If you are living with #MultipleSclerosis or are an MS #caregiver, family member, friend or ally, it would be great to hear from you here with your age(ish) and location(ish).
#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving
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Kesimpta is just one of the disease-modifying treatments that the MS Society recommends we consider and use as early as possible to control #MultipleSclerosis.
Find the MS specialist you trust, put your heads together and get back in the driver's seat where you belong — 'cause nobody's the boss of me! ;)
multiplesclerosisnewstoday.com/news-posts/2023/04/28/aan-202...
#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving
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www.nationalmssociety.org/resources/get-support/education-pr...
#multiplesclerosis #Latin #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving
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“So what are your plans for the future “
My old councilor once asked me .
“ Hope I have one “ I responded with a witty chuckle .
He busted up laughing then said “ No really .. what are your plans for the future “.
I had to be honest and tell him I stopped planning for the future long ago .
Becuase of my illnesses in my eyes life had become an hour by hour , minute by minute situation .
Approach it with no plans , just a “fly by the seat of your pants “ situation. And hope you make it to the “next level . “
Sorrow filled his eyes as he told me .
“ The things you really really want . You have to plan for .
I want you to do one thing that will go towards your future “
And the thought of that terrified me .
( Yep I am THAT big of a commit-a - phobic )
But here I am 3 years later .
And Today I went to the bank and finally took that advice .
And it felt so good .
Most people in my life viewed this act as something super small
Heck it probably is
But it gave me a bit more hope in the big beautiful “ maybes” the future might bring
And in the season of life I am in . That little step meant everything
I challenge you to make one little act , one little plan for the future , and see just how good it feels ❤️ #MightyTogether #CommonVariableImmuneDeficiency #RareDisease #MentalHealth #Anxiety #Undiagnosed #autoimmune #MCAS #ChronicIllness #ChronicPain
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For years I have lived with a “fibromyalgia” diagnosis and numerous strange symptoms that come and go. Recently things have escalated and changed and bloodwork revealed the probability of autoimmune disease; my PCP is guessing lupus or sjogrens. For all these years I have felt and seen the disbelief of people close to me and them thinking I’m just being “dramatic” or anxious. My ex husband went so far as to tell me to not tell anyone I have fibromyalgia because it’s embarrassing. When I recently received the lab results that I am not in fact “being dramatic “, I felt like throwing up my middle finger to everyone who turned their back and brushed me off. My mother even told me that she thought I was just having anxiety issues. My psychiatry nurse pointed out it is like I am validated now, even though having an autoimmune illness is definitely not something anyone wants. I feel like after all these years I am not just being a whiny butt. Now will come the hard part of waiting to see a specialist, it’s months to get in and that part sucks. I don’t have a lot of people in my circle and this does feel isolating so I’m here to try and be proactive, try and keep anxiety about the unknown and off the wall symptoms down and connect with others who are in the same boat. #autoimmune #ADHD #Undiagnosed #whatswrongwithme
#SjogrensSyndrome #SystemicLupusErythematosus #RaynaudsPhenomenon
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#MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #caregiving
9 reactions Be gentle with yourself, give yourself plenty of time. We're here for you when you're ready.
You're not alone.
www.nationalmssociety.org/understanding-ms/newly-diagnosed
#newlydiagnosed #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #Disability #Caregiving
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#MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving
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Keep frozen berries in your freezer. You can use the bag as a cooling pillow — but it's better to roll them around in your mouth!
#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving
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It helps me sleep, with my kicking, cramping legs, and anxiety.
Dedicated to my dear, late friend Marcia, who got hooked on opioids trying to escape MS-related pain.
#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving #Pain
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