hypermobility syndrome

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Welcome to my secret account to talk about EDS and hypermobility

Essentially people get weirded out by talking about dislocation like its normal… but if you dislocate and bruise stuff on a daily basis … it kinda becomes your normal?

Finding out for most people this isnt normal… is a bit reeling especially trying to figure out what everyone else calls “Pain.” And how to notice something as “Pain.”

Im dxed Hypermobile I am trying to get on a 5+ year waitlist for an Eds diagnosis with the only Geneticist in my area… however until then I only have hints that make me suspect Eds over hypermobility mostly GI comorbidities.
#EhlersDanlosSyndrome #JointHypermobilitySyndrome #HypermobilitySyndrome #ChronicFatigue #ChronicIllness #ChronicPain (I think?)

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“Listen to Your Body”

When you live with a chronic health condition there’s a good chance that you’ll have heard the phrase “Listen to your body” more than once. Which does sound a lot easier than it actually is because it’s not as easy to get your brain & body to agree!

#ChronicIllness #ChronicIllness #ChronicPain #FND #FunctionalNeurologicalDisorder #Arthritis #BackPain #ChronicFatigue #ChronicDailyHeadache #ChronicLungDisease #EhlersDanlosSyndrome #JointHypermobilitySyndrome #HypermobilitySyndrome #Fibromyalgia

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I’m new here!

Hello! My name is Megan and I am here for support and to support others through the pain and diseases/disorders we go through. We’re all strong :)

#MightyTogether #Anxiety #Depression #Fibromyalgia #EatingDisorder #Migraine #HypermobilitySyndrome #Insomnia

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Getting out into nature more

Self care goal of mine has been to be able to enjoy nature more with my favorite person by my side. This is the 3rd weekend we’ve kept to this self-care goal of mine; small periods of hiking/walking. No more than 2-3miles each time, so there’s not always a lot of cardio-exercise since we also tend to stop and go slow to take in everything around us.

This was a beautiful view from yesterday - less hiking occurred, but we got to look at the ocean and appreciate the land.
It’s something I will never take for granted: living in a state that has such breathtaking ecosystems. Getting to see Great Herons and gophers, and various other species with just 30minute drives to get there.

These weekly adventures make life more tolerable. While sometimes it’s a challenge to full enjoy these places due to my health conditions, it’s simply getting to spend time outside in nature that makes a huge difference.
Hopefully I can soon have at least the gear ( & also maybe improved body-stability) I need to allow me to be more adventurous than keeping to mostly flat ground. But for now, my KT tape and orthotic footwear make even these shorter, simple walks in nature possible without adding to my pain levels.

And my partner/husband has been the best support in making my self-care goal happen this year.

#Selfcare #JointHypermobilitySyndrome #HypermobilitySyndrome #ChronicOrthostaticIntolerance #Migraine #Fibromyalgia #ChronicPain #MentalHealth #ChronicFatigue #Depression #Anxiety #EhlersDanlosSyndrome #PTSD

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Calling all chronically ill cat owners

I desperately need some advice on how to give my indoor cat an enriching environment without it costing an arm and a leg.

Context: My cat, Sushi, is about 7 years old and full of energy; however, we moved into a very small apartment last July and she hasn’t been the best behaved because of it. Unfortunately my boyfriend and I live in a town where pet accessibility is very limited. We are not in a place of financial privilege (our only income is from my boyfriend working), nor am I able-bodied enough to run around the apartment with her. I try to take her on walks with her leash when I have energy but those days are few and far between. I have POTS, chronic pain and fatigue, and hypermobility (possibly EDS). So I usually have bad days more often than not, but I know I’m not the only one. I’ve had Sushi since she was a kitten and she is an incredible support for my mental health and I just want to help her too.

If you have any advice, please let me know. I really appreciate it.

#POTS #MentalHealth #ChronicFatigue #ChronicPain #EhlersDanlosSyndrome #HypermobilitySyndrome #Dysautonomia

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