Psoriasis

Hi, my name is juliecroner. I'm here because

#MightyTogether #PsoriaticArthritis #Psoriasis #AvascularNecrosis #Melanoma

Hey everyone!
This is my first post, I just joined today.
I am reaching out for support as I am feeling very alone in my chronic illness. I have been diagnosed with 15 chronic illnesses; 5 of which are autoimmune diseases. In my journey, I do not feel as though anyone can relate to my experience and people get overwhelmed when I talk about it. I see people’s eye get big and they get uncomfortable or just try to fix my “problems”.
I do not know anyone who has been through what I am going through, or if they are it is not at the extent that I am.
Does anyone have suggestions for this or can anyone help with some support on the matter? I have been feeling very lonely as a result.
Thank you all. ❤️ #ChronicIllness #IntracranialHypertension #exhausted #Loneliness #RheumatoidArthritis #AntiphospholipidSyndrome #Endometriosis #Adenomyosis #PolycysticOvarySyndrome #AlopeciaAreata #Psoriasis #Fibromyalgia #Lupus

Hi, my name is April. I'm here because navigating the intersection of chronic illness and complex trauma is not something anyone should do alone.

After suffering for many years, I've finally started getting answers about my physical health—I was diagnosed with psoriasis a year ago and psoriatic arthritis a few weeks ago. I'll be starting new a medication soon, and I'm hopeful for some relief.

Managing these physical diagnoses can be overwhelming, especially as a CSA and SA survivor also living with grief, PTSD, AuDHD, and many more ABCs! As an expressive arts facilitator, I've found that storytelling is my safest way to process it all.

I'm working on a series of short stories based on my lived experiences with childhood trauma. The first piece, A Childhood Secret: The Piano Lesson, was written under the pseudonym Michaela Parker—a protective mask I needed at the time. It's currently out, and readers have called it "a beautiful testimony."

Finding spaces that understand the combined physical and emotional toll this takes is so important. I look forward to connecting with you!

#MightyTogether #PsoriaticArthritis #PTSDSupportAndRecovery #PTSD

Hi, my name is GwynStone1492. I've been diagnosed with FND, Fibro, osteoarthritis, psoriasis, migraines, osteoporosis, hypothyroidism (post-irradiation hyperthyroidism), asthma, copd, depression, anxiety, ptsd

#MightyTogether #Fibromyalgia #PTSD #Anxiety #Depression #Migraine

Here it is early in the morning and I am thinking about stress, and stress triggering my immune diseases. I went to my dentist today and I asked about what the effects of micro plastics, specifically my year plus of wearing Invisalign braces, what effect that has on my auto immune system. “There aren’t any studies, so who knows,” was her response..Meanwhile, I keep thinking about triggers for autoimmune diseases, in my hyperactive autoimmune system. I think I should see an immunologist, to at least get a better understanding of it all..Also, should I be on an immunosuppressant since I have a sixth autoimmune disease diagnosis?! I’m also asking for some sound advice, from The Mighty collective. This is really bothering me..It’s making me sad and depressed. I keep thinking about my immune system attacking my body. It’s not suppose to work that hyper-vigilantly. #AutoimmuneDiseases #HashimotosThyroiditis #LichenSclerosus #Psoriasis #PsoriaticArthritis #Diabetes #lichenplanopilris #Depression

I went to a new Dermotologist yesterday, after waiting five months to get the visit! I thought the skin reaction on my head was due to scalp psoriasis, but because I’m not a doctor I was unsure. It turns out I have another auto immune disorder! A rare type of skin disease (scaring alopecia) known as Lichen planopilaris.
I started crying in the Dermatologist office! Damn stressful. I have several different autoimmune diseases now! Many of them are skin related. I pictured myself bald as a cue ball and I couldn’t help but cry..
The Dermotologist said I’d had it for a while because of the front hairline loss. It’s at the rate of about a 1/4 inch a year! I swear I just noticed the odd patchy redness on my scalp, and scales at the hair follicles back in May.
I thought it was perhaps stress related.? We moved to a new community in 2023, and we were doing so much construction daily on our home.
I also thought of the stress my daughter has created within me, by estranging us three years ago. (She has stage four cancer, so I have no idea.Her cancer is definitely part of her estrangement of me and her dad.)
According to the internet:
“While stress isn't the sole cause of lichen planopilaris (LPP), it is considered a potential trigger which can exasperate the condition..”
It helps me to be able to write about this. I’m trying to clarify my feelings and emotions regarding having yet another autoimmune disease.
I told my husband I felt like my body was eating me from the inside out!

Monday: no appointments
Tuesday: appointment with my PCP to discuss psoriasis on my face and scalp and ears.
Wednesday: first session of PT. I've got the same girl who i had years ago.
Thursday: no appointments, gonna try to go out for coffee or lunch with Pauley.
Friday: no appointments