Alpha-1 Antitrypsin Deficiency

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Alpha-1 Antitrypsin Deficiency
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sgould
 • 
@sgould
MightyTogether 1mo

I'm new here!

Hi, my name is sgould. I've been diagnosed with

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #Alpha1AntitrypsinDeficiency #EDS #EhlersDanlosSyndrome #Neutropenia #Dysautonomia #POTS #DegenerativeDiscDisease

I'm a mom of 7 and I love the gospel of Jesus Christ! It's how I survive everyday in this crazy world and where I turn for peace and hope. I'm non-judgemental and I love everyone. I'm open minded and I love gathering "misfits" in my home to share our perfectly crazy chaos and teach unconditional love.

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TheBIGSausageHostage
 • 
@thebigsausagehostage
MightyTogether 3mo
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AtmosphericBittern9
 • 
@atmosphericbittern9
MightyTogether 4mo

I'm new here!

Hi, my name is AtmosphericBittern9. I'm here because

#MightyTogether #Anxiety #Alpha1AntitrypsinDeficiency

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MistyCorgi70876
 • 
@mistycorgi70876
MightyTogether 4mo
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Ljharrison91
 • 
@ljharrison91
MightyTogether 6mo

I'm new here!

Hi, my name is Ljharrison91. I'm here because

#MightyTogether #Fibromyalgia #Bipolar2Disorder #Migraine #EatingDisorder #AnorexiaNervosa #BulimiaNervosa #OrthorexiaNervosa #OCD #Asthma #PTSD #ComplexPTSD #GastroesophagealRefluxDisease #IrritableBowelSyndromeIBS #Gastroparesis #EhlersDanlosSyndrome #MastCellActivationDisorder #PosturalOrthostaticTachycardiaSyndrome #Hypoglycemia #MajorDepressiveDisorder #SocialAnxiety #GeneralizedAnxietyDisorder #AutismSpectrumDisorder #ADHD #Alpha1AntitrypsinDeficiency #ChronicPain #ChronicIllness #RestlessLegsSyndrome #NeuropathyHereditary #TemporomandibularJointDisorders #Bursitis #OccipitalNeuralgia #TrigeminalNeuralgia #ChiariMalformation #Dystonia

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Dina H
 • 
@therapynotebooks
MightyTogether 8mo
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V
 • 
@vycao
You, Me, and A1AT 11mo
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True or False: I have trouble describing my experience with A1AT to others.

Whether you’re trying to explain A1AT’s impact on your quality of life or you’re sharing your experience with a particular symptom, finding the words to accurately capture A1AT can be hard — and there’s no shame in that.

What resources, questions, metaphors, or anecdotes have proven helpful to describe your condition?

Share your tips in the comments below.

#RareDisease #A1AT #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

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V
 • 
@vycao
You, Me, and A1AT 11mo
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True or False: I have trouble describing my experience with A1AT to others.

Whether you’re trying to explain A1AT’s impact on your quality of life or you’re sharing your experience with a particular symptom, finding the words to accurately capture A1AT can be hard — and there’s no shame in that.

What resources, questions, metaphors, or anecdotes have proven helpful to describe your condition?

Share your tips in the comments below.

#RareDisease #A1AT #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

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V
 • 
@vycao
You, Me, and A1AT 11mo
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Which area of your life does A1AT impact the most?

From performance at work and school to spending quality time with family and friends, we know A1AT can affect life in many different ways (both good and bad).

What area of your life has been most negatively impacted by A1AT? What area has been most positively impacted? Share with us in the comments below. ⬇️

#RareDisease #A1AT #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

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V
 • 
@vycao
You, Me, and A1AT 11mo
See full photo

Which area of your life does A1AT impact the most?

From performance at work and school to spending quality time with family and friends, we know A1AT can affect life in many different ways (both good and bad).

What area of your life has been most negatively impacted by A1AT? What area has been most positively impacted? Share with us in the comments below. ⬇️

#RareDisease #A1AT #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

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