waitingfordiagnosis

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Disability Physical

So I'm on part 2 of dealing with this disability garbage in the US - so a physical. Again. With a doctor who may or may not know POTS or Fibromyalgia. With still unanswered questions about my own health. This is annoying. #POTS #PosturalOrthostaticTachycardiaSyndrome #Fibromyalgia #waitingfordiagnosis

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The New Normal

This week has been a full amount of annoyances. Between pushing to get xrays read, dealing with finding specialists that take my insurance and watching Healow for my referrals it's been enough to get frustrated by.

Constant pain in my hands as someone who loves to be creative has been frustrating. I can't sew or knit during my D&D games because I hurt so badly. The skirt that usually would've taken a day and a half tops to get done has taken over a week.

In addition, my normally three to four days a week part time this week has stretched to a full five days, tomorrow being the last and by the time I get home I'm seriously dragging and there's no ability for takeout because most of it will make me sicker (and I live with my disabled brother and he's going to have all sorts of cooking issues) - tonight was leftover soup from last night which wasn't bad anyway.

I'm tired. I want to know what's wrong so I know how to treat it. I have been moving my right pinkie upper joint back into place several times this week. My hands ache, my feet feel like they're being stabbed and the pain radiates from there. The Rheumatologist office hasn't called from the referral yet. And I'm pretty sure my poor GP is going to get tired of my requesting specific referrals but then again who knows. I like her. She's not prepped to deal with a zebra that she ended up with.

I got the skirt done, the carefully hand done buttonhole I adore making hurt. and it's not as good as what I like to see. But it's done. I don't want to give up those sorts of crafts.

I guess I'm just exhausted and frustrated.

#posturalorthostatictachycardia #Fibromyalgia #waitingfordiagnosis #Depression #ChronicPain #thenewnormal

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Waiting on X-rays

My hands and feet hurt. Badly. Bones and joints, not just the weird fibro pain....

I have POTS and I wonder about EDS - but trying to get the testing done might get interesting. My GP tested me again for Rheumatoid Arthritis, but that was negative altogether.

I had x-rays last Thursday and as of yesterday my GP hadn't received them. I had to call and they had to refax them and still I wait.

It's frustrating. And I hurt. And I'm the one who is ALWAYS doing things with her hands, etc... Just had to rant. #PosturalOrthostaticTachycardiaSyndrome #ChronicPain #waitingfordiagnosis

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just want to be okay

im sitting here crying and i just i just want to be okay. is it too much to ask just to be okay for a day or two just to be okay #POTS #ChronicIllness #Depression #PTSD #waitingfordiagnosis

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