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Interesting: “Walk in my Shoes” interactive exhibit features sensory simulation kiosks to help others understand the often invisible symptoms of MS.

In your exhibit, what #MultipleSclerosis or #ChronicIllness symptom would go in your kiosk?

Mine would have people walking past me, coming and going, some staring — and every once in a while everything falls on its side with a thud (and some people keep walking past).

Sensory kiosks recreate Multiple Sclerosis symptoms at Bengaluru event

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Sensory kiosks recreate Multiple Sclerosis symptoms at Bengaluru event

Roche India and MSSI organized "Walk in my Shoes" event to raise awareness about Multiple Sclerosis symptoms and challenges.
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We're turning the tide against MS.

-- With better diagnosis and treatments, far fewer people with MS become progressive. It used to be half of MS cases became progressive within 10-20 years. Now about 10% become progressive over a span of 32 years.

-- If you were dxed in 1990, there were ZERO treatments. Now there are more than 20, with many more on the way — plus a vaccine is in testing.

multiplesclerosisnewstoday.com/multiple-sclerosis-prognosis-...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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10 very interesting stories

The hockey player on the right side of the picture, Bryan Bickell , donated to our Skydiving for MS fundraisers.

So many details and so much variety: different sports, different disease courses, different approaches to treatment.

www.youtube.com/watch

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Good, helpful topic on today's "Ask an Expert" virtual session, at 11 AM Central time

"Managing and Treating Gait and Balance"

If you miss it live, no problem: They are all recorded and available here, along with links to today's and future programs. Watch your step!

www.nationalmssociety.org/resources/get-support/education-pr...

#MultipleSclerosis #we Are #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

(edited)

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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It sounds like a robot! It looks like a robot! What is clonus? And do you get it too?

It's definitely a conversation-starter, or a conversation-ender. Out of the blue, my heal and knee start bucking or tapping very rapidly up and down, like Morse code: tap-tap-tap-tap-tap times 100. My cat opens an eye, disturbed from her nap, then looks at me and we are both thinking the same thing: Is my leg possessed?

No, this is clonus, a rhythmic muscle spasm brought on by crazy, out-of-place signals coming from my Swiss-cheese-like brain/central nervous system. Once again, that's clonus, brought to you by our sponsor — #MultipleSclerosis.

Truthfully now, my friends, how many of you get clonus? Or do I need to see an exorcist?

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Seniors, empty-nesters, overworked young adults, runaways—you might find them in these S. Korean "convenience stores" open for people who are lonely.

Some come to talk or watch a movie together, others to chat with the counselor on duty, and some just to enjoy the free cup of warm Ramen noodles (South Korean comfort food) and leave. The hangout spaces are much more popular than the Seoul city government thought they would be.

Reach out and touch someone today. That's what we do here at the Mighty, where there is always a light on and somebody to connect with.

www.bbc.com/news/articles/cgkrge6e0z4o

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

The Seoul 'convenience stores' fighting loneliness

From comforting bowls of ramen to company, these stores are South Korea's latest effort to fight loneliness.
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1. My body goes limp as a wet rag.

2. I can't think straight.

3. But as I've spent more time in warmer climes, I tolerate heat much better than I used to.

How does summer heat affect you and your #MultipleSclerosis #autoimmune #ChronicIllness #Disability ?

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