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Home 《 Spoonie Tips & Tricks 》

If you are a follower of mine, you’ll know I am a ‘spoonie’. Throughout the years, I’ve managed to discover some useful tips and tricks to help me get by, and wanted to share them with you, in hopes it will help another spoonie out there.

Smoothie Ice Cubes
I actually just discovered this one during a hospital stay. I wasn’t able to tolerate food or drink very well. The nurse told me to make smoothies, and freeze them in an ice-cube tray. I find drinking smoothies are sometimes too harsh on my stomach, but this way, you’re able to still get your fruits and veggies without having the harshness on your stomach.

Eye Masks
Migraines are very common with chronic illnesses. Sometimes even the smallest bit of light can be excruciating. Always keep an eye mask close incase a migraine attacks

Heated Blankets
I suffer from Raynaurds, which is a condition where the blood doesn’t flow properly to certain parts of my body. Having this is a LIFE SAVER. In the winter, my hands and feet can get super painful, but whilst I’m cocooned in this, it’s all good.

Wet Wipes
There are days where you feel all gross and sweaty, but can’t even manage to walk to the bathroom, let alone shower. Having wet wipes around makes it easier and less energy-consuming. Give your bits a wipe down, and you’ll feel slightly more human!

Dry Shampoo
Like the wet wipes, this makes you feel more human! I hate the feel of greasy hair, but putting on some dry shampoo and bunging your hair in a bun is the way forward.

Medical Notebook/ Folder
To write down symptoms,  log episodes,  medications,  appointments an anything else related to your illness. I comes in very handy an is super helpful.  I just found a app that allows me to do this easily without having to have my hard copy by me at all times but I still use my book for everything important an bring it to the hospital an to every appointment.   I take 4 types of different medication throughout the day, and painkillers every 4 hours. I always forget when I’m meant to take my next dose, or even if I’ve taken my tablets at all! I write everything down I take, the time I took them, the dose, and the next time I have to take them again. Life saver. Literally Also, having a ring binder folder makes it easier to keep all of your medical notes, discharge papers, appointment letters etc. in one place!

Earplugs
Likewise with the eye mask, sometimes even a door shutting with a migraine can cause severe pain. Keep earplugs or noise canceling headphones near by to pop in whenever the noise is getting too much.

More blog : linked in comments

#Spoonie #FND #Tips #Disability #disabilityblogger #fndusa #ChronicIllness

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7 Ways I Adjusted to Chronic Illness to Help get on with my life TIps , Day 1

When I was first diagnosed, I was in a dark place. I knew it wasn’t an option to stay there.

When I was diagnosed with functional neurologicaldisorder(FND) in 2019, the door to my old life slam closed. Though I was born with FND, I wasn’t truly disabled by the symptoms until I was 16 17 ish , as is common with connective tissue, autoimmune, and other chronic illnesses.

In other words? One day you’re “normal” and then suddenly, you’re sick.

I spent much of 2019 in a dark place emotionally, processing a lifetime of misdiagnosis and grieving some of the career and life dreams that I was forced to let go of. Depressed and in constant pain, I fight constantly living with, I wanted something different with my life an i finally decided i wanted help to live with a chronically ill life cause thats was the cards I was delt .

Unfortunately, much of what I found in online FND groups and forums was discouraging. It seemed everyone else’s bodies and lives were falling apart just like mine.

I wanted a guidebook to instruct me .

These are 7 tips I found that I wanted to share.

1. I didn’t, really — but that’s OK

Of course it took over my life! I had so many doctors to see and tests to get done. I had so many questions, concerns, fears.

Give yourself permission to be lost in your diagnosis — I find that it helps to set a finite amount of time (3 to 6 months). You’re going to cry a lot and you’re going to have setbacks. Accept where you’re at and expect that this will be a huge adjustment.

When you’re ready, you can get to work on adapting your life.

Day 1 of 7 (full list on my blog ) please share if u find these helpful!.
#fndaware #disabilityawareness #disabilitytips #TheMighty #fndusa #ChronicIllness #Spoonie

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