Pulmonary Embolism

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What It Feels Like to See a Life Slip Away”.

They say time heals all wounds.
But some moments don’t heal —
they settle inside you, quietly shaping who you become.

I was still young — fresh into my medical journey.
Bright eyes, trembling hands, a heart full of hope.
And then came her.

A beautiful, glowing woman —
Pregnant, with obstructive jaundice, but always smiling.
She had the kind of presence that lit up the room —
soft laughter, big dreams,
and a baby girl waiting to be born.

She talked about names, painted nurseries,
and worried about stretch marks and baby clothes —
not about dying.

But death doesn’t wait for permission.
It sneaks in —
even into labor rooms filled with new life.

It happened suddenly.
During delivery.
A blink.
A pause.
Then chaos.She collapsed.
We rushed — I remember barking out orders with a voice that didn’t even sound like mine.
My hands were trembling, my mind racing.
Pulmonary embolism.
We knew it was critical — and we fought.
God, we fought.

But medicine doesn’t always win.
And neither did we.

She died.
Her baby girl — stillborn.

Two lives…
Gone.
Just like that.

And outside that room —
was her son.
Six years old.
Wide-eyed.
Confused.
Then screaming.
Not because someone told him,
but because somehow —
he knew.

And her husband…
I will never forget the sound he made.
A sound that didn’t come from the throat,
but from the soul —
like something inside him had shattered and could never be put back.

That was my first death.
The first time I saw a life —
two lives —
slip away.

And it broke me.
But I didn’t have time to grieve.
There were more patients.
More tasks.
More faces waiting for the doctor with the steady hands and calm voice.

But inside…
I wasn’t steady.
I wasn’t calm.

For weeks, I carried her with me.
I couldn’t sleep.
I couldn’t eat.
I would wash my hands over and over,
trying to scrub off something invisible.
Not blood —
but guilt.

Was there something more we could have done?
Did I miss a sign?
Did I say enough? Do enough?
It was a spiral —
and no one noticed.
Because we wear white coats.
And white coats hide everything.

That experience pushed me into a dark place.
A place where I questioned my calling,
my worth,
even my right to carry the title “Doctor.”

But here’s the thing no one tells you:
Grief doesn’t make you weak.
It makes you real.
It makes you human.

And if you don’t let yourself feel it —
you go numb.
And when a doctor goes numb,
patients become numbers.
And the healing dies with the compassion.

So to every healthcare worker who’s ever watched a life slip away:
It’s okay to break down.
It’s okay to cry.
It’s okay to need help.

We were taught to be strong.
But we were never taught to be kind to ourselves.
And that’s where we fail.

Mental health is not a luxury.
It is survival.

To the young doctor out there —
tired, scared, barely holding on —
please don’t bury your pain in silence.
Talk to someone.
Write it down.
Pray.
Breathe.
Let yourself feel —
so you don’t forget how to care.

And to the families who’ve lost someone in our hands —
I want you to know:
We remember.
We carry them with us.
Their names. Their faces.
Their last moments — etched into our souls.

She was my first loss.
She wasn’t just a patient.
She was a mother.
A wife.
A dreamer.
And now, part of her lives in me.

Because every time I deliver bad news,
every time I stand by a bed that goes quiet —
I remember her.

And I keep showing up —
not because it gets easier,
but because it matters.

What it feels like to see a life slip away?
It feels like your heart breaking…
and still choosing to return to the battlefield the next day.

That…
is the silent strength of being a healerLet there be light in healers’ lives so that they can heal us all.
#PTSD
#MentalHealth
#healthehealer
#empathyispower

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My anxiety dilemma

Hey community, I hope everyone having a good time.

I want your perspective if you’re up to share!
6 months ago I got hospitalized due to pneumonia, pulmonary embolism, multiple DVT in my calf, I spent a week in the hospital until I want critical so I got discharged.

Since then I developed anxiety sometimes leads to panic and I end up in the ER doing all kind of checkups to make sure my pain is addressed and I’m healthy..

I’ve been working with therapy since then, doing mindfulness practices, and CBT techniques, my anxiety decreased but it’s still there..

two months ago I got diagnosed with anxiety disorder and adhd. Oh btw I’m 40 yo, so yeah it was quite the news for me… the doctor prescribed for me Prozac for my anxiety, but somehow I developed resistant, I don’t like medication and I already take pills for hypertension, anticoagulants (blood thinner) and another one to balance the high colestoral caused by the blood thinner pill…

The doctor emphasized on the benefit of Prozac on the long term, and she said there is no interference, let’s try and see how my body react…I’m still unable to come around and take the pill for some reasons…

Anyone has similar experience can share their insights, or what would help you making the decision if you were in my place?

Thanks for taking the time and reading my post 🩵
#Anxiety #ADHD

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I received some more bad medical news today. I wasn't mentally or emotionally prepared for it and I need time to process the information. I'm terrified, devastated and it put me into an immediate depression.

My chronic Lyme Disease seems to have never gone into remission, like I thought. I'm still infected with Chronic Lyme and Bartonella, assuming Rocky Mountain Spotted Fever too, but that one wasn't tested. I have a lot of unresolved trauma from treating my Lyme disease, and suffering for years.

It took two years to get that diagnosis when I was in my early 20s, having insane symptoms and that's when the suffering really started. I was 21. I started treatment at the age of 23. It was hell, the treatment was intense, painful and made me much sicker. I didn't have the long list of diseases and complications that I do now. I was also much younger and had more energy and spirit then.

Going through that again, with the body and physical ailments I have now, it's seriously frightening. I'm devastated that I didn't find out sooner. I knew that Lyme Disease caused a massive amount of damage in my body, I didn't know that it was still doing that to this day. It's a ton to process for me. I was 24 when my treatment ended. I'm 38 now. I'm feeling hopeless and I have already been tired of fighting. This body doesn't seem to want to live. It's very hard now, the idea of making it harder isn't fathomable to me right now.

I stopped reacting to new diagnoses a long time ago. The last time that I was truly afraid and shocked was when I had a Pulmonary Embolism in 2018. I survived. They are normally deadly. I remember getting the call 6 months later that I had a rare autoimmune blood clotting disorder and a genetic clotting disorder. Blood thinners for life. I didn't react. I literally laughed on the phone. Not because it was funny or not serious, because I couldn't take it anymore but I also wasn't even surprised that something else was wrong. Another one to add to the list.

I had internal struggles when I thought I had lung cancer in 2021. But I knew that I would fight it and I had a plan to be strong like I always am. 5 months later, I found out that it was Sarcoidosis. Also rare and can be deadly. It's a terrible disease. Add it to the list. Later in 2021, Autoimmune Polyneuropathy all over my body - small and large fiber nerve damage everywhere. I was just happy to get it over with and have it in writing finally, rather than my doctors and I just assuming that's what it was. I seem to get a new diagnosis every 12 to 24 months. I've grown used to it.

Today was different. I'm at my max. I just had my nerves burned from my spine a week ago. I'm still in recovery from that. My doctor gave me steroids while I was under without my knowledge or consent, knowing I'm allergic. I don't know why this is my life and why I was chosen to live in my own personal hell since childhood. I started crying while the doctor was talking about treatment options. The idea of going through that again is what set me off. I told her that I barely want to keep fighting now. I don't want to make my life harder.

Yes, I get depressed very often in the last year. I'm overburdened and overwhelmed. I'm angry and I'm sad. I am scared. I live one day at a time. Making distant plans is hard for me. When I get my handouts emailed to me for my intensive trauma class 24 hours prior, I don't even look at them. I don't know what tomorrow brings. I'm here today. Everything that is planned must be in my calendar or it's not real to me.

I hold onto those bit of love that I have in my life. That's what keeps me going. My animals and the important people in my life that share love and compassion with me.

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I feel silly for even posting this but it's a weird kind of grief I'm really struggling with so please have mercy on me.

So, I've never really been into children, I've always loved animals. I'm married, now aged 55. I've had countless dogs, cats, even horses. I did livestock for the fairs when I was young, I know and have experienced the life and death cycles of the all too short lives of our pets. And I've had some really special animals over the past, from my first dog when I was 5, to the dogs and horses I have today. I also have a long history of depression and anxiety. I have ptsd from medical trauma (I had a pulmonary embolism due to AFib and the ER doc had told me that my situation was very dire and might not survive, it was extremely frightening for me) so COVID was initially quite terrifying for me and still remains a point of fear (I still mask) due to my underlying health conditions. OK, enough of the background.

I have two rescue dogs, Bella and Lola. Lola we got as a puppy, and she is one of a kind. I've never had a dog like this. Smart, emotive, intuitive, funny, vocal, beautiful, unique...much to the point where I have found myself grieving her loss in advance, if that makes any sense. We became even closer over the pandemic, working from home, and then she had both knees replaced so I was her nursemaid and she lived in my bedroom where she's pretty much stayed ever since.

I often find myself looking at Lola and saddened, sometimes to the point of tears, knowing that I will lose her and feeling like when that day comes, I won't be whole again. I'm not sure how this has happened. I've never fixated on an animal like this before. It's like knowing that someone has a terminal illness. In an animal's case, it's knowing that their life is short. But instead of enjoying her while I have her, every day feels bittersweet because it's a day less instead of a day more. Now she's aged 8, and as a larger breed, the feeling that time is growing short is getting more intense and my grief seems to be growing with it.

I know the obvious answer is to see a therapist. I just wonder, has this happened to any of you, whether about an animal or a human? Or is this really way out there? It's so painful, it's such a painful thing to look at her with such love and such hurt at the same time. I sometimes feel like I won't survive her loss when it happens. Despite having family, and friends, that the absence will be too much for me. Maybe this is a pandemic/lockdown mental health issue. I just don't know. But I had to get this out somewhere, even if it's weird. Because I don't understand it and it scares me a little. Thanks for listening, and I hope you can be kind.

#Grief #Depression #Anxiety #PTSDSupportAndRecovery #PulmonaryEmbolism #AtrialFibrillationAndStroke

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I thought i was never going to be cured. My CtEPH jouney part 2

We sent all my medical records to UCSD and it was a huge surprise they told us I could also get a quote for a PTE. I really didn't want to get one even when it was possible, because I knew it is a very risky procedure, your chest gets opened like a hot dog, you basically get killed for several minutes in a hypothermic circulatory arrest.

So we ignored the quote and just postponed the decision until one day Olga Cesena from the international department of UCSD called us directly and explained everything to us. She said that in Mexico it wasn't possible to do the PTE, but in San Diego it was, that they are more capable than anyone in the world and the mortality rates were about 1% , impressive considering anywhere else in the world the lowest mortality rates are about 15%. She also said that a BPA was possible but for my specific case it wouldn´t really make big improvments, the PTE was the way to go.

To get the PTE wasn't an easy decision, I was really afraid of dying, but we asked doctors here in Mexico their opinion and said it is the best decision I could take. My family was right all the time. When you're making life changing decisions such as choosing procedures and hospitals it's important to have other people help you find alternatives and show you the best options. We were told by Dr Madani and Dr Kim said it was very good i haven had any BPA before it would have been more difficult to perform the PTE, also that BPAs are not for young patients. So far my parents made perfect choices.

During my PTE I was in hypothermic circulatory arrest for 77 minutes in total, several more than other patients. Now I laugh about people that pretentiously say they have been clinically dead for 3 minutes. Dr Madani expected it to be of an average complexity but to his surprise he faced a challenge with my case.

Following the surgery, he remarked that he rated the difficulty level as a 9 on a scale of 1 to 10, with 1 being the easiest and 10 being the most difficult PTE he had ever performed. Typically, patients are able to resume eating and walking the day after surgery, but in my case, it took me 5 days before I could walk again.

Now it has been two months since the surgery and I feel amazing. I feel so much energy all day , I even started to run. Yesterday I ran and walked a 5k in 50 min. I often say to my mother Dr Madani gave me superpowers. Certainly it feels like superpowers, so much I just signed up for the San Diego Marathon 2024. I know I have a long way before running 42 kilometers but it has been my goal since the intensive care unit.

I want to give my medal to the UCSD team and show them how they gave me back my burning desire to live. Not enough can't be said about how good Dr Kim, Dr Madani and their team are. I always tell people I got presidential quality open heart surgery, and sure it was, my scar is barely visible now and it never hurt bad at all.

So now my CTEPH journey is over and I feel responsible for making awareness of this disease so no one else has to live like me for 7 years ignoring there is a cure. I also feel part of the community of people with Pulmonary Hypertension due to other causes I know, just like the PTE there are potential cures being developed. I know maybe 20 years ago a surgery like this wouldn't have been possible but we have people like Dr Madani and Dr Kim who push the boundaries and make modern medicine miracles.

#cteph #pte #ucsd #PulmonaryEmbolism #pulmonaryhypertension #PAH #APS

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Scan fears

#SexualTrauma . I have recently suffered a pulmonary embolism, blood clots in my lungs. As part of the follow up I have to have a transvaginal scan. I know it’s important, but I am terrified about the memories, flashbacks, dissociation etc. My abuse started at the age of about 5 with things being pushed inside me before it escalated over time.

I have avoided smear tests and sex for a long time, even though I’m married, but the thought of this scan, of the position I will have to lie in and what they will push inside me is really scary.

I don’t have anyone one to come with me, I wouldn’t want anyone to be there while those parts of my body are exposed. I will probably be fine during it, but react when I get home, when I’m completely alone.

I also have bipolar disorder and can be prone to harming when distressed. I wondered about letting my psychiatrist know to see if he could just talk me through how to get through this, but he is difficult to get in touch with and I done have an appointment for another 2 months.

I wondered about writing it down and giving it to the radiographer person. I’m not sure I can find the words to say it out loud.

I would welcome any suggestions, it’s important that I do this and it could be the difference between life and death if I get another embolism.

Thank-you
#CPTSD #Bipolar2Disorder

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Third Dose Booked Today #COVID19 #Immunocompromised

💉 if you can get vaccinated, get vaccinated. Not all of us can make the antibodies due to the treatments we’re on so we’re counting on you to keep us safe. Yes the vaccination doesn’t guarantee you won’t get Covid but it lowers the bio load of the virus in your body. So when you sneeze instead of unleashing the army you only release some soldiers from reserves; Instead of the entire national defence haha. (Bit of my history I’ve had two PE’s (Pulmonary Embolism - blood clots in lungs 2014), have a lymphatic disease and potentially an undiagnosed autoimmune disease. I’ve had minimal to zero side effects from the two vaccinations I’ve received previously (Pfizer). I took Tylenol following my injections in 4hr increments for the first couple days and believe this help prevent/alleviate any side effects). Choice is yours, always loved.

Let’s get through this, let’s protect each other 💪

“I’m jabbing, just jabbing, I just wanna jab it in you.” 💉 🎵

#Immunocompromised #thankyouforwearingamask
#washyourhands
#safetyfirst
#rituxan