Alpha-1 Antitrypsin Deficiency

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Alpha-1 Antitrypsin Deficiency
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True or False: I have trouble describing my experience with A1AT to others.

Whether you’re trying to explain A1AT’s impact on your quality of life or you’re sharing your experience with a particular symptom, finding the words to accurately capture A1AT can be hard — and there’s no shame in that.

What resources, questions, metaphors, or anecdotes have proven helpful to describe your condition?

Share your tips in the comments below.

#RareDisease #A1AT #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

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True or False: I have trouble describing my experience with A1AT to others.

Whether you’re trying to explain A1AT’s impact on your quality of life or you’re sharing your experience with a particular symptom, finding the words to accurately capture A1AT can be hard — and there’s no shame in that.

What resources, questions, metaphors, or anecdotes have proven helpful to describe your condition?

Share your tips in the comments below.

#RareDisease #A1AT #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

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Which area of your life does A1AT impact the most?

From performance at work and school to spending quality time with family and friends, we know A1AT can affect life in many different ways (both good and bad).

What area of your life has been most negatively impacted by A1AT? What area has been most positively impacted? Share with us in the comments below. ⬇️

#RareDisease #A1AT #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

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See full photo

Which area of your life does A1AT impact the most?

From performance at work and school to spending quality time with family and friends, we know A1AT can affect life in many different ways (both good and bad).

What area of your life has been most negatively impacted by A1AT? What area has been most positively impacted? Share with us in the comments below. ⬇️

#RareDisease #A1AT #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

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What has your experience with treatment for A1AT been like?

Treatment types, medications, and lifestyle changes can vary from person to person. Some patients with alpha-1 find success with COPD therapies, pulmonary rehab, oxygen therapy, or weekly infusions.

What treatment experiences did you have that did not meet your expectations? In what ways, if any, have you been pleasantly surprised? Share in the comments below. ⬇️

#RareDisease #A1AT #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain