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    Community Voices

    Notifications anyone?

    Hey guys 👋🏼 I got a notification today that I had a message request from a member of my group. When I went to answer her, there was no message… has this happened to anyone else? Getting a notification and then said notification doesn’t appear to exist?


    2 people are talking about this
    Ally Roets

    Why We Need to Expand Access to Exoskeleton Technology

    by Sam Ray (Ally’s son), age 15 As a teen with facioscapulohumeral muscular dystrophy (FSHD), there are many things I wish I could do. I have the infantile-onset form of the disease, which means I have experienced symptoms since birth. Infantile onset is more severe than the adult-onset form of FSHD. While many people with the disease are able to walk and even run during their childhoods, I use a wheelchair and I am unable to raise my arms. My disease’s progression has forced me to give up many of the things I love, like playing the guitar, drums, soccer, skiing, and just being able to get in a friend’s car or walk into their house. But what if there was technology to enable me to walk, play sports and pursue my passion for music? I started researching exoskeletons — wearable bionic suits — on the internet when I was around 11 years old. When I was given the opportunity to have an experience with the Make-A-Wish Foundation, I decided to go to an exoskeleton facility in San Francisco called EksoBionics. The technology is really amazing. You strap your feet, hips and legs into the suit and then use a special cane to control the leg and feet movements. Like magic, you are walking. When I visited EksoBionics, I met with their team and the vice president gave me a grand tour. They told me that the device is only approved for the rehabilitation of people with stroke and paraplegia, and they never thought it could be used by someone with FSHD. It opened my eyes to the possibilities it could bring to my life and to others with muscle diseases. I thought, “I need to let people know that this disease is completely life-altering and I need technology to be active again until there is a treatment.” I want these companies and engineers to know this technology would completely change my life and others with neuromuscular diseases. People with multiple sclerosis and cerebral palsy, ALS, stroke, paralysis, and others who use a wheelchair could potentially benefit. It could give us freedom and a chance to live life with fewer restrictions. I do not remember what it feels like to step on soft grass or fluffy snow. I have a hard time remembering what it is like to look people in the eye and not have to look up at their chin. I am 5’8″ but it is hard to tell because I am always sitting down. Using an exoskeleton to stand and even walk could help people like me feel more like everyone else. Another cool thing I saw when I was at the lab was an arm-assist machine called an EksoVest designed for mechanics, assembly line workers and other people who work with their arms over their heads. I was allowed to try the EksoVest and when I put it on I was able to raise my arms over my head, which is something I have not been able to do in a long time. If I had access to this vest every day, I could brush my own teeth, comb my own hair, feed myself, and perform many, many other everyday tasks the average person often takes for granted. I know you are probably thinking these devices are very expensive. You are right, they are expensive — but so are electric wheelchairs and other durable medical equipment. And the more this technology is available, the lower the cost might become. These devices could hopefully eliminate the need for other expensive equipment or modifications. For example, modifying a vehicle so I can drive costs about $80,000. If I were able to drive with an exoskeleton suit, I might not need a specially modified vehicle. Exoskeleton technology could change the future for disabled adults and kids. It is hard for me to understand why more disabled people and their families are not demanding that this technology be made available to us. It feels like I am hanging from a cliff and everyone is standing on the edge, looking down at me, but no one is reaching to offer a hand up.

    Community Voices

    Getting My Arse Handed to Me by Higher Technology

    Man, this blog I'm trying to start is really giving me fits. It might take me a while to figure this mess out. Yeesh!!!

    Can anyone recommend some good free tutorials for WordPress?

    #Technology #Blog

    5 people are talking about this
    Community Voices

    Spelling in the 21st centery

    You know you’re living in the 21st centery when, instead of looking up a word to see how it is spelt, you dictate it to your phone.


    1 person is talking about this
    Community Voices

    Technology and accessibility #Technology #LowVision #Accessibility #IIH

    I hav been able to get my phone optimized as well as it can be given my eyes and the weakness in my right side. Same for the DS and the XBOX. All I have to do is get a controller that’s easier to grip and a headset that will -hopefully- work for my computer and XBOX.

    However, this has proven very difficult for my laptop. I’ve been able to make sure that night light is on almost the entire time, 24 seven, so that the light on the computer isn’t is clearing. I’m in grad school and I’m having to take my classes online due to being immuno compromised, so I have to use the computer a lot. Additionally, I have increased the size of the text on my computer, Inc. the magnifying glass, need to text on my taskbar larger,

    and had it set up so that Microsoft will give me text suggestions not just in English, but in the other languages that I read in writing. You can’t really write but a German composer or concepts if these spellcheck doesn’t recognize German.

    I’m still having a lot of issues though with reading things on the screen.
    I can’t get the text to change on program notifications such as installations and within certain applications. Furthermore the Internet is a mess in general. Hopefully my headset will be arriving soon, but it’s really hard to do anything when everything is so blurry.

    Do y’all know of any ways to make a computer mark cesspool for someone with low vision? I wear prescription glasses that a tent in them, but it does it resolved the blurriness from IIH which is constant.

    Community Voices
    Community Voices

    7 Tools are Alternatives to MailChimp

    Community Voices
    Community Voices

    technology, anger, and priviledge

    I have an unhealthy fantasy of breaking my 2000$ laptop and $500 iphone in half. Luckily I have not broken them yet. I’m too old for technology. I hate it. Google maps are great. But googling everything and anything all the time, f***ing sucks. You can find something on te internet to support any answer to your question, even if it is not true and unfounded. Also, how priviledged am I to have both portable large and mini computers... Luckily I have buspar to take as needed, yet oddly enough, sometimes I feel like in the long term buspar makes or perpetuates irritability and anger. # #Technology #anger #Irritability #priviledge

    Community Voices