hlab27

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I'm new here!

Hi, my name is BendyGrandma. I'm here because I am pending diagnosis of hEDS. I was recently diagnosed with Ankylosing Spondylitis due to being HLA-B27 positive, but I don't have the horrible back pain they speak of. I am extremely hypermobile and have dislocated my knee 7 times as well as my jaw and occasionally sublex both shoulders. #hlab27 #HEDS #MightyTogether #Anxiety

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Friendships are difficult. I feel alone.

The moment you think you have friends they prove you wrong.

Finals at my school start today and go on all next week. Hence everyone is stressed and getting sick. On an average day I go to bed at 9 pm and my roommates know that. Until now they've always respected that. They all started screaming conversations laughing and blasting music at 10:30 pm. To me, that was super disrespectful and the walls in our apartment are paper-thin so they definitely know I could hear them. I have a fan on ( to block noise and two pillows over my head. None of that helped. On top of that, they all laugh at me and make fun of me when I try to eat healthy and go to the gym. The reason I need to eat healthy is so that my stomach is cramping and my joints aren't aching as much. Will I ever find a friend who understands me I feel so alone #MightyTogether #alone  #HashimotosThyroiditis  #hlab27 #SpoonieProblems

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First gastroenterology appointment tomorrow, what should I prepare for?

I've had stomach issues for a year. I have always associated it to gluten sensitivity but never tested positive for celiacs disease. Any advice for this appointment #newdoctor #Spoonies #ChronicIllness #hlab27

Hoping this appointment will help... let's add another doctor to my list.

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Do other people have problems when consuming alcohol?

I went on a cruise and in the different countries I drank alcohol and got very sick even with small amounts of alcohol. #AutoimmuneImmunodeficiency . #HashimotosThyroiditis #hlab27 #help

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