I'm new here!
Hi, my name is TinienOtto. I'm here because I have CRPS for almost 3 years and really have no support. My PM Dr, I don't know how to explain it but I tell her the withdrawal of this med outweighs the benefits of using it and if I lose my insurance I wouldn't be able to afford the appointments and the med not even just to ween off it. Almost $500 every 4 weeks + however much the Dr visits are. Local pharmacy always has to order it and since it's a opioid they won't start to fill it until you're almost done with your last patch. Plus I was having skin reactions at site of the patch. So instead of trying something new she goes back through everything that didn't work and pick out the one I had an allergic reaction ( minor hives) to prescribe at nearly the lowest dose when at the time I was on it I was on a high dose with little to no relief. Family and friends don't understand the pain I'm in. I live alone with my parakeet, Otto Von Ruthless, he has a 50+ word vocabulary and is my everything.i find myself not wanting to be around anyone or get out of bed. I'm not enjoying life, I'm suffering through the motions. Trapped in my 1000 sq foot apt. Winter is a double edged sword/ torture device - long sleeves hurt and so does the cold wind or just plain cold. So it's lose lose outside. On some days I wish assisted suicide was legal in my state and acceptable for non fatal illness. I'm NOT suicidal. I'm just suffering 24/7-365. I struggle to do necessities like showering, brushing teeth, hair, getting dressed, cooking every day.