Parkinson's Disease

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SMI and caregiving for parents

Is anyone else trying to mange their own mental illness while caring for elderly parents? Both my parents need help, but my dad has Parkinson’s and as it worsens, his needs increase. I’m the only one in the household physically capable of caring for him but he needs help getting out of chairs, going to the bathroom, dressing, and preparing food. I can’t even get a full night’s sleep anymore because he needs me so often in the middle of the night to help him go to the bathroom. We’re not poor enough to qualify for financial help with caregiving nor are we rich enough to afford assisted living. I’m the plan, the only plan. If I get sick, too bad. If I need a mental health day, too bad. We are researching options. We have caregivers come in a few hours each week. But I need more. My family doesn’t understand why this causes me to be emotional so often even though they know I’ve been hospitalized so many times for psychiatric problems and I’m on disability for it. I don’t see why they can’t understand. #Caregiving #Bipolar1 #ParkinsonsDisease

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Topic/Question Just for Fun and Connection 🙌🙌

To help encourage us to remember that we are more than our chronic illness(es) or any diagnosis, and to remember that we Are building friendships right here -

In the spirit of the current, Biggest, Buzz-Worthy, Trending Topic, MOVIES awards show airing Sunday night the Oscars🙌🤩🏆🍿🎥🎬

Let’s use this post all weekend Starting Now And And Into Next Week to connect through the art, power, storytelling, …and your particular views on any film. I will keep it as wide-ranged as that for a fun, varied, connecting conversation back and forth below 👇 in the comments!

#Loneliness #Grief #DistractMe #FamilyAndFriends #Relationships #IfYouFeelHopeless #Depression #Anxiety #GeneralizedAnxietyDisorder #MajorDepressiveDisorder #DepressiveDisorders #PersistentDepressiveDisorder #MoodDisorders #MDD #Agoraphobia #MentalHealth #MightyTogether #ADHD #BorderlinePersonalityDisorder #ChronicIllness #IntellectualDisability #AutismSpectrumDisorder #MyCondition #RareDisease #ChronicPain #ChronicFatigueSyndrome #ChronicFatigue #Migraine #Selfharm #Selfcare #Mindfulness #SuicidalIdeation #SuicidalThoughts #SuicideAttemptSurvivors #Suicide #ComplexPosttraumaticStressDisorder #PTSD #MyalgicEncephalomyelitis #PostTraumaticStressDisorder #PsoriaticArthritis #Trauma #Cancers #AlopeciaAreata #AuditoryProcessingDisorder #CerebralPalsy #BipolarDisorder #DownSyndrome #Addiction #Lupus #HashimotosThyroiditis #AutoimmuneThyroidDisease #BipolarDepression #HypothyroidismUnderactiveThyroidDisease #ObsessiveCompulsiveDisorder #AutonomicDysfunction #ParkinsonsDisease #PosturalOrthostaticTachycardiaSyndrome #POTS #EatingDisorders #AnorexiaNervosa #BingeEatingDisorder #Dyspraxia #BrainInjury #MotorDisorders

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I’m Moshe, I started this group 3.5 yrs ago, yet I took the last year off. This is a piece I wrote about my recent struggles w/ mental health balance

I hope you all have been having a great new year, and are staying warm and safe. Honestly, I myself have been struggling and I wanted to share what I wrote about my current experiences living with bipolar disorder. I will share more about the other challenges I have been dealing with over the last year that have all combined to feed into my emotional & mental struggles in a future post.

……………………………………………………………………………………………………..

There is a roulette wheel in my head…

…and sometimes it just won't stop.
The ball keeps spinning, never settling in a slot
I look to my right and see black
To the left I see red yet I’m stuck on the track

I feel like a hamster spinning in his wheel
For hours into the night until I can't feel
My legs should have been tired hours ago
Yet I didn’t notice anything so lost in the flow

I'm trapped on a spinning merry-go-round
Going up and down to the cacophony of sound
My horse hugs the pole, and I can't feel my butt
It doesn't seem to matter as I am stuck in a rut

I'm on a race track speeding round and round
Hurtling at high speed, almost off the ground
As I'm going so fast totally out of control
No brakes, no down shift, just on a crazy roll

I'm in suburbia driving in circles on a roundabout
Yet I can't see the exits and make a turn out
Circling around, my steering wheel is stuck
I speed up, I get dizzy, this is just my luck

It seems in these cycles I’m always alone
I hide, avoid and ignore, never pick up the phone
It is a lonely place yet my history proceeds me
I'm so ashamed to be weak and desperately needy

Then there are the mountains to climb
I hike really fast I'm having a great time
I sprint to the top emboldened & inspired
With unlimited energy when I'm totally wired

Yet what goes up must come down
And I tumble and tumble smack to the ground
There is absolutely nothing left of that energy
Its suddenly pitch black dark  and I can't see

There are poker games near the roulette wheel
I'm a winner, it's destined, I’m a real big deal
Bid big on a pot the chips are all mine
Then I go all in and moments later I find

My hands are empty, I completely lost it all
My savings are gone as I took the fall
I slink out the door can't even afford a ride
Won't call a friend, and break through my pride

The hamster on the wheel has fallen to the ground
Can't get up although I ‘m desperate to be found
Once again on the ground I just can't move
Lost my momentum and fallen out of the groove

The park has way since closed and the merry-go-round is shuttered dark
Yet lying at the foot of my horse
I lay lost without a hint of my spark
I noticed the the paint is cracked & faded
It shows its age, is it all overrated?

My cars battery died in the middle of the track
Under the hood my wiring was way out of whack
Can't start up again as I’m just stuck in place
It looks like its destined I’ll never finish the race

I often wonder when will these cycles ever end
Will I ever find balance or just have to pretend
Like I have for decades… everything is just fine
While I’m shut down, lonely and lost in my mind

I need to embrace support available to me
Ditch the shame & pride so others can see
What's really going on as I struggle inside
It certainly has not helped me to run and hide

Can I accept support, admit when I'm so down
Or I’m high in the clouds lost to be found
I don't need sudden riches, today I ‘ll just survive
I've found the glory & blessing that I'm still alive!

Moshe Mark Adler
21st February 2025

………………………………………………………………………………………………..

(the photo is mine - I have been exploring nature photography)

#MentalHealth #Depression #Anxiety #Bipolar2 #Bipolar1 #BipolarDepression #BipolarDisorder #ADHD #ObsessiveCompulsiveDisorder #Addiction #AddictionRecovery #PTSD #ChronicIllness #ChronicPain #SocialAnxiety #Disability #Grief #DistractMe #CheckInWithMe #ParkinsonsDisease #Headache #Migraine #IfYouFeelHopeless #Trauma #COVID19 #InsideTheMighty #MightyTogether

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I'm new here!

Hi, my name is LuminiferousLapwing5. I'm here because i have two siblings with severe mental health issues and a parent with advanced parkinsons. I don't have a lot of caretaker responsibilities now, but it feels like my brothers are getting worse with time and I'd like to be able to be in a better position to support. I have so much trauma/anxiety myself around them, and it feels like every time I try to be supportive it ends up causing more problems. I have grief about the present and worry about the future, and don't know if/how to address the worry. Honestly from this community I'm ideally looking for other people who get it and who have some inspirational stories -- especially guidance on how they've worked through their own trauma/ongoing challenges to be effective supports while also having healthy independent lives.

#MightyTogether

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An In-Depth Look At What “Self-Love” Looks Like, How It’s Different Than “Self-Care”, And A Reminder That Self-Love Is At The Top Level Of Everything

There is More talk about Self-Care than the Most Critical Key to Happiness and Great Relationships of all types——-“SELF-LOVE”.

With this in-depth look at what Self-Love looks like-for your own personal growth, I would like you to take an honest look inwards and determine if you Practice Self-Love.
If you’re not, or if you’re not doing all of the bullet points given below, don’t worry— “Each morning, we are born again. What we do today is what matters most.”

As always, let’s have a great conversation about this topic below 👇 in the comments where you can use this space for your own place in your mental wellness journey. Not your mental illness journey— I am here as a friend to guide you through to the other side as much as possible—yes, that is where I stand, and the magic only happens if you let me—so how about more group members join in for your sake.

The Mighty friends that have opened themselves up to this opportunity are telling me and showing me that they are really starting to get it, and they are taking bigger, new, determined steps in their lives.

"Self-Love" refers to a deeper internal state of accepting and valuing yourself unconditionally, while "self-care" focuses on taking practical actions to maintain your physical and mental wellbeing, like getting enough sleep, eating healthy, and engaging in activities you enjoy; essentially, self-love is the mindset that drives you to practice self-care. Self-Love is the mindset too that heals the pain and keeps you in the light, Determined to keep pushing away any darkness and to stop doubting yourself.

Key points to remember:
* Self-love:
* A feeling of intrinsic worth and acceptance, regardless of circumstances
* Becoming your own best friend - treating yourself with the same respect and understanding you would give a close friend.
* Be the love you never received.
* Includes embracing your flaws
* Foundation for setting healthy boundaries and prioritizing your needs
* learn to say no when needed and clearly explain why
* Don’t seek Anyone’s validation
* Positive self-talk: Use encouraging language to speak to yourself, focusing on your strengths and accomplishments.
* Pay attention to your thoughts and feelings, recognizing negative self-talk and actively replacing it with positive affirmations/relabel upsetting thoughts
* Say something nice to yourself in the mirror — looking into your eyes & smile at yourself & say “I love you”and your name. (Yes, I actually stop myself to do this & it’s Wonderful)
* cultivate self-compassion
* Encourage Yourself
* Talk to someone you trust who *Has The Capacity To Listen*-and, Another Big Key Here is that ***Being vulnerable - completely honest and thorough- about what you’re going through with someone else is a major form of self-love because you’re taking the time to dig deep, regardless of how uncomfortable it is, And, on top of that, you’re showing yourself that you want to work out whatever’s going on with you***
* avoid comparing yourself to others
* practice gratitude
* Seek out opportunities for growth
* Creating a safe zone all your own is an act of self-love because it gives you a designated area where you can focus on your needs and emotions instead of other people’s. The key here is creating a space that feels good and peaceful when life is neither of those things.
#MentalHealth #Mindfulness #Selflove #Selfcare #Selfharm #SuicideAttemptSurvivors #SuicidalIdeation #SuicidalThoughts #Suicide #Trauma #MajorDepressiveDisorder #PersistentDepressiveDisorder #Depression #Anxiety #GeneralizedAnxietyDisorder #Agoraphobia #BingeEatingDisorder #EatingDisorders #EatingDisorder #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #LymeDisease #ComplexPosttraumaticStressDisorder #PostTraumaticStressDisorder #PTSDSupportAndRecovery #PTSD #BipolarDisorder #BipolarDepression #AutonomicDysfunction #AuditoryProcessingDisorder #Deafness #ADHDInGirls #ADHD #AspergersSyndrome #AutismSpectrumDisorder #Addiction #CerebralPalsy #IntellectualDisability #Disability #Blindness #BorderlinePersonalityDisorder #BorderlinePersonalityDisorderBPD #Fibromyalgia #ChronicPain #Migraine #IfYouFeelHopeless #BrainInjury #MotorDisorders #MultipleSclerosis #RheumatoidArthritis #Arthritis #Grief #Loneliness #AnorexiaNervosa #Relationships #SocialAnxiety #FamilyAndFriends #Caregiving #CrohnsDisease #CysticFibrosis #AlopeciaAreata #Cancers #EhlersDanlosSyndrome #ParkinsonsDisease #PosturalOrthostaticTachycardiaSyndrome #POTS #Stroke #Diabetes #SelfharmRecovery #RareDisease #DownSyndrome #AddisonsDisease #IrritableBowelSyndromeIBS #ObsessiveCompulsiveDisorder #ObsessiveCompulsiveandRelatedDisorders #ObsessiveCompulsivePersonalityDisorder #DissociativeIdentityDisorder

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A Mighty Together EASY Game That Needs All Of Us To Work 🤗 👋 🎤🎶🎧 #DistractMe #MightyTogether #MentalHealth #CheckInWithMe

Simply remember or find/Google/ask Alexa or Siri……a line or part of a line from a song or a song title that was written for Empowering all of us.

You are welcome to add in even just one. This is easy because it is not even your words that you are adding in or articulating. The words have been given to us.

For example: I often think of this part of line from a song: “I am going to dance on broken glass.”

And this part song title, part of a line of the lyrics:
“Better Days are coming, if no one told you.”

And this longer one section of another great song:
“DON'T YOU TELL ME WHAT YOU THINK THAT I COULD BE;
I'M THE ONE AT THE SAIL
I'M THE MASTER OF MY SEA.”

And this small section of a song that I hold close to my heart:
“Just remember who you are; how you were never one for folding; how you never liked the corner; how the dark don’t even know you.”

Let’s Go Big on this one.

Let’s make this a holiday gift you can give for free that could be exactly what Many others need Right Now.

This ties in with the image I chose for this because we are going to be taking inspiration from Christopher Reeve aka Superman in the 1978 film who famously said "A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles".

So, I say YOU are a hero.

One of our Mighty family with a boatload of reasons to question this quote and anything, just a couple days ago, found, and in a way, smartly challenged my about 4 months old post with Christopher Reeve’s other famous quote “Once you choose hope, anything is possible.”

So, if you know anything about me, you know I accepted this challenge to help her and to help even more of us.

So I went to work for all of us— researching and drafting an impactful reply (and I can at times put hours into this work for all of us.)
Because YOU are worth fighting for.

So, I researched how he could say these profoundly optimistic and empowering statements when he, Christopher Reeve, a former role model to the world as Superman, was paralyzed from the neck down after a horse riding accident at age 42. His mother wanted doctors to remove his life support, because she thought that he wouldn’t want to live like this, but he fought back.

So the meaning to his quote about HOPE is: Hope, in this sense, is a decision. It is the most important decision we can make.

This choice of Hope also is not just wishful thinking, it has to be rooted in a Believing, it must be in the form of Optimism, and it must be held together by handing it over to a trust in ourselves, a trust in the universe having our back, to any form of spirituality that does not even need to be religion based faith.

Absolutely Right Now, All of Our Mighty Family Needs help with feeling Empowered to be Hopeful and Optimistic And YOU can be a hero and participate in this mission that is greater than all of us, greater than our own social anxieties, greater than our own fears and doubts, greater than our fatigue…

Whenever you see this post, especially through the rest of the entire holidays —All of them coming up for all denominations and through and past New Years…add in a line or part of a line from a song, or a song title, that was written for Empowering all of us. That was written to speak to all of us. To Connect All of Us.

GAME ON.

GAME FACE.

YOUR friend in this hard thing called life,
Dawn

#Depression #Anxiety #GeneralizedAnxietyDisorder #MajorDepressiveDisorder #PersistentDepressiveDisorder #MoodDisorders #Selfharm #Selfcare #Grief #ChildLoss #BipolarDisorder #Suicide #SuicidalThoughts #SuicidalIdeation #SuicideAttemptSurvivors #BorderlinePersonalityDisorder #ComplexPosttraumaticStressDisorder #ChronicPain #ComplexRegionalPainSyndrome #Fibromyalgia #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #PTSD #Trauma #PostTraumaticStressDisorder #AlopeciaAreata #AutoimmuneThyroidDisease #CrohnsDisease #AdrenalInsufficiency #AutonomicDysfunction #Cancers #LymeDisease #Migraine #ParkinsonsDisease #MultipleSclerosis #RareDisease #ADHD #BipolarDepression #AnorexiaNervosa #EatingDisorders #PosturalOrthostaticTachycardiaSyndrome #POTS #AutismSpectrumDisorder #AspergersSyndrome #Addiction #CerebralPalsy #RheumatoidArthritis #Arthritis #Disability #AddisonsDisease #ChronicIllness #CysticFibrosis #DownSyndrome #Epilepsy #MyCondition #musictherapy #Music #Songs #MightyMusic #IfYouFeelHopeless #WarmWishes #Agoraphobia #SocialAnxiety

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Redefining Your Narrative - Motivation, Empowerment, and a Pep Talk from my heart.

Brene Brown, PhD was one of my first and most impactful teachers at the start of my healing journey and wow, did she get me so far because she is an Emotions Researcher —- she spent the past two decades studying Courage, Vulnerability, Shame, and Empathy.

I can’t recommend her enough to also empower you on your healing, growth, and evolving journey to wellbeing and moving you towards your full potential to the best version of your authentic self.

You can watch her videos on YouTube and you can find her transformative best-selling books, videos, and articles, and even resources like workbooks on her website Brené Brown

What I want to emphasize here is that you should never feel alone in your journey because there are so many thought leaders and experts in whatever it is you are struggling with or with what you want to get better at that have already walked the same path and figured out this complex, but not yours alone - human experience. Seek them out - Google them, search for them on YouTube— keep looking out for my posts and my conversations threads and replies to others where I keep giving out these free resources for all of what we need to better understand to thrive. You can always ask me too, and I will be happy to do what I can to help find the expert who can help you with Self-Empowerment. There is a very good chance that expert’s name or advice/wisdoms are already in my copious notes in my phone. I am a constant learner about life, emotions, psychology….and I take detailed notes so I have at my fingertips what I will need to thrive and to fill the gaps in my emotional intelligence and self-development—- all of the critical things to thrive in life empowered that many a therapist never shared with me.

I hope that Self-Empowerment becomes your new favorite term too.

And these critical terms that start with the word “Self”: Self-Regulation (includes emotion regulation and our own regulation of our physiology like our breath, and our heart rate); and Self-Awareness, and Self-Acceptance, and Self-Worth, and Self-Esteem, and Self-Love, Self-Compassion, Self-Efficacy, Self-Discipline, Self-Discovery, Self-Respect.
Am I missing any? Each one is of critical importance for all of us to master ourselves.

I never want you to feel alone, not seen, not validated, powerless, flawed, worthless, or any of that stuff because literally, to be very clear - it is b*llsh*t.

Please Don’t let those thoughts have any say to get the best of you, they are just thoughts - which are just mental events on autopilot, they are not facts -they do not hold any meaning unless we give it power and meaning.

Here is one of the very Motivational and Self-Empowerment talks by Brene Brown that I Especially hope that you will embrace to help you not just survive but thrive more through the difficult holidays right here For us not Against us.

“Part of redefining your narrative is deciding what role you want to play in your own story.

Are you the hero who rises against the odds?
Are you the creator who builds something beautiful from the rubble?

Or are you the person who remains stuck letting the past dictate the future?

The choice is yours.
And, it starts with a single decision that I Will Not Let My Pain Define Me.
I Will Let It Refine Me.

Your life is a story and every experience- both good and bad becomes a chapter in that story.

But here is the truth that many of us overlook— you are the author.

You have the power to decide how the story is told; how the events are interpreted; and what meaning you give to the things that happens to you.

Redefining your narrative is not about erasing the past or pretending it didn’t happen.
It’s about choosing to see it through a lens of growth, resilience, and possibility.

Often we get stuck in narratives that no longer serves us.
Perhaps you told yourself that a failure defines your worth; or maybe you adopted a story of victimhood where everything that went wrong is proof that life is unfair.

These narratives can feel real because they are rooted in genuine pain or disappointment, but just because they feel real doesn’t mean they have to remain the dominant story of your life.

Redefining your narrative starts with awareness. Ask yourself what story have I been telling about myself in my life. Is it a story of defeat, scarcity, or limitation?

Is it a story where someone else’s actions hold all of the power?

Once you identify the narrative that you have been carrying, you can begin to rewrite it.

*One of the most transformative ways to redefine your narrative is to shift your perspective on hardship.*

*Instead of viewing challenges as evidence of your inadequacy, consider them as chapters of growth.*

What did you learn from that relationship that didn’t work out?

What strength did you develop from that setback?

What doors opened after the one you wanted closed?

*When you redefine your narrative, you take ownership of your story.*

*This doesn’t mean ignoring the pain, or pretending everything was okay, it means looking at the past with compassion and choosing to see yourself not as a victim but as a survivor, a learner, and a person who is continually evolving.*

*It’s also important to remember that your narrative isn’t just shaped by what happens to you; it’s shaped by the meaning you assign to those events.*

Two people can go through similar experiences and come out with entirely different stories.

*One may see rejection as proof they’re not enough, while the other sees it as redirection towards something better — which meaning will you choose?*

With warm wishes,

You friend in this hard thing called life,

Dawn 🤗

#MentalHealth #MightyTogether #Mindfulness #CheerMeOn #CheckInWithMe #DistractMe #WarmWishes #IfYouFeelHopeless #Suicide #Selfharm #SuicidalIdeation #SuicidalThoughts #SuicideAttemptSurvivors #ChronicIllness #GeneralizedAnxietyDisorder #Agoraphobia #Anxiety #Depression #MajorDepressiveDisorder #PersistentDepressiveDisorder #MoodDisorders #SocialAnxiety #Addiction #Disability #ComplexPosttraumaticStressDisorder #PTSDSupportAndRecovery #PostTraumaticStressDisorder #BorderlinePersonalityDisorder #BipolarDepression #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #AnorexiaNervosa #ADHD #Relationships #FamilyAndFriends #CerebralPalsy #AutismSpectrumDisorder #AspergersSyndrome #RareDisease #AlopeciaAreata #Cancers #ChronicFatigue #ChronicFatigueSyndrome #MyCondition #MultipleSclerosis #AutonomicDysfunction #PTSD #Cancer #ParkinsonsDisease #Migraine #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #POTS #CrohnsDisease #RheumatoidArthritis #Caregiving

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