I’ve only been diagnosed with Renal Tubular Acidosis in the last 3 months but the Nephrologists here are giving me the absolute runaround. My cardiology team actually made the diagnosis after I kept losing Potassium and they investigated and after a bunch of tests made the diagnosis and referred me to the nephrologist who then literally saw me once, added a bunch of tests, changed one of my tablets and said “okay, I’ll see you in our out patients department in two weeks”. I was readmitted to hospital again since (several times actually) and had to be admitted under my cardiology team again because the nephrologist wouldn’t see me over the weekend and thus wouldn’t do any blood tests or adjust any medications. On the Monday morning, she kept avoiding any calls by either nursing staff or the cardiology team regarding me as well. The head Cardiologist had to actually track the Nephrologist down and talk to her face to face for her to come and see me, just to have her give me the same thing as previously about just ‘keep taking your medications and I’ll see you in OP in 2 weeks’’. After not getting an appointment letter, I started phoning just to be told no referral had been made for an appointment. Only after getting my GP involved and calling daily did I finally get a call last Monday to say I had an appointment for Thursday 5 Nov but wouldn’t you know it, got called this morning to say it’s been moved to the 19th. So after 2 months I’m still waiting for answers & getting absolutely nowhere! It actually feels like she’s avoiding me because she has no idea how to treat it! Anyone else have similar problems before? The real issue I actually have with all of this is that I keep losing my Potassium and the medications I’m on don’t seem to be keeping up, so my heart rate keeps going haywire, as high as 160 for hours on end. And obviously I feel absolutely crappy when that happens so I can’t work when it does & it’s happened several times at work already- unfortunately I don’t work in a place where I can just go home & it doesn’t matter, as I’m an RN myself..... - so I’ve been told I might have to stop working till this has been sorted, how am I supposed to get anywhere with a Dr that might as well not exhist? (I unfortunately live in a relatively small town with the nearest other hospital 4 hrs away)
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