it isn’t permanent and it will eventually pass."
"Above all, I’ve realized it’s important to be kind to yourself and give yourself grace to handle the challenges you face." — Nicole Pedra, 37, diagnosed with #MultipleSclerosis at age 10
#MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
4 reactions Sometimes it comes from someone I have no idea who they are, but it hits me just right (or wrong). #@$%!
Has this ever happened to you? How do you deal with stuff like this?
Caregiver concerns:Bruce Willis' wife addresses questions. www.marketwatch.com/story/emma-heming-willis-on-moving-husba...
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
5 reactions 
You're not just tired — you're MS tired.
How many nappers do we have here?
How many extra coffee drinkers?
What tips can you share with the community to help with fatigue?
Yawn, that was hard. Bye.
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
4 reactions •
1 comment
4 reactions •
2 comments
A study at Wayne State Univ. in Detroit shows improved gait & balance, changes in the brain, and >lower numbers of falls.< This is all supervised, of course, and more study is needed.
My wife will be pleased because she swears by its benefits. Me, I can barely walk going forwards!
Uh, any takers?
Study: journals.lww.com/jnpt/abstract/9900/structural_and_functiona...
#MultipleSclerosis #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
2 reactions In your exhibit, what #MultipleSclerosis or #ChronicIllness symptom would go in your kiosk?
Mine would have people walking past me, coming and going, some staring — and every once in a while everything falls on its side with a thud (and some people keep walking past).
Sensory kiosks recreate Multiple Sclerosis symptoms at Bengaluru event
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
8 reactions •
3 comments
8 reactions •
2 comments
-- With better diagnosis and treatments, far fewer people with MS become progressive. It used to be half of MS cases became progressive within 10-20 years. Now about 10% become progressive over a span of 32 years.
-- If you were dxed in 1990, there were ZERO treatments. Now there are more than 20, with many more on the way — plus a vaccine is in testing.
multiplesclerosisnewstoday.com/multiple-sclerosis-prognosis-...
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
5 reactions 
According to this article: — At least 40% of people with MS have insomnia symptoms.
— 20% to 50% have obstructive sleep apnea.
— People with MS are at least three times more likely to have restless legs syndrome.
Thanks for your suggestions!
www.nationalmssociety.org/news-and-magazine/momentum-magazin...
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
9 reactions •
5 comments
The hockey player on the right side of the picture, Bryan Bickell , donated to our Skydiving for MS fundraisers.
So many details and so much variety: different sports, different disease courses, different approaches to treatment.
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
7 reactions •
2 comments
Latest
