumaticStressDisorder #ChronicPain #ComplexRegionalPainSyndrome #Fibromyalgia #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #PTSD #Trauma #PostTraumaticStressDisorder #AlopeciaAreata #AutoimmuneThyroidDisease #CrohnsDisease #AdrenalInsufficiency #AutonomicDysfunction #Cancers #LymeDisease #Migraine #ParkinsonsDisease #MultipleSclerosis #RareDisease #ADHD #BipolarDepression #AnorexiaNervosa #EatingDisorders #PosturalOrthostaticTachycardiaSyndrome #POTS #AutismSpectrumDisorder #AspergersSyndrome #Addiction #CerebralPalsy #RheumatoidArthritis #Arthritis #Disability #AddisonsDisease #ChronicIllness #CysticFibrosis #DownSyndrome #Epilepsy #MyCondition #musictherapy #Music #Songs #MightyMusic #IfYouFeelHopeless #WarmWishes #Agoraphobia #SocialAnxiety

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