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Hi, my name is Fedup318. I'm here because
The village I live in does not enforce ADA #MightyTogether #Scoliosis
Hi, my name is Fedup318. I'm here because
The village I live in does not enforce ADA #MightyTogether #Scoliosis
Both my kids are persevering with multiple serious medical problems. I’m a single mom with very limited family, friend and community support. I’ve nearly died three times this year and 1-2 times every year for the past six years. My kids are very depressed about almost losing me again. My kids both have treatment resistant depression, CPTSD, endometriosis/ademomyosis,
rheumatoid arthritis, Crohn’s, epilepsy, polymigratory arthritis, degenerative spine disease, scoliosis, reynaud’s syndrome, cardiac issues, migraines and fibromyalgia, complex regional pain syndrome. The crushing guilt of being an ineffective mother, giving birth to two children who each have 5-6 illnesses inherited from me and their father who hurt them physically and emotionally especially when I was in the hospital getting 8 reconstructive spine surgeries with hardware, screws, plates in nine years covering most of my spine. My son is autistic spectrum disorder high functioning and affectionate. I’m so lucky to be here for my kids with my kids. I understand that without emergency surgery and a fully invasive opening, I wouldn’t be here today. I’m grateful to Gd for saving me. What have I done to my kids. I wasn’t so sick when I got pregnant. I didn’t know when I got pregnant that the kids father’s side has most of the same illnesses and there are many. Now both my kids, as they mature, their health diagnoses increase to longer terrifying lists of diagnoses including many of my dozens of disorders including from Crohn’s, epilepsy, an unspecified connective tissue disorders, immune modulatory disorder, endometriosis, interstitial cystitis, seronegative rheumatoid arthritis, primary immunodeficiency disorder, MGUS/multiple myeloma (monoclonal gammopathy of unknown significance), demyelinating syndrome like MS without known disease prognosis. This year I almost died three times from necrotic aspiration pneumonia with large abscesses in my lungs. I am eligible for the reversal ileostomy surgeries (2 surgeries- the first 8-10 hours is almost as devastating as the emergency colectomy. There’s a small window (4months) when surgeons can do this. It’s my only chance to get my life back to live w/o an ostomy. It’s a long process after surgery and the stoma is repaired in a follow up surgery. I need this surgery. It’s a long long recovery and major surgery with many complications. How can I do this to my family? I worry that my son & daughter can’t handle this much disruption, stress, sadness. We have such little support and no one called my kids to check on them as the plan we created was supposed to happen in emergencies. No one called. Every one gave excuses, so disappointing. Such a problem for future surgeries. I know they should be independent by now yet given their medical status, being an independent young adult is very challenging. I’m so thankful to my daughter who has been helpful beyond any thing I could have hoped for. She’s incredibly giving and loving to me. It’s hard to be here. Not functional, not effective.
#UndifferentiatedConnectiveTissueDisease #MixedConnectiveTissueDiseaseMCTD # primaryimmunodeficiencydisorder #PrimaryImmunodeficiency #AutoimmuneImmunodeficiency #CrohnsDisease #PTSD #ComplexPosttraumaticStressDisorder #ComplexRegionalPainSyndrome #CongenitalHeartDefect #Epilepsy #RheumatoidArthritis #DegenerativeDiscDisease #Scoliosis #InterstitialCystitis #Pneumonia #AspirationPneumonia
#necroticpneumonia
#Gastroparesis #gastrointesinlbleed #RheumatoidArthritis #singleparent #SjogrensSyndrome #DiffuseIdiopathicSkeletalHyperostosis #Diabetes #ComplexPosttraumaticStressDisorder #Ileostomy #Colectomy
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #EhlersDanlosSyndrome #Endometriosis #Eczema #Depression #Disability #DistractMe #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Headache #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #PanicAttack #PanicAttacks #Psoriasis #PsoriaticArthritis #Psychosis #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #Upallnight #IfYouFeelHopeless #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #CheerMeOn #Hypersomnia #WakingNightmares #Sleepwalking #RestlessLegsSyndrome #plantarfasciitis #musclespasms #MultipleAutoimmuneSyndrome #MajorDepressiveDisorder
They LOVE to play so our day revolves a Lot on hearing his bark from our bedroom and then Rosie races off the bed and spins and spins and spins in happiness while barking with her playful yips.
It is so much fun (Nixing the part where my joints all painfully pop out as I try to hurry and let her out) then she races up to the fence to bark and spin a lot more.
She was scared of his big self at first but me going up to him and giving him scrapes helped build up her courage ❤️
Can you tell she is my LIFE? 😁❤️✨️💖
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MightyPets #musclespasms #MultipleAutoimmuneSyndrome #Upallnight #CheerMeOn #SuicidalThoughts #Sleepwalking #sciatica #Scoliosis #ShinSplints #BoneSplints
Ever since her bad teeth were removed she has been more energetic and super happy! She has always been super fast but now she is like the Flash superhero!! I definitely can't keep up! It warms my soul that she is feeling so great. She absolutely deserves it!!!
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Upallnight #CheerMeOn #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PanicAttack #PanicAttacks #PsoriaticArthritis #Psychosis #plantarfasciitis #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #Sleepwalking
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psychosis #PsoriaticArthritis #Psoriasis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyTogether #Migraine #MemoryLoss #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #Upallnight #IfYouFeelHopeless #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
7 teeth had to be removed and her two removed back molars were barely hanging on. For the past year I am so glad I begged my parents for this dental appointment. Already we can tell she chews normally without bouncing food around her mouth in obvious pain.
Of course animals require anesthesia so the pets don't face stress and the vets can work more easily. 6hours was so long as I worried for her.
Expensive but SO worth it! Her breath smells so so much better! Warm fuzzies all around! Though I do miss her tiny tooth that use to stick out like a super cute gremlin! Lol
Bless this dear pup friend 'o mine!!! ❤️ ❤️
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #AnkylosingSpondylitis #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #plantarfasciitis #PanicAttack #PanicAttacks #Psoriasis #PsoriaticArthritis #Psychosis #PTSD #RareDisease #RheumatoidArthritis #Upallnight #SuicidalThoughts #Scoliosis #sciatica #MentalHealth #musclespasms #MultipleAutoimmuneSyndrome #MightyPets #MightyTogether #Migraine
Please pray that the devil is gone and removed from me forever. I would be so happy if the devil is gone from me forever and never comes back.
#CheckInWithMe #MentalHealth #Disability #Bipolar2 #Depression #Trauma #PTSD #Anxiety #Bipolar1 #SuicidalThoughts #Selfharm #SchizoaffectiveDisorder #Schizophrenia #GeneralizedAnxietyDisorder #SchizophreniaSpectrumPsychoticDisorders #Psychosis #BipolarDisorder #BPD #Scoliosis #ADHD #BingeEatingDisorder #EatingDisorder #Cancer #Grief #ObsessiveCompulsiveDisorder #DownSyndrome #ComplexRegionalPainSyndrome #ComplexPosttraumaticStressDisorder #Autism #MajorDepressiveDisorder #HypothyroidismUnderactiveThyroidDisease #Fibromyalgia #Epilepsy #Gastroparesis #EhlersDanlosSyndrome #Diabetes #ChronicIllness #CrohnsDisease #CerebralPalsy #Caregiving #AutismSpectrumDisorder #AnorexiaNervosa #Addiction
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #CheerMeOn #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #MajorDepressiveDisorder #Upallnight #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #WakingNightmares #Sleepwalking #SuicidalThoughts #Scoliosis #ShinSplints #sciatica #RareDisease #RheumatoidArthritis #MentalHealth #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #MemoryLoss
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #CheerMeOn #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #Insomnia #MajorDepressiveDisorder #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #Psychosis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #Upallnight #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Sleepwalking #WakingNightmares