Psoriasis

My hair has been falling out really fast. Like 2 fistfuls every time I shower. My temples are quickly receding. It's very depressing. I've got an appointment with my PCP on the 7th to see if she has any idea on how to help me. I told her I need to find a new dermatologist but until then I need her help.
The scabs get scratched off and they pull out like 10 hairs. And God forbid I scratch my scalp cuz then like a vanillion hairs come out on my hands and I kinda obsess about pulling them off. My OCD is really bad with my hair falling out.
I really wanted to dye my hair but 2 years ago when I went to mfm I bleached my hair and I ended up having acid burns all over my scalp. I think I might be able to dye my hair without having to bleach it. I've got a box of blue black hair dye and a bottle of red hair dye.
I'm getting my hair cut tomorrow after the festival. It's been almost exactly one year since my last haircut. My hair is long enough to go up in a ponytail.
People rant and rage about "grooming" from gay and trans people. The only grooming in my life is when Pauley decides to pluck my long hairs on my back and legs. She's also princess pimple popper.
I'm thinking about wearing my puppy harness and hood to the festival. Pauley is gonna wear her cute little black tee shirt dress. I need to get her some skirts. I've even got a really cool puppy shirt to wear. I'll for sure get pictures. I'm gonna try to get a picture with a luchador.
Pauley is upset with me. I didn't remind her to do laundry.
I think I'm most excited to go to the cider mill store. I'm gonna get a dozen cider donuts and some salted caramel butterscotch fudge. The donuts there are the best local cider donuts. The fudge is rich and velvety smooth.
I'm gonna try to find really yummy brisket and smoked chub. If I can find a fried chub and cheese sandwich I'll be in heaven. I'm gonna try to find pulled pork without sauce or possibly some sausage for Pauley. She is not a big fan of BBQ but I know what she likes. She loves ribs and sausage and chicken and pulled pork.
The Norco I had an hour ago finally kicked in thank goodness.
#CheckInWithMe

I've been sitting on my couch for about the last 7 hours and I haven't moved much. But every time I try to move, I get super strong jags of pain in my lumbar. I just tried moving my butt and OMG it felt like my spine was being ripped out. And God's forbid I breathe too deep or my spine and sternum cracks. I knew today would be rough. Yesterday was great but I walked for 3 hours. And that's 3 hours more than normal. Pauley and my QPP both said they were very proud of how well I did.
My face is really bothering me. I keep breaking out with horribly painful giant pimples. And my psoriasis is flaring really bad. I know somewhere I've got a cream for my face but no clue where it is.
I am gonna have my darling stupidhead goop my lumbar. It's the only thing I haven't tried.
#BackPain

I had a total crap Sunday. Slept from 6 pm until 7 am this morning. Only woke up bc the wife made breakfast before she went to work. I hate that she does everything and I get one day a week where I feel like I have contributed something around the house/yard. I am extremely tired and frustrated. I hope I can work my 3 days this week. #RelapsingPolychondritis #ChronicFatigue #PsoriaticArthritis #Psoriasis #PeripheralNeuropathy

Hi, my name is oldjc. I've recently been diagnosed with Relapsing Polychondritis. I have had the other 3 for 20 plus years.
#PeripheralNeuropathy #PsoriaticArthritis #RelapsingPolychondritis #Psoriasis

Hi, my name is WearyStrugglingEagle. I'm here because I have living with all of this for so long and it’s nice to have a community that understands. I was first diagnosed with RA back in 1992 and since then everything else has joined the party! These are my main ones but as always there are little side “projects” that need to be added, just to make us feel even more special. I hope everyone will have a wonderful but careful weekend and make sure to look after yourselves. Gentle and tender hugs

#MightyTogether #Anxiety #Depression #RheumatoidArthritis #Migraine #Fibromyalgia #PsoriaticArthritis #Psoriasis

My therapist cancelled today cuz of a family emergency involving a fur baby. I really needed to talk but I can understand his need for time for personal stuff.

Pauley has been in a foul mood today. I've been trying to give her some space but I really need comfort.

None of my other friends are online. I just really want to talk to someone.

Pauley has been trying to send my X-rays to my previous surgeon but there's huge miscommunication and she's losing her temper. I tried going to the portal for the records but I can't figure out how to send them. I'm useless when it comes to computers. And now the person she was emailing is off work. So that was a waste of 3 hours.

My face is flaking like crazy and super itchy. I gotta figure out which cream goes on my face. My eyebrows are awful. My beard is so itchy. I made it bleedy. #Psoriasis

I don't want to cook dinner tonight. I just don't care. My head is foggy but doesn't hurt. I started taking propranolol 3 days ago and pauley asked if I noticed anything different. Um no? Isn't it going to take some time?

I reached out to the Endo online to schedule an appointment. I'm hoping to hear back by tomorrow. But I have to fax the referral. I have the fax number so I'll just email my doctor to fax it over.

So many moving parts.2 days until my big appointment. I'm so nervous.

#CheckInWithMe

I've got an appointment at noon for my next invega injection. It's definitely time. My depression and anxiety are so awful. I'm also going to pick up a script that my psych doctor wrote for me on Monday. The pharmacy is in the same building. I asked him for something as needed for anxiety and the best he could offer was propranolol. I've been on it before but don't know why I stopped. I guess we'll figure it out. Anywho

My scalp on top of my head has a few really painful scabs. I had pauley look at it last night and she was like whoa. I've been scratching my scalp but I didn't think I scratched it where the scabs are.

In other news... I'm going to an event on the 19th that I'm very excited about. There is a local art school/studio. They have 4 floors of space for students. They're doing an open house on the 19th and serving free wine and pizza. They have a sculpting studio with a kiln! I've been trying to find somewhere I can do some sculpting. This might be just what I need.

#MentalHealth #SchizoaffectiveDisorder #Psoriasis

Hi, my name is tgalpal. I'm here because

#MightyTogether #Psoriasis