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It's hurricane season, and the temps are high everywhere. Protect yourself against power failure.

We all medically rely on electricity: AC, mobility devices, ventilator, CPAP/BiPAP, medical devices, mattress pump, etc.

Check with your utility company as some power companies offer a Medical Backup Program and/or Medical Power Discount that gives discounts on utilities and provides a whole-house backup battery or generator at no cost or a discount if you have a medical need.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Pathways to Wellness With MS: Maternal Health — Thurs. 7/17, 6 PM Eastern

with neurologist Deja Rose, MD of the Cleveland Clinic and Emory University.

Sign up — secure.nationalmssociety.org/site/Calendar

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmunewith neurologist Deja Rose, MD of the Cleveland Clinic and Emory University.

Sign up — secure.nationalmssociety.org/site/Calendar

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmunewith neurologist Deja Rose, MD of the Cleveland Clinic and Emory University.

Sign up — secure.nationalmssociety.org/site/Calendar

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmunewith neurologist Deja Rose, MD of the Cleveland Clinic and Emory University.

Sign up — secure.nationalmssociety.org/site/Calendar

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Detecting and Repairing Myelin Damage: The Dawn of a New Era in MS Treatment

The newest meds and research aim to stop and reverse damage to the myelin tissue that coats and protects the nerves of the spinal column. You can think of the myelin sheath like the coating on electrical wires that lets them conduct signals properly. Read about the strategies to stop the damage at the earliest possible time and even to repair that coating.

Let go my wires!

www.nationalmssociety.org/news-and-magazine/momentum-magazin...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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Today's weekly Ask an MS Expert program is about Late-Onset MS, 11 - 11:30 AM Central Time

Streaming on Facebook, YouTube and Twitch.

The website also has recorded episodes on a long list of topics like how to tell loved ones; off-label treatments; job incentives and long-term financial planning; sleep health; Spanish-language programs and a lot more.

www.nationalmssociety.org/resources/get-support/education-pr...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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Thurs. 7/10 virtual program — New to MS: Navigating Your Journey

Connect and learn with others who are new to multiple sclerosis and navigating their own journeys. This program offers info on MS and its symptoms, and advice on how to manage your case. Talk to other attendees, ask questions of a healthcare professional and a volunteer who is living with MS, and share your own experiences.

Also find the New to MS Resource Guide on the same page, with info from the program. Note: This program repeats on the second Thursday of every month.

Sign up at www.nationalmssociety.org/Symptoms-Diagnosis/Newly-Diagnosed/New-to-MS

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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Living with MS (or without it), find a passion, art, hobby, craft, project or whatever, that keeps you going.

Such vivid writing here by Gary Wien, the publisher/editor of an outline theater magazine who was diagnosed with secondary-progressive #MultipleSclerosis.

There are so many details we can all relate to – the numbness of his feet when he tries to drive, the accessibility challenges he discovers when trying to review local plays, the years-long internal argument he had over whether or not to go public with his diagnosis.

It's a great read and inspiring too. Behind the Curtain: Ten Years of Covering the Arts and Battling MS

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Behind the Curtain: Ten Years of Covering the Arts and Battling MS

There are some anniversaries you dread - certain dates each year that remind you of something you wish you could forget. I combine the day I was initially diagnosed with Multiple Sclerosis with the day that diagnosis was confirmed into one long anniversary. Then I add the date I started my first MS treatment. It equals two months of depression from May to the end of June each year, but this year was worse than usual. This was the 10th anniversary and it made me take a good look at my life.
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The bright side of these hot days — a few minutes of daily sun is good

Vitamin D deficiency seems to be tied to worsened MS symptoms, and actually vitamin D deficiency is widespread internationally.

But just 8-10 minutes a day on face and arms gives us what we need (according to UCLA Health and the Royal Osteoporosis Society).

Then cool off indoors with a few frozen grapes out of the freezer. Try it ... you'll thank me later.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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How to deal with feelings of guilt in a caregiving .

Renae's 37yo son takes care of her because she has muscular dystrophy. She says, “I feel blessed that he is willing and able to care for me. However, my gut-mother-instinct worries that I have swallowed up his life."

There is a care support crisis in our country right now, and at least 53 million family members are stepping up to give that care — daughters, sons, spouses, parents, relatives. But sometimes feelings of remorse can come with knowing that loved ones have to care for us, often at the expense of their own well-being. And even caregivers themselves feel guilty due to impossible expectations or about taking time for important self-care.

Learn more about coping and support here: How to deal with feelings of guilt for needing care

#caregiving #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability

(edited)

How to deal with feelings of guilt for needing care

Care Support Working Group members share how they cope with difficult feelings of guilt. 
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Tonight, Thurs. 6/12 @7 PM Central — New to MS: Navigating Your Journey virtual program

Connect and learn with others who are new to multiple sclerosis and navigating their own journeys. This program offers info on MS and its symptoms, and advice on how to manage your case. Talk to other attendees, ask questions of a healthcare professional and a volunteer who is living with MS, and share your own experiences.

Also find the New to MS Resource Guide on the same page, with info from the program. Note: This program repeats on the second Thursday of every month.

Sign up at www.nationalmssociety.org/Symptoms-Diagnosis/Newly-Diagnosed/New-to-MS

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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