I’m asked that question often because I look younger for my age and I’m very active and functional. How did everything develop? I’ve always had cold hands and toes since I was about 5 years old. I never worried about it much honestly until I found out it was #RaynaudsPhenomenon in 2017. This is the same year I was diagnosed with #Fibromyalgia & #MajorDepressiveDisorder .
What it feels like? For me, it feels like the soreness you feel after a workout and never recovering. Now, anything thing I do tell people is that I got Mono back in 2010. First time I ever got severely sick to where I even lost weight. Now it’s 2023, I have an overactive immune system and a autoimmune that they can’t find. However, they were about to do a DNA(DS) AB, High Avidity blood test because my ANA is normal and my other blood test are normal. They suspect #Lupus but they do know I have #ChronicFatigue .
*My spoons are usually 1-2 tasks that’s would last 4-5 hours until I’m fatigued*
…and I’m also diagnosed with #CarpalTunnelSyndrome .
On top of all that, I have other undiagnosed issues including #TemporomandibularJointDisorders in my jaw (nevous of dentist) and #GeneralizedAnxietyDisorder (functional and social)
Another thing, I have hypermobility in some area, such as my fingers & my knees. I was also told I had a deformity in my neck to where my neck is straighter compared to other people (I never knew what that mean). This was done after an MRI.
Two reasons I was given that all these symptoms came in my late 20’s and now in my 30’s. I was told it all started when I got sick in 2010 making my immune system go haywire (definitely possible) but also genetics (possible if it’s from my mother). That would be something I’m unable to figure out. Again, I look fine and very functional but I have an equal amount of bad days.