When it’s really late and I’m the only one up because of my pain, I’ve started to sing to myself. Sometimes along with my music, sometimes without. I find it cathartic singing to myself in the dark, and it helps distract me. The picture is one of my favorite songs to sing to myself (it’s Christian rap but the chorus has a beautiful melody).
Feeling very off today. I was doing okay, but then I started driving to my swim class. I started getting dizzy and lightheaded. Laying down kind of helps but I still feel off. When I was younger I used to get pre-syncope. When I am stressed sometimes I feel like that but today I wasn’t stressed as much. Sometimes I have breakfast, get hydrated and go to exercise or other stuff and get lightheaded and mildly nauseous. Should I ask my doctor? #flammatoryArthritis # #ronicPain # #whatswrongwithme
Tomorrow’s my birthday. I took off tomorrow and Friday because of it. I have plans with friends and family. I’m not supposed to get my period because of my endo; I’ve been taking the estrogen pills straight through and haven’t had it since October at least. And what do I see when I go to the bathroom this morning? MY PERIOD IS HERE.
My body is SO frustrating!! Out of all the months and days it could come, my birthday is when it had to happen? My period is enough by itself but add fibro and scoliosis to it?? I just hope this one doesn’t end up being heavy because if it does I’ll barely be able to get out of bed till Saturday at the earliest. This is so disappointing. I’m the kind of person who gets really excited about my birthday, it’s supposed to be really warm. I guess I’ll just have to hope and pray this occurrence won’t be typical ☹️☹️☹️
Has anyone tried Savella to help with #Fibromyalgia ? If so, was your experience with it good or bad? What side effects should I expect? Doctor just prescribed this for me and I’m nervous about trying it. I have had really bad experiences with other antidepressants in the past. Any information or advice would be greatly appreciated. #bromyalgia # #ronicPain # #pression # #xiety # #broFog # #wmeds # #nervous
I know it’s hard to get knocked down & wonder why should you even stand back up, because it happens a lot seems like right? Always get back up and never let this world that can be so cruel make you loose your light, it can be dimmed or maybe turned off. Never let anybody or anything make your light go out completely. Turn it back on, shine brighter, & keep moving forward! #pression # #xiety # #ronicIllness # #ronicPain # #toimmuneDisease # #MixedConnectiveTissueDiseaseMCTD
I will be staying there for at least 3 days and I will be a couple hours away from home. I’m just not sure what I should bring. Or what to expect #ronicPain # #rgery # #HospitalBag
What right do politicians and bureaucrats have to influence my medical treatment? Due to the legislation that has been put in place, not only can I not have access to medications that help (not make the pain go away, just be manageable) now I have to wait, completely without pain meds, for my specialist to have an opening. Two weeks. All because the law will not allow him to give me a refill without actually seeing me every 30 days. So even though there is nothing whatsoever he can do to help beyond the prescription, we have to waste both our time with monthly, “still hurts like hell? A bit worse this month because something else popped out? That sucks. See you next time.” Appointments. Forget the fact that every day is getting physically harder to get through when medicated, I’m looking at possibly having to call off work for the first time ever because of the pain! And that is completely ignoring the the overwhelmingly toll on my psyche. I’ve been struggling to make myself “keep on keeping on” with what little relief I get normally, and now they’re making the other option look more and more appealing. I really don’t think there’s a whole lot more I can take before something irreparably breaks... sorry to bother everyone, just had to express some of this in the direction of people who might understand... and I don’t have to see the pity in their eyes...
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