#Grief #Cancers Hi, my name is BewitchingSalmon47. I'm here because my 13 year old granddaughter is fighting aml leukemia. Watching her suffer is the absolute hardest thing Ive ever had to do in life and I just need to know what I can do for her. How can I make her laugh or smile even. How can I make her feel loved. How do I talk to her about her illness?
Life looks a lot different right now. My almost 2 year old daughter who has Down Syndrome was recently diagnosed with acute myeloid leukemia. Over the last couple of weeks, she had issues with various things that we equated to normal toddler things. GI issues after changing formulas, teething, fevers we thought were due to the teething, and fatigue which we thought were due to her barely sleeping. Last Thursday, her eyes were swollen shut after I got her home from the baby sitter so I took her to urgent care. They didn’t want to mess with it so it was recommended that we go to the ER. So we took her. They did some blood tests and that’s when we found out the news.
She is currently receiving chemo treatment. Today is day four of chemo, and her last day of treatment this cycle. She will remain in the hospital for monitoring and observation for close to a month to ensure she is responding well to treatment. At some point, she will get to go home for a couple weeks, then be back in the hospital for her next round of treatment. She will need 6 rounds of chemo treatment. At least that is the plan right now.
So far she seems to be responding well to treatment. Right now just managing pain and trying to keep her as comfortable as possible and manage all of the fluid retention.
They expect treatment and overall management of the cancer to be up to two years. There’s a lot to be figured out during this time that we are just trying to take one day at a time. That’s all we can do at the moment.
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Hi, my name is WanderingSparrow23. I'm here because
i am caregiving for my mom who has acute myeloid leukemia and two mentally ill family members#MightyTogether
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Hi, my name is Vorlex. I'm here because I have Acute Myeloid Leukemia in remission after a stem cell transplant. I’ve been suffering from increasing chronic pain that is becoming debilitating and I’m looking for suggestions to cope or similar cases.
#MightyTogether #Leukemia #MyalgicEncephalomyelitis #Fibromyalgia
I am feeling so tired and hopeless. I don’t know how to get out of this; how to get a meaningful life.
My husband says he had more energy today And enjoyed his beautiful wife!
Life is what you decide to do with it! Keeping our Father in the forefront is Essential. Thoughts from hubby!
#AcuteMyeloidLeukemia
It takes faith and trust when your oncologist says “ your prognosis does not look good.” My hero is my husband. He was diagnosed with AML three years ago!
I have never heard him say “Why Me?”
I have said to him, “you are indeed my hero and I admire you.” I am counting on many more years with my love. Married 29 years and I encourage him daily as he remains my hero. I know he is a great man of faith and he is my Hero.
Be blessed
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