disabilityawareness

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    A parent's prospective -Being a disability advocate

    There are many things that you can do to help and support the disabled community and promote inclusivity. As a SEN parent, here's a few of my favourites:

    1. Ask questions, never assume
    If you don't know if my son can join in with that game of football, or access that building or find that situation too overwhelming....then ask.
    Just ask and we'll find the best approach together. Assuming he can't is ableist and prevents all of us from getting into the habit of making adaptions to include everyone.

    2. Remember YOUR discomfort is momentary
    If you find my son's behaviour, noises and physical movements difficult/frustrating/annoying, then remind yourself that that feeling is temporary. You are able to regulate your situation and emotions far more easily than my son. So remove yourself, have a word with yourself and remind yourself that those feelings were temporary. My son lives with that level of discomfort and difficulty all the time.

    3. Practise empathy
    Every time you navigate yourself with ease from A to B, or approach a new situation/place/ person without any prior planning or anxiety, enjoy the feeling, appreciate your able body and mind and then take a moment for all of those that can't.

    4. Change your perspective
    Comfort and ease comes before image. This could mean the clothing he wears, how he moves, his stimming or other self-regulating behaviour. I don't care if my son is in a bedtime onesie laying on the tarmac to keep himself calm and if I don't care, then neither should you.

    5. Speak up
    Change only happens if people want it to. If you see things that aren't inclusive, whether that be a lack of ramps or accessible toilets or an environment that doesn't cater for all then speak up. Ask questions, write to management, enquire on their accessibility policies. The more we ask the more we draw attention to things that can and should change.

    6. Research and open up your world
    Open up the echo chamber of your social media and entertainment to include people different from yourselves. Desensitise disability so that you are able to engage with the SEN community without fear or embarrassment. Education leads to awareness and acceptance.

    7. And above all else, be kind!
    That includes to yourself. If you get it wrong and feel embarrassed, be kind to yourself and then try again.

    #SpecialNeedsParenting
    #specialneedsfamily
    #Inclusion
    #disabilityawareness

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    Medical assistants and optometrist aren't ophthalmologists

    Look at the picture.
    The difference: my spelling mistakes disappeared once I started mirror-writing
    90% of my spelling mistakes go away when I do mirror-writing
    I've mixed up letters as far back as elementary school
    I remember there were a few times when I had to reread novels three times before I fully understood the plot
    The "severity" of dyslexia is a spectrum. Some people mix up letters every once in a while and others struggle with it multiple times a day.
    Someone (who doesn't have a medical degree) told me that you can mix up letters and not have dyslexia. This was the same person who realized I couldn't tell the difference between the word regime and reign.
    The people who wrote the "scientific" paper saying that you can mix up letters and not have dyslexia aren't ophthalmologists.
    One of the biggest flaws in scientific studies (the ones that have later than been debunked) is having a small and biased sample size and mixing up correlation and causation. (A good example is the replication of the "marshmallow test.")
    Dr. Sheryl M Handler and Dr. Walter M Fierson (alongside the American Academy of Pediatrics) have debunked the idea that vision therapy can cure someone from mixing up letters.
    Vision therapy "curing" learning disabilities is essentially a placebo effect that didn't work for me (as I still make spelling mistakes when I don't mirror-write)
    Brain studies are valid and factual, testimonials are a matter of opinion.
    While I don't believe in self diagnosing yourself with cancer or twitching on camera to get TikTok views, there are times when starting a conversation about symptoms should be taken seriously
    dyslexiahelp.umich.edu/answers/ask-dr-pierson/vision-therapy...
    #DisabilityPrideMonth #disabilityawareness #mirrorwriting #Dyslexia #dyslexic #dyslexiaawareness

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    This picture is not about the car. It’s about taking time out for yourself to reconnect with life and let go of all that takes your focus off what surrounds you day to day. For me it’s occasionally a drive on a Saturday morning up to the mountains to get some fresh air and let go, but it could be anything you wish it to be as you reclaim some personal time in your own life.

    What brings you back to calmness? Give some thought to your own vision of a peaceful respite and make time for it outside of your daily schedule. Set time aside for something special you wish to do and make it a reality. It could be as simple as going out for ice cream, sitting outside with a book on your front porch, or even taking the scenic drive with some good music. Life isn’t always wrapped around being productive and you shouldn’t feel guilty if you’re taking time out for you.

    The point is to remember what you’re fighting for and that is living your life happily. By taking some time for yourself, the feeling of needing to be “on” all the time or locked in and engaged gets to take a pause. This is when you get to realize something other than your cause exists like the great big world you’re standing on. The sound of nature, tuning everything out but the taste of the ice cream you just ordered, the sight of a beautiful mountain landscape, or losing yourself in a story your reading. Your day off is time that you take and give back to yourself so you can practice living and the joy of being happy.

    #recoveryjourney #neverquit #Survivor #Dailyinspiration #StrokeSurvivorsNeverQuit #AneurysmSurvivorsNeverQuit #MentalHealth #motivationaladvice #Rehabilitation #disabilitylivesmatter #strokerehab #strokeawareness #disabilityawareness #recoveryjourney

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    EDS & 8th Grade Science

    Great first day teaching my new 8th Grade Science classes…with my shoulder aching, knee injury, little sleep, while on my scooter. It was NOT easy.

    Love my kids already though, and that helps me “just keep swimming”.

    I’m so fortunate my classroom is truly spacious so I can still get to the kiddos at their desks despite being on 4 wheels.

    Just wanted you all to know, I share my condition with the kids for MANY reasons:
    - they are curious, and we ARE in Science class where I want them to ask questions & explore!
    -so they can see not every disability is visible
    -to encourage them to always be kind-we have no idea what people may be facing in their lives
    - to know that different doesn’t mean “other” or “less”
    -success is a mindset-no matter your challenges, with the right perspective you can still succeed

    Some of the kiddos I’ve taught before stopped by my class, and remembered about my condition and seeing me in my scooter, asked if it was flared up, and showed they were concerned for me. What a gift it is to use this condition to teach real-time compassion to our future society.
    💖💖🥰

    #EhlersDanlosSyndrome #disabilityawareness #studentsupport #sweetkids

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    The reality of living with POTS

    The reality of living with POTS.

    What is it? Postural Orthostatic Tachycardia Syndrome.

    It causes tachycardia and orthostatic hypotension. 30% of people with POTS experience syncope (fainting).

    I experience fainting episodes up to 100 - 150 times per day.

    Why? I have Ehlers Danlos Syndrome. It's a rare degenerative condition.

    What does this mean? It’s a connective tissue disorder due to a faulty gene which impacts collagen production.

    Think of collagen as glue for the body. Our body is held together by it.

    EDS impacts your joints, muscles, organs and bodily functions. It causes weakness, dislocations and instability.

    Unfortunately, the blood vessels in my legs are too loose to send blood back to my heart. My blood pressure drops, tachycardia starts and my heart signals panic to the brain. This causes fainting.

    I also have Dysautonomia. It is essentially the dysfunction of the autonomic nervous system. It’s usually caused by damage to the vagus nerve.

    The autonomic nervous system regulates bodily functions. It controls heart rate, blood pressure and respiration. The parasympathetic and sympathetic nervous system are responsible for processes such as rest, digestion, fight or flight responses.

    If you have Dysautonomia and POTS, your nervous system cannot regulate these processes anymore.

    Here are some symptoms:

    * Near syncope

    * Migraines/headaches

    * Gastrointestinal issues

    * Nausea

    * Insomnia

    * Joint/muscle pain

    * Muscle weakness

    * Anxiety

    * Tremulousness

    * Menstrual irregularities

    * Frequent urination

    * Cognitive impairment

    * Visual blurring or tunnelling

    * Chest pain

    * Inability to regulate temperature

    * Heart palpitations

    * Shortness of breath

    * Excessive fatigue (Chronic Fatigue Syndrome)

    * Exercise intolerance

    * Severe dizziness

    * Severe thirst and dehydration

    * Adrenaline surges

    It cannot be cured. A few organisations are researching these conditions to help find treatments to manage symptoms. Sadly, for patients, it is not well known medically.

    The community isn’t aware of how to support people living with these debilitating conditions.

    We often need mobility aids, cooling aids, IV infusions, compression stockings and garments, medication, oral hydration solutions, and access to chairs or seats.

    This condition is debilitating, and it can feel impossible to navigate. We need support from our family, friends and community. We also deserve the correct support from medical facilities, and to have access to disability services and funds to be able to live through it.

    Awareness matters.

    #EDS #EhlersDanlosSyndrome #POTS #AccessMatters #disabilityawareness #BabeWithAMobilityAid #HospitalLife #AmbulantWheelchairUsersExist

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    #postyourpill Fight the Stigma Surrounding Medications

    #postyourpill Thank you to @DrAlexGeorge for starting the #postyourpill campaign to help fight the stigma surrounding medication.

    This was the last painting that I was able to paint several years ago as I have slowly lost function in my hands. I wish I could say that the pills could bring back my painting ability, but I'll need surgery for that. And there's still no promise I will get that function back, but hopefully I will have less pain.

    My pills help me with chronic fatigue, severe pain, chronic migraines, muscle spasms, and severe depression that comes with the package of chronic illness. Without these I would not be able to get out of bed, chew without pain, use my hands to perform a limited amount of my daily functions.

    Believe me when I say I’m beyond holistic measures as I've tried everything possible to avoid jaw surgery when my jaw moved out of place, thoracic outlet syndrome surgery and now I need another surgery, maybe two. So I’m grateful for these medications. I’m grateful for much needed surgeries and nerve ablations where holistic measures have failed.

    When people are so quick to judge, and assume that someone taking medications hasn’t considered a different option, I wish they could know what a person has already suffered though and tried. The chronically ill are desperate for relief, and would love a natural healthy kale smoothie to solve their woas. We are trying. We are researching. We have done acupuncture, meditation, massages, chiropractor, manifested and visited the top of Himalayan mountains and sought out sacred monks. Our super power is to remain optimistic and always searching for something better. For me, it’s surgery, accommodations, medications and hope.

    I'm optimistic that one day I’ll paint again. Even if it takes accommodations, or months to finish one painting 5 minutes at a time, for art feeds my soul and I’m determined to win it back! 🎨❤️
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    #ThoracicOutletSyndrome #thoracicoutletsyndromeawareness #EDS #ehlerdanlossyndrome #ehlersdanlossyndromeawareness #Fibromyalgia #ChronicFatigue #ChronicIllness #InvisibleDisability #Art #disabledwomen #disabilityawareness #fluidacrylic #acrylicpour

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    My book is available

    We all have dreams, but as we grow the 🌎 tends to stop us. With faith and hard work always possible. Be thankful for your gifts and your sufferings because without them you would not be able to accomplish anything. Here I am holding an author's copy of my book on Amazon # #disabilityawareness #Peoplefirst

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    Perfection

    Why can't life be perfect? Because if it was we could not appreciate all the good things around us. Sleep well my friends tomorrow is another day #disabilityawareness #Life #Positivity

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    I Wrote a Book

    So I did something... I finally finished the first draft of a book. Regardless of whether or not I sell any copies I just want to enjoy this moment. It's been 5 years since I thought of the concept. I seriously don't even know how I feel. If I can do it so can anyone else. Don't stop because the world wants you to. #disabilityawareness #WritingThroughIt #cpawareness

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    A little Introduction

    As I am new to They Mighty I’d thought I had better do a little introduction!
    I’m Cassie I’m 34, I have a 6 year old son and work full time as well as run a business with my husband. I have spastic diplegia, scoliosis, asthma and probably a few other things I can’t remember!

    I am a huge advocate for disability awareness, rather than equality. I believe everyone should be aware of disability and should do their best to treat people with the respect and dignity they deserve. Feel free to say hi, introduce yourself to me and follow my posts! #CerebralPalsy #Disability #disabilityawareness

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