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"I'm the Mayor of Muscle Fatigue," says Pam, a mom with primary progressive #multiplesclerosis.

"I visualize that I have a little vial of energy for the day. I use it up pretty quickly, and it takes a long time to recharge."

Besides her sense of humor, she powers up with a medicine that doesn't come in pills or a vial.

"Volunteering has been huge for my mental well-being. Being part of a team, interacting with [others], and problem-solving are all wonderful ways to not only distract myself from this disease, but also learn more about available resources." Pam considers the other volunteers her support group. "They tend to [be] proactive and supportive people."

Want to give volunteering a try? Visit www.nationalmssociety.org/Get-Involved/Volunteer

#chronicillness #autoimmune #newlydiagnosed #Disability #Caregiving

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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"Was diagnosed with MS earlier this week and my brother brought this to me in the hospital." — Darkhawk, superhero with #multiplesclerosis

"Super cool as a huge Marvel fan. ... Feeling optimistic and docs are too!"

Representation matters & so does support!

www.reddit.com/r/Marvel/comments/11ig55c/was_diagnosed_with_...

#MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

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Embarrassed by stares at your mobility aid? Try decorating it.

“Something that makes you feel really good," says disabled actress/director Regan Linton, "so that’s the energy that you’re bringing into the room.”

Inviting attention to you flips the power dynamic: Rather than ducking unwanted stares, instead you’re presenting something different or provocative — on your terms.

More of Regan's refreshing ideas at How to Be Seen and Heard as a Wheelchair User

#mobilityaid #Cane #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

How to Be Seen and Heard as a Wheelchair User

It doesn’t take much adapting for wheelchair users to connect in small group settings. But how do you avoid getting lost in large social gatherings, where the conversation can be literally over your…
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A Mighty good article with a lot of good ideas. Main points: 1. Get out of your mind. 2. Learn to say "no." 3. Change your surroundings.

4. Surround yourself with good people.

5. Eliminate as many stressors as you can.

6. Enjoy the little things in life.

7. Assess your life.

8. Take care of yourself.

9. Acceptance and action.

10. Feel your emotions.

#selfcare #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

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My good bud with MS landed in the hospital with COVID.

He was wondering why he was feeling so weak. Thought it was another UTI on the way. Fell off of his scooter and couldn't get up.

COVID, flu, RSV, it's all out there right now. Vax up, mask up, whatever — protect yourself.

#COVID #Flu #RSV #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

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