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    The First Time I Used My Cane At School {And how I realized that I had nothing to worry about} #FunctionalNeurologicalDisorder

    It's been nearly a year since I started using my cane regularly at school. Although I'm now able to use it with out feeling too anxious, that wasn't always the case. I remember when I first got it, it was in the middle of 10th grade. I had finally worked up the courage to take it to school....and I left it in my bag. I didn't even take it out, I was so terrified of someone seeing it.

    The summer break before my Junior year, I had MULTIPLE panic attacks just thinking about using it. It was the fact that people would notice me, and would be looking at me. That terrified me, I couldn't handle the thought of being noticed by others, even if for just a second. I already dealt with people looking at me due to my tics, I didn't think I could handle being looked at for another reason on top of that. Nethertheless, I knew I needed to bring it to school, I knew I that the benefits would GREATLY out way the anxieties I had. And so I did, I brought it.

    I was so nervous the whole week before school, infact I had a pretty huge breakdown caused by my stress and anxiety. Still, the first day of Junior year I brought my cane. went suprisingly well. There were a few stares, but they weren't as common as I thought. The few questions I got, were all asked by my teachers. No one was rude, or made me feel embarrassed to use one. By the end of the day, I had realized I had nothing to worry about.

    I go to a decent sized school. And there's a handful of students who also use mobility aids. I think that knowing that helped me a bit with my anxiety, and the feeling of feeling alone. Infact, towards the end of my first semester of Junior year, a student who also uses a cane transfered to my school. It turned out that they were my friend from middle school, who ended up moving. We became really good friends, even closer than we would be if we didn't both bond over using mobility aids.

    I'm really glad I didn't give into my anxiety, and that I still brought it despite the intense panic I originally felt. It has helped me immensely with dealing with the symptoms I deal with from my FND. Though I still sometimes feel anxious using it, it's nowhere near as bad or constant as it was in the beginning.

    I'm writing this to not only share my experience, but to hopefully help someone who wants, or needs to use their mobility aid in a more public setting for the first time, but is scared, to realize that although it can be scary at first. It will be ok. Even if people stare, and make rude comments it will be ok. Your saftey is hundreds of times more important than what others might think of you

    #FND #FunctionalNeurologicalDisorder #FND #Disabled #Mobilityaid #BabeWithAMobilityAid #Confidence #Disabledandproud

    2 reactions

    Radical acceptance

    I am 25 years old and suffer from fibromyalgia and about 5 months ago I developed plantar fasciitis in my right foot. Essentially, I struggle with chronic pain, and for me it mostly effects my lower body. This includes; my back, knees, ankles, and feet. I was advised by the pain clinic to start using crutches a couple of months ago. But due to anxiety issues, I really struggle with this. I don't use my crutches outside of the house even when I really need too. Unfortunately, my pain has now reached a point where I cannot physically stand or walk AT ALL without the use of a mobility aid. I feel like although this has been a long time coming, I am finding it extremely difficult to comes to terms with the fact that my body cannot do what I need it too. I'm only 25 and chronic pain has left me physically disabled. I just feel like this is so unfair.

    If anyone has any advice at all about accepting the use for mobility aids I would really appreciate it. Thank you so much for taking the time to read 🙏 #Disabled #Fibromyalgia #PlantarFaciitis #crutches #Mobilityaid

    13 reactions 9 comments
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    expressing myself !

    I have been working on trying to come up with a way to add some fun flair to my personal cane that I can easily customize & remove. 🦯🌟

    I came across these fishing pole holder clips and they were exactly what I was looking for — I’m so happy with the end result!!

    #MobilityAids don’t have to be boring!! Express yourself 💖🌟

    #handmade #CerebralPalsy #WalkingStick #Cane #Mobilityaid #Etsy #Cane #ChronicIllness #Style

    14 reactions 7 comments
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    Post surgery question ? #ChronicIllnessEDS #EhlersDanlosSyndrome #ChronicPain #MedicalZebra

    I have made it 2 weeks since my ankle surgery to repair a few tendons and ligaments. I got my stitches out today, 30 total. I now have steri strips to continue healing of the incision. I have a few smaller blisters along the incision and one larger on my ankle bone where I've been having more pain from my walking boot. Surgeon said it's normal and nothing to worry about just to watch it. Has anyone had this happen ? #ChronicIllnessEDS #EhlersDanlosSyndrome #hypermobileehlers-DanlosSyndrome #Surgery #Mobilityaid #Zebra

    14 reactions 6 comments

    my quick answers to strangers’ questions :)

    just wanted to share that I FINALLY figured out a short, not too personal way of answering questions from strangers. I wear a c-collar nearly 24/7, and sometimes use a mobility aid, so I get a lot of strangers asking me “what happened?”. Ive learned that the easiest way for me to answer that is to just say “oh, just faulty genetics.” I sort of laugh it off, and smile (I also use humor as a coping mechanism, but this just works so well… lol!). They aren’t entitled to any answer at all really, but I find this is often enough to end the conversation in a friendly way. Sometimes though (if I’m feeling up to it), it provides space to teach someone new about EDS, which can be really neat!

    #EhlersDanlosSyndrome #HEDS #HypermobileTypeEDS #CCI #AAI #Mobilityaid #MightyTogether #StayStrong

    24 reactions 11 comments

    Mobility aids and Imposter syndrome

    I think it’s time for me to get a mobility aid. I struggle standing and walking due to dizziness and fatigue. I am afraid to bring it up to my mother because I don’t think I communicate the extent of my struggles.
    This also comes with a lot of imposter syndrome and I feel like I am over exaggerating if I use a mobility aid.

    Any tips on how to go about this?

    #Mobilityaid #Fatigue #ImposterSyndrome #crutches

    1 comment

    Does anyone have suggestions for mobility aids?

    I have a cane that I use when I need it but when I flare up my shoulders and wrists are usually pretty affected so it makes the cane very hard to use. I thought about specialized crutches that you rest your forearms in but they look pricey. I've seen people using rollators too but they aren't really for weight bearing. Any suggestions? Cause otherwise I'm probably going to get a secondhand wheelchair to use on bad fatigue and pain days.
    #RheumatoidArthritis #Fibromyalgia #ChronicPain #Mobilityaid

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    Wobbly legs, need braces!

    Hey everyone!

    I have #Undiagnosed hypermobility (either HSD or hEDS, diagnosis pending) and my limbs like to collapse in on themselves at very inconvenient times. My knees have been particularly bad lately and while I'm usually able to 'catch' myself on my other leg they've taken to collapsing at the same time lately where I have to grab onto supports.

    I'm seeing my doc on Monday to ask for a prescription for knee braces but I was wondering if y'all had any recommendations on type / brand that I can get her to write down? My insurance requires a lot of specificity and she's very good at following my lead but I need to know a few types before I see her to make sure I don't have to go back if it's not the right one for my (admittedly uncertain) diagnosis.

    I'm looking for something with lots of stability for wobbly, hypermobile, weak, and painful knees that isn't too bulky and is ideally under $200 CAD each (bc my insurance works with reimbursements and maxes out at $500/ year).

    If y'all have other recommendations for unreliable and generally annoying knees, especially when it comes to being able to go Christmas shopping and move between floors in my house, I'd love to hear em!

    #Hypermobility #HEDS #Zebra #Braces #mobility #Mobilityaid #knee #Recommendations

    1 reaction
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    How do you keep track of your MS-related devices?

    They don’t really sell a lot of things that I knew of right away to keep all my canes together. I’m sure there is something that I didn’t know about, so I thought of an umbrella stand. I was looking at umbrella stands online and I didn’t like any. When I was at an antique store, I saw this and thought it was perfect.

    I keep my lucite “going out” canes in the car and all the indoor canes in there (or hang them on the back of chairs).

    What hacks do you have for staying on top of your MS-related aids?

    #ChronicIllness #MultipleSclerosis #ChronicPain #Disability #Mobilityaid #CheckInWithMe #Spoonie