Everyone's experience with FND is so unique. Mine started 11 years ago. Debilitating dissociative, seizure-like FND episodes. Depression quickly ensued when learning that there was 'nothing wrong with me' by a neurologist. Urgh. Thankfully, my brain responded well to CBT therapy within first months of diagnosis and I got a lot better over the course of a year. Not 100% cured but able to work. 11 years goes by and then last month, I had a relapse with intense, seizure-like episodes after a traumatic event. Took a month off of work for therapy and am back at work now.
I find FND extremely frustrating. Its a condition that has caused a lot of shame and self-doubt because it's physical symptoms without any concrete physical abnormalities. I've decided to no longer feel shame about FND and when it happens, I'm trying not to beat myself up because that just makes it worse for me.
How's your FND journey going? Feel free to message me regarding FND. Please know you are all so strong for dealing with FND. Give yourself plenty of grace and kindness! #fnd #functionalneurologicaldisorder #psychogenicmovementdisorder