Parkinson's Disease

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Does anyone here have Parkinson's

I had deep brain stimulation last September. Then I developed a sore on the side of my head. When some of the electrodes show through they had to come back and do surgery again to take a little bit of the electrodes out. Thank god the surgeon found the right electrodes the 1st time. I would really like to have someone with DBS talk to me. I can talk to people on facebook but I like being able to talk on the mighty because I have I can talk to people on facebook but I like being able to talk on the mighty because I have fibromyalgia and depression

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I'm new here!

Hi, my name is shawa143. I'm here because I need support in managing my own complex medical and mental health needs while being a caretaker for my aging parents with Parkinson's and Alzheimer's disease.

#MightyTogether #Anxiety #Depression #PTSD #Diabetes

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Self compassion and inner child work feel impossible

I tried doing some self-care activities like baking, reading, taking photos, going to visit parks, visiting museums, taking photos, doing art and doing a couple of puzzles but while they have given me some relief and i have discovered that i am good at photography, these steps have not made me feel like i am on the road to healing. While i might not have been the most persistent in doing it and i did some of these activities only a few times, my dissociation- i am unable to feel emotions, to feel hungry, thirsty, sleep, relaxed or excited, makes it hard for me to feel like something is reaching me.I am a survivor of sexual abuse and grooming by the therapist who followed me from the age of 4 to 22 between the ages of 8 to 9. She groomed me all the time but the sexual abuse was between the age of 8 to 9. I was also subjected to enmenshment trauma by my parents who suffocated me and manipulated me during family arguments stemming from my father's parkinsons' induced psychosis into beating either of the parents. I have been sexually molested by several men. I am 30 now. I had basically no safe adult, except for arguably one of my uncles who acted as a cool uncle figure. Our teachers in high school used to basically bully us and belittle us.My history includes also stalking and animal abuse on my side. From 2019 to 2021 i stalked someone online after running a gossip campaign against him online when he and his wife made their dog's profile private and i used online apps to get around that. I had in 2023 and early 2024 a beautiful healing relationship with an office cat and when he died, i felt love for the first time. I could have healed but i chose to push back against that love out of a fear of vulnerability and i had two months later a dissociative breakdown where i lost contact with most of my emotions.I realized my trauma and i told my family and friends about it but my family and many of my childhood friends ( not everyone reacted that way but they were the ones i cared the most about because they saw me grow up) invalidated me and i decided to abuse my cat to prove i was beyond redemption and bad. I terrorized her by throwing small balls at her non-stop for her to run after and i hit her a few times with a small ball when she would not "play". There was also another incident in february this year where i stepped on her and i do not know to this day if this was an accident or unconscious abuse. While my cat has mostly recovered from the abuse, she still shows some signs of lingering trauma. While she had almost completely recovered from the abuse last summer, she shows more lingering signs after the incident in february. She did nothing to deserve that.After i had the dissociative breakdown she would use to sit not too far from me in my room but i wanted to push her away. Not long after abusing my cat last summer i repressed my remaining emotions to punish myself for abusing my cat and to counteract the anxiety i felt over small flickers of emotions resurfacing. I keep sabotaging and beating myself all the time. Among all the invalidation last summer i chose to give up on a meaningful life and to just exist and i have not really changed my mind.Words like inner child work and self-compassion seem incredibly challenging, abstract or straight up impossible for me to meet. I know in the abstract that i have a need to be loved, seen, cared for, nurtured but i do not know what to do about it especially when self-care activities do not seem to resonate. Another therapist told me that i am never going to move forward with my life after i left her. I think she was cruel but that she is right, i have invested too much energy in destroying myself for me to come back from this. I am currently no longer with that therapist if you want to know that.What makes it worse is that i could have healed after i felt love for the first time and i chose to throw it all away. As a child i had so much potential and was kind and sensitive. There is a part of me that still believes healing is possible and this is why i am still on there but my brain keeps rejecting any suggestions as impossible or not enough. My breakdown also felt very permanent. A couple of days before it happened it is like i felt it coming and i told a part of me that she was dying and she had nothing to reproach herself for .

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Jogging Brings Me Joy, But My Body Isn’t Cooperating

I’m nervous I’m going to be told to give up a fairly new, but very enjoyable and empowering hobby, jogging. Yes, I’m chronically ill with joint inflammation, but I focus on physical therapy regularly, never jog more than once a week, and no more than 2 miles at a time.

Long story short, last year after a 1-mile jog, my foot went tingly and stayed that way for months. It eventually landed me in a boot for 4 months, and it took doctors over 6 months to figure out a treatment plan.

Fast forward to today, I’ve been jogging routinely since January, and things have been going well. But after my most recent jog, the tingling came back. It’s now across the entire bottom of my foot, constant, and even wakes me up at night. I’m scared that if I go to the doctor, I’ll either be put in a boot again all summer or be told (again) to quit something I’ve finally found joy in.

To make things even more complicated, my mom was recently diagnosed with Parkinson’s, so a small part of me wonders if this could be an early sign of something neurological.

I want to trust the healthcare system, but the truth is, I’m struggling to.
#anapositive #Infammation #ParkinsonsDisease #ChronicPain #hlab27

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How a Specialized Rollator Helped Vincent Stand Tall Again

Vincent, a retired dental surgeon and lifelong adventurer, once spent his days rock climbing, traveling, and lecturing around the world. Even into his late 70s, he remained proud, independent, and full of curiosity. But after being diagnosed with Parkinson’s disease, Vincent’s world began to shrink.

The symptoms were slow and cruel—stooped posture, a shuffling gait, and the dreaded freezing episodes that made even walking to the front door feel impossible. Everyday tasks, like getting up from the sofa or navigating a few steps to the garden, became daunting. After a fall at home and a noticeable decline in confidence, Vincent’s independence seemed to be slipping away.

He had moved to a new town to be closer to family, but unfamiliar surroundings and physical challenges left him isolated and frustrated. His loved ones stepped in to help—but what he really wanted was to do things for himself again.

That’s when an occupational therapist introduced him to the Rollz Motion Rhythm, a rollator specifically designed for people with Parkinson’s.

This wasn’t an ordinary walker. With a built-in laser line, rhythmic sound cues, and subtle handle vibrations, the device provides visual, auditory, and tactile prompts to support smoother walking. These features target Parkinson’s-related gait issues like freezing and shuffling.

When Vincent first tried it, the impact was immediate. The laser helped guide his steps, the metronome sound created a steady rhythm, and the vibrations gave discreet sensory feedback that helped him stay balanced and confident. His posture improved. His stride lengthened. He stood taller.

According to his son, “I haven’t seen my dad stand like that in 10 years.”

The transformation went beyond physical movement. With added home modifications like a ramp, step lift, and a rising armchair, Vincent began to reclaim his daily life. He started walking around his home unaided, ventured back into his garden, and even began talking about taking the bus to explore the area.

Most importantly, the anxiety-fueled cycle of inactivity and isolation was broken. The rollator gave him back more than mobility—it gave him a renewed sense of self.

For people living with Parkinson’s, and for families watching a loved one slowly retreat from life, Vincent’s story is a reminder: sometimes, the right tools can reignite confidence, restore freedom, and change a life.

#rollz #mobility #Mobilityaid #ParkinsonsDisease #innovation #parkinsonrollator

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I'm new here!

Hi, my name is ShirChin. I'm here because my father has been diagnosed with Parkinson's Disease, and I really need to learn and understand better how to help him. We live in Costa Rica and there isn't as much as a community here.

#MightyTogether

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I'm new here!

Hello from keepfngoing2025.I was diagnosed with Parkinson's, in 2018, at the age of 52. To say we were shocked is an understatement. The journey is not easy. Every day is a challenge. Through blogging, cohosting a podcast, and developing a mentoring program for the newly diagnosed, I realize that I have a voice.

My goal is to help those struggling following their diagnosis. My blog www.keepfngoing.com chronicles my journey with moments that inspire laughter and joy to those that evoke deep reflection and sadness. The blog is not just a collection of thoughts; it is an unfiltered, raw reflection of my personal journey living with Parkinson's.

Also, I am a 34-year public relations' veteran, now retired, yet would love to offer content andf my perspective on everything from what happens the minute you walk out of the doctor's office to ensuring that people understand that Parkinson's is more than a tremor.

Let's chat.

#MightyTogether

Keep F'n Going | living with parkinson's

A funny, irreverant, and unfiltered reflection about my journey living with Parkinson's.
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