Scoliosis

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Scoliosis
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    rikxecom

    a Marfan and severe rotary scoliosis lifelong owner since birth. First surgery age four introduction of Harrington instrumentation rods and struts, to correct the spine curvature and re-operated every 2 years to perform adjustment all the way to age 11 was quite a challenge in the pre computer era, for all practical purpose i lived in a hospital doctors and nurses were my parent of sort.

    After half century of photography and a quarter century of gardening self-educated in both fields. The tropical flower garden has been visited by international visitors for over ten years and was certified natural habitat by a national organization and two other organizations.

    The January 2023 book project, been told over time that a book should be written, well finally listened and figured against all odd would be a good idea. I persevered and accomplished my goals; it is a rare story unique worth being read about can be inspiring also, one never knows who we help long term, but it is nice to know that it will serve a purpose other than entertainment.

    Creating a tropical garden and photographing the tropical flowers on a bare 1/4 acres waterfront lot, built entirely by my two hands with a double disability achieving success against all odds. if would be ghost writer/editor would be interested in my project a fresh look at this memoir, would greatly be appreciated.

    RiK

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    I'm new here!

    Caring for sister post scoliosis surgeryHi, my name is Deansgramma. I'm here because

    #MightyTogether

    2 reactions 1 comment
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    Digesting My New Ailment, Since They Plan on Staying Awhile

    So I guess this IS my first post on here... I am both ashamed & proud of that. I love writing. But, I never follow through. My issue before, was I spent too much time on other social media platforms- not that they are bad! But for me- they were. Scrolling on certain social media sites was hurting my self esteem, adding to my sense of FOMO, causing me to “hurt my own feelings”, & make me feel like I was racing against a ticking clock which I was feeling extremely behind on... (things like finding the career, the financial stability, goals of learning to drive etc., not as much beginning a family but I think my list is just so behind in my head that I can’t even think that far ahead, despite being 32 years old…) in other words, since about Thanksgiving 2022, I have taken a detox from a few websites. What my new goal is, is to be more active on here. A place where I feel more welcomed, less outcasted (not that anybody MEANT to outcast me), & less alone in my diseases/illnesses. I know it is not what makes me who I am, but it is a part of me & right now, being in my current status with some of my illnesses, it is a big part of my day to day life.

    I had to accept a new ailment into my life lately. Back pain. The kind many talk about & I always thought “well I have neck issues but I have never had debilitating lower back pain so I am lucky there…) though I never realized how obviously naive I was being to not remember that the spine connects (duh) & I will likely end up with lower back pain at some point given my scoliosis. This happened after my most recent job (since then I have taken time off but it looks like I may need to look into other work) where I was on my feet for upwards of 10 hours a day between breaks. Despite our professional dresscode, I even bought the crocs that look less “croc like” meant for all day standing… well a week into my new position (field sales), I was in significant back pain. Come New Years Eve, I was on the couch enjoying some wine & all of a sudden, I couldn’t get up. I felt *helpless*... Something I don’t usually feel despite a long list of lifelong problems. I was bedridden with ice, heat rotations & Biofreeze & SalonPas the next 3 days. When business opened back up, I went to get checked out. I was given a muscle relaxer & Prednisone oral short term. (Don’t you love that stuff…me too—sarcasm), but I am not out of the woods. It is still very hard to do mundane tasks. My mom got me a back stretcher on Amazon (basically a curved thing you lay on that actually feels good & does temporarily help) & I am looking up YouTube exercises. The pain is in my lower tailbone area & surrounding. About the entire width of my lower back. I had scans done & nothing outside of my usual scoliosis shape seems to be off. I used to be an avid regular of the chiropractor but going there now is a challenge finacially. Also that was more for my neck & regular pains. This pain is much worse & it scares me to mess with. Of course I am no expert. I do not know my next steps or what I need… I guess I do not know the point of my post. I hope to look back & say wow that was a bad time & it did pass. Chronic pain is no fun. I can’t take advil or aleve because of my Crohn’s/GERD. It makes me so nauseous. I thought the prednison would work better than this. Oh well… I hope everyone is having a good New Years.

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    I'm new here!

    Hi, my name is Taylor and I'm here because I'm dealing with my Congenital heart Defects, severe arthritis, severe scoliosis, chronic fatigue, and stroke and heart attack recovery.

    #MightyTogether #Anxiety #Depression #PTSD #Grief #AutismSpectrumDisorder #CongenitalHeartDefect /Disease#Arthritis #Stroke #ComplexPosttraumaticStressDisorder #Scoliosis

    21 reactions 6 comments
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    ° " So Today Was An OK Day.. My GM Was Off Today. " ° #Anxiety #depression

    ° " It Was A Sort Of OK Work Day. I Worked With A New Assistant Manager... But I Got Yelled At By Him. Because The District Manager Called... Asking If I Sold Any Of "The New Crunch Pizza"... I Honestly Told Him No... Because These Manager's Don't Tell Us. When We Are Selling These New Food Item's... And He Made Me Feel Like I Was Lying To Him. At The End Of The Day. I Did Sell One Dumb Pizza Finally. But Customer's Are Not. Intrested. Maybe Later I Wish These People Weren't So Pushy... Like If You Don't Like The Way I Do Thing's... Then Train Someone Else To Your Liking... I'm An Empath I Feel Other People's Bad Energy All The Time. And It Affect's Me. My Boss Doesn't Seem To Understand That I Have #cerebral Palsy #Scoliosis ... I Have To Pace Myself I Will Pull Something.. Plus I Have A Broken Right Foot Lutterly Since Childhood.. So It Hurt's And My Muscle's Get Stretched Alot And I End Up Very Sore. Where The Next Morning... I Can't Get Myself Out Of Bed. My Pain Level Is At A 10 Sometime's 8... I Wish People Would Just Not Be So Ignorant... I Guess It's Profit's And Money... Over The Disabled Person... " × ▪︎ SKAOI KVITRAVN ▪︎ #Thought 's

    19 reactions 8 comments
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    Will a service dog help me? #ServiceDog #BackPain

    Hi, recently I was speaking to a family member about my pain and got suggested a service dog. This family member has often suggested using a wheelchair or walker to help me walk as I can find it difficult sometimes. I spend a lot of my time in bed due to my pain and find it difficult doing everyday activities like going to the shops, walking to the bathroom or going into school. I also suffer with severe anxiety as well and get lonely a lot. My mum works so when not being able to go to school I am left alone at home to try look after myself until she gets home. I don’t know if a service dog would be helpful and don’t want to take one away from someone who may need it more? We also live in a rented house so aren’t sure if my landlord would allow it. If anyone knows good charities in the UK which might have service dogs that will help with my conditions I would appreciate the help! Thank you! #Scoliosis #BackPain #Undiagnosed #Anxiety

    9 reactions 7 comments
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    ☆ " What Are You Looking Forward To Going Into #2023 " ☆ #Thought 's

    ° " My One Wish Is To Be Treated Like A Human Being... For People To Really Get To Know And Understand Me... And What I Can Bring To The Table... In Life.. Not To Shun Me Just Because #cerebral Palsy #Scoliosis #PTSD #Depression And More Are A Huge Part Of My Life... I'm Not Any Of My Physical × Mental Illnesses... "° ☆▪︎ SKADI KVITRAVN ▪︎☆ #Thought 's

    35 reactions 18 comments