Mobilityaid

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    Mobility aids and Imposter syndrome

    I think it’s time for me to get a mobility aid. I struggle standing and walking due to dizziness and fatigue. I am afraid to bring it up to my mother because I don’t think I communicate the extent of my struggles.
    This also comes with a lot of imposter syndrome and I feel like I am over exaggerating if I use a mobility aid.

    Any tips on how to go about this?

    #Mobilityaid #Fatigue #ImposterSyndrome #crutches

    Question

    Does anyone have suggestions for mobility aids?

    I have a cane that I use when I need it but when I flare up my shoulders and wrists are usually pretty affected so it makes the cane very hard to use. I thought about specialized crutches that you rest your forearms in but they look pricey. I've seen people using rollators too but they aren't really for weight bearing. Any suggestions? Cause otherwise I'm probably going to get a secondhand wheelchair to use on bad fatigue and pain days.
    #RheumatoidArthritis #Fibromyalgia #ChronicPain #Mobilityaid

    Post
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    Wobbly legs, need braces!

    Hey everyone!

    I have #Undiagnosed hypermobility (either HSD or hEDS, diagnosis pending) and my limbs like to collapse in on themselves at very inconvenient times. My knees have been particularly bad lately and while I'm usually able to 'catch' myself on my other leg they've taken to collapsing at the same time lately where I have to grab onto supports.

    I'm seeing my doc on Monday to ask for a prescription for knee braces but I was wondering if y'all had any recommendations on type / brand that I can get her to write down? My insurance requires a lot of specificity and she's very good at following my lead but I need to know a few types before I see her to make sure I don't have to go back if it's not the right one for my (admittedly uncertain) diagnosis.

    I'm looking for something with lots of stability for wobbly, hypermobile, weak, and painful knees that isn't too bulky and is ideally under $200 CAD each (bc my insurance works with reimbursements and maxes out at $500/ year).

    If y'all have other recommendations for unreliable and generally annoying knees, especially when it comes to being able to go Christmas shopping and move between floors in my house, I'd love to hear em!

    #Hypermobility #HEDS #Zebra #Braces #mobility #Mobilityaid #knee #Recommendations

    Post
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    How do you keep track of your MS-related devices?

    They don’t really sell a lot of things that I knew of right away to keep all my canes together. I’m sure there is something that I didn’t know about, so I thought of an umbrella stand. I was looking at umbrella stands online and I didn’t like any. When I was at an antique store, I saw this and thought it was perfect.

    I keep my lucite “going out” canes in the car and all the indoor canes in there (or hang them on the back of chairs).

    What hacks do you have for staying on top of your MS-related aids?

    #ChronicIllness #MultipleSclerosis #ChronicPain #Disability #Mobilityaid #CheckInWithMe #Spoonie

    Post

    What do I do? #Mobilityaid

    Hello. I’m very confused and concerned. I’m in the midst of a neurological issue ( I don’t know what it is... my parents this it’s CRPS/RSD but I’m not in any pain. I just can’t move my legs). My mother is VERY stuck on the idea that I shouldn’t use any sort of assistive device / mobility aid and because of this, I’m stuck in one room, because I can’t walk. She thinks it will make things worse but it can’t get much worse than this (I can’t move). Any suggestions on what to do are GREATLY appreciated. #Mobilityaid #help

    Question

    How do I convince my spouse I need a walker or wheelchair? #Mobilityaid #IdiopathicIntracranialHypertension #MyalgicEncephalomyelitis

    So...everything came to a head last fall when I was diagnosed with idiopathic intracranial hypertension after collapsing at work, then six weeks later getting a bad case of viral meningitis.

    I still haven’t been able to see a neurologist. I’ve been in the hospital about every three months after the meningitis got me hospitalized on September 14 of last year (I went to the hospital the day after that shift, I thought I was dehydrated or something, but I finished my shift anyways and my husband picked me up). It took me until late March, early April this year to get Disability Services at the University. Most of my professors were supportive but one...ugh...

    I finally convinced the eye doctor I needed a neurology referral a month ago I think, but I haven’t heard anything, despite my follow up. DS said they would refer me to the rehabilitation center...but I won’t be able to get any help after the pandemic.

    So I’m annoyed.

    We live in married housing on campus and it’s not handicap accessible. I couldn’t get approval to move to an apartment that was, and even then no help with moving (re: pandemic)

    No my husband has been very supportive, but he has had issues health issues of his own, along with both of us looking for work and us being in school.

    I cannot stand putting weight on my right leg. It is very painful. I can barely lift up a large can of cream of mushroom soup, the great value kind., So I have no rehab, inaccessible apartment, and my body has not recovered at all.

    i'm pretty sure I need a walker, preferably one w/seat. I have a cane, but it's not helpful when I'm trying to cook or help w/dishes, basically anything that requires the use of hands or me standing up. its not enough.

    my husband is convinced that with rehabilitation and most of my strength and extremity will come back, but I am not sure. I trained as a classical and jazz musician; I was barely able to play the bass clarinet after the meningitis. They require significant workarounds and I often ended up not playing. And then after the attack on March 14...
    I lost my ability to play the piano or play the bass clarinet at all. You see with a bass clarinet there is a stick attached that it kind of balances on, so between that and the neck strap it's easier to hold even with a weak right side. If you're not doing technical work or you're not playing quickly, I can still move my fingers well enough to play. Or well i could. i lost that after March 14

    My point is that my husband is not a musician. He's not a cook. And so he is not aware of the physicality involved in playing &amount of deterioration.

    He's talking about an exoskeleton, or being positive that rehabilitation is going to go back to before. or 80% of former capcity. But I had a serious injury to my right shoulder and neck back in Januar2014 and it still hasn't healed.

    I need a walker. How do I talk to him about it? I don't want to sound pessimistic, but there isn't going to be a miracle cure

    Post

    Thinking about getting a wheelchair #MobilityAids #Wheelchair

    Since a few days I'm thinking of getting a wheelchair for the times when I need to walk for long times or when I'm having a bad day but need to go somewhere. I don't necessarily need a wheelchair, I can walk, but not for long (also can't stand for even 5 minutes without being in pain). The only points that are stopping me, are: 1. I'm really shy and don't like when people are starring at me or paying me too much attention and I'm scared that this will happen when I'm in the wheelchair. Also 2. someone would have to push me all the time, because I'm pretty sure my arms would hurt after short times if I have to do it myself. And 3. taking a wheelchair with me would often be pretty complicated (like holidays, you would have to get it in the car, but the car is already full with stuff or other occasions where you first have to get there with the wheelchair to use it there). Could somebody with experience in having a wheelchair share it with me? I'm pretty confused at this moment and can't really imagine it. #Wheelchair #Mobilityaid #MobilityAids #Disabled #ChronicIllness #JuvenileIdiopathicArthritis #Arthritis #ChronicPain #Rheuma #teenager

    Question

    When did you know you need a mobility aid? Should I use a mobility aid?

    I have had chronic ankle problems since I was 4 and I now 22. My ankles have become so painful that I pretty much waddle around the house. Doctors can't figure out what is wrong. I just want to be able to move around freely. It doesn't help that I struggle with migraines, dysautonomia, and mental illness. I'm exhausted from just walking around my apartment doing household chores.
    When did you know you need a mobility aid? How do I know if I need to use one?
    #mobility #ChronicPain #Undiagnosed #Mobilityaid #Dysautonomia #InappropriateSinusTachycardia #ChronicMigraines #MentalHealth